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Alzheimer's Disease in Down Syndrome (cont.)

Alzheimer's Functional Assessment Tool (Toileting, Dining, and Walking)

This is a summary of scoring for the Alzheimer's Functional Assessment Tool. This tool can be used to document the progression of the symptoms, and it can also be helpful to evaluate the usefulness of any drug treatment or behavioral interventions. It is not intended to make the diagnosis of Alzheimer's disease.

Toileting

  1. Can use bathroom in familiar and unfamiliar environments independently
  2. Goes to the toilet independently or asks for assistance; may need reminders to use toilet paper and wash hands
  3. Has occasional toileting accidents; needs verbal reminders
  4. Needs assistance going to the bathroom on a schedule (does not go to the bathroom independently); remains continent 90% of the time
  5. Needs assistance going to the bathroom on a schedule (does not go to the bathroom independently); remains continent 50% of the time or less
  6. No bowel or bladder control; may require frequent changing or special clothing (for example, pads, diapers)

Dining

  1. Can prepare simple food (for example, sandwich, toast), can set table and clean up after meal, uses knife and fork to cut food, may or may not use adaptive equipment to eat independently
  2. Can use fork and spoon to eat independently but needs food to be cut
  3. Eats independently with the help of adaptive equipment
  4. Can use fork and spoon to eat independently but may need occasional prompts to start or continue eating, may finger feed, needs food to be cut
  5. Needs physical assistance to complete the meal
  6. Develops swallowing problems, needs change in consistency of food or thick drinks
  7. Completely dependent on assistance, may need specialized feeding program

Walking/motor

  1. Independent walking (ambulation), able to walk steadily, able to start - stop - and change direction without falling, able to walk fast or run, able to ascend and descend stairs, capable of leaving premises without assistance
  2. Independent ambulation for short distances, walks up and down the stairs one step at a time by holding rails, able to leave premises without assistance
  3. Independent but cannot go up or down stairs, unable to leave premises without assistance
  4. Can walk without support but requires supervision, may be unsteady, requires supportive measures at times
  5. Needs assistance (for example, another person to hold, walker) to walk, "cruises" around using structures such as furniture and walls as support, unable to leave premises independently
  6. Needs wheelchair but can move independently
  7. Needs an adapted wheelchair and cannot move independently, needs to be pushed
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