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Cauda Equina Syndrome - Experience

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Comment from: PainIsGone, 35-44 Female (Patient) Published: October 18

I had all these symptoms. It started with a stiff lower back about 3 years ago, and it slowly got worse. I did too much camping, backpacking, and heavy lifting, and I tried to keep up with my teen boys. Three months ago, it started to hurt daily. I had chiropractic adjustments that helped at first. I also used ice and stretching exercises. Then, one day, everything I had been doing stopped working. The Doctor gave me anti-inflammatory, muscle relaxants, and Vicodin. A week later, everything got MUCH worse again. I was almost paralyzed with pain. Then my legs started to go numb, and I lost control of my bladder. I had an MRI, and a neuro-surgeon did emergency surgery. Three weeks later, I feel MUCH better. I will have to be careful for several months so I won't re-injure myself. I also had to get a new mattress. Fortunately, I am beginning to get the feeling back in my legs and feet, and I have better bladder control than I've had in several years! This seems like it must have been building up for a long time. I will be very careful to make sure it does not happen again, and I will warn my boys to use a lumbar support belt when lifting heavy objects. Thanks to all the doctors and nurses who took such good care of me at the hospital! :)

Comment from: mhm, 55-64 Female (Patient) Published: October 05

Excellent article gave me much needed information. I have all the symptoms and my doctor was very thorough and quickly followed through with an MRI and referral to a neuro-surgeon (six months wait). I was told part of a ruptured disk is lodged in my spinal canal and I have 2nd disk which is herniated/bulging and touching the spinal canal. I was told I could be patient and wait 6 - 8 months and my body would/could absorb the disk in the spinal canal and the 2nd disc should correct itself. If this doesn't happen then the next option would be injecting the discs with cortisone and if my pain still persisted then surgery to removal of the disk particle in my spinal canal. As no mention was made in this article - I am going for a second opinion. I can function with pain meds which I have been assured by my doctor and pharmacist are not addictive.

Comment from: worriedmom, 13-18 Male (Caregiver) Published: July 26

My 13 yr old son has been diagnosed with cauda equina syndrome after suffering a herniated disc at L4-L5 from a recent weight lifting injury at school. It's rare and it is horrible. He saw a chiropractor first, had adjustments and muscle stimulation along with major icing for ten days or so. He walked like a penguin. No muscle strength in feet. He got an MRI done and things moved quickly after that. He had surgery today and we're praying he will heal and walk normal again.

Comment from: Femaks, 45-54 Male (Patient) Published: July 15

In 2005 I was diagnosed with cauda equina syndrome CES, six weeks later iI had a surgery done. I noticed before the diagnosis I lost my muscle tone on both legs, with associated numbness in the groin, penis, both legs and around my anus. I lost my erectile function, also there were difficulties to pass urine and I was constipated. But what I noticed is that six years after surgery I have not completely recovered from this symptoms; worst of it, is whenever I have sex with my wife I do not ejaculate, i don't reach orgasm. This bothers me a lot. I had MRI done recently, they're not very sure if it is fibrous tissues or herniation between L5 & S1. There is still pain on the left leg, tightness around my perineal region, with severe burning sensation. It is great discomfort for me.

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