Breast and Ovarian Cancer (BRCA) Genetic Test (cont.)
Why would I not be tested?
You may have several reasons not to have the test:
- You may face difficult emotions. You may be afraid and anxious if you test positive. You may feel guilty if you test negative and someone in your family tests positive.
- You are concerned about how the results might affect your relationships. You have to decide if you would tell a family member—a sister or daughter, for example—who then has to decide if he or she wants to have the test.
- Your insurance does not cover the testing, or covers only some of it. Genetic testing can be very expensive (several hundred to several thousand dollars). But most insurance companies will cover the cost of genetic testing for those who meet the conditions for testing.
- You are concerned about how the information might affect your life, disability, or long-term care insurance. The discovery of a genetic disease that is not causing symptoms now (such as breast cancer) should not affect your future ability to gain employment or health insurance coverage. A law in the United States, called the Genetic Information Nondiscrimination Act of 2008 (GINA), protects people who have DNA differences that may affect their health. But this law does not cover life insurance, disability insurance, or long-term care insurance.
- You would not take preventive steps—such as regular exams and tests, taking medicine, or having your breasts or ovaries removed—no matter what the test results are.
Other Places To Get Help
|FORCE: Facing Our Risk of Cancer Empowered|
|16057 Tampa Palms Boulevard West|
|Tampa FL 33647|
|United States of America|
|Phone: || Toll-free: 1-866-288-RISK |
|Fax: ||(954) 827-2200|
|Web Address: ||www.facingourrisk.org|
FORCE is an organization that provides educational and emotional support for women who are making decisions about surgery to prevent breast or ovarian cancer because they are at high risk. This Web site also has resources for women who have cancer and are concerned about their cancer coming back. There are online resources as well as a helpline, newsletters, and information on local groups and annual conferences.
|Genetics Home Reference, U.S. National Library of Medicine|
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The Web site has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.
|National Cancer Institute (NCI) |
|6116 Executive Boulevard|
|Bethesda, MD 20892-8322|
|Phone: ||1-800-4-CANCER (1-800-422-6237)|
|Web Address: ||www.cancer.gov (or https://cissecure.nci.nih.gov/livehelp/welcome.asp# for live help online)|
The National Cancer Institute (NCI) is a U.S. government agency that provides up-to-date information about the prevention, detection, and treatment of cancer. NCI also offers supportive care to people with cancer and to their families. NCI information is also available to doctors, nurses, and other health professionals. NCI provides the latest information about clinical trials. The Cancer Information Service, a service of NCI, has trained staff members available to answer questions and send free publications. Spanish-speaking staff members are also available.