Support Groups and Counseling

Clearly, children with cerebral palsy may have very substantial problems, but almost all have the potential to learn, achieve, succeed, and create a happy life for themselves. This cannot happen without effort, and they need the help of their families. Having a child with cerebral palsy brings many challenges. It is understandable, then, that parents and siblings of a child with cerebral palsy may have significant stress. You may feel guilt, anger, anxiety, and/or hopelessness. You may feel alone and uncertain about what you should do.

Before you can help yourself or your child, you need to develop appropriate expectations and get organized. Only then can you learn practical ways to cope with the child’s problems and put these methods into practice. But making changes is not always easy. Sometimes it helps to have someone to talk to.

This is the purpose of support groups. Support groups consist of people in the same situation as you. They come together to help each other and to help themselves. Support groups provide reassurance, motivation, and inspiration. They help you see that your situation is not unique and not hopeless, and that gives you power. They also provide practical tips on coping with cerebral palsy and navigating the medical, educational, and social systems that you will rely on for help for yourself or your child. Being in a cerebral palsy support group is recommended by most mental health professionals.

Support groups meet in person, on the telephone, or on the Internet. To find a support group that works for you, contact the following organization. You can also ask a member of your child’s care team, or go on the Internet. If you do not have access to the Internet, go to the public library.

• United Cerebral Palsy - (800) 872-5827 or (202) 776-0406



• Pathways Awareness Foundation - (800) 955-2445