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May 23, 2013
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Amyotrophic Lateral Sclerosis (ALS) (cont.)

FAQs

Learning about amyotrophic lateral sclerosis (ALS):

Being diagnosed:

Getting treatment:

Living with ALS:

End-of-life issues:

Other Places To Get Help

Organizations

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: 1-800-352-9424
Phone: (301) 496-5751
TDD: (301) 468-5981
Web Address: www.ninds.nih.gov

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.


Amyotrophic Lateral Sclerosis Association (ALSA)
1275 K Street NW
Suite 1050
Washington, DC 20005
Phone: 1-800-782-4747 (patient services)
Web Address: www.alsa.org

This national ALS Association provides up-to-date educational materials and information about service and support resources to ALS patients and their families, caregivers, researchers, and health professionals.


Muscular Dystrophy Association (MDA)—ALS Division
Muscular Dystrophy Association National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718
Phone: 1-800-FIGHT-MD (1-800-344-4863)
Email: mda@mdausa.org
Web Address: http://als.mdausa.org

This Web site contains ALS information, up-to-date research announcements, ALS-related publications, ALS-specific chat rooms, and other materials. It is sponsored by the Muscular Dystrophy Association (MDA).


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