Viewer Comments: Chronic Kidney Disease - Describe Your ExperienceViewer Comments & ReviewsChronic Kidney Disease - Describe Your ExperienceThe eMedicineHealth physician editors ask:Please describe your experience with chronic kidney disease.
Comment from: My B's Ramon, 45-54 Male (Patient)
Published: February 16
I am so sorry for all of you who have kidney problems. I have a brother who has this problem, too. He has had it for three years. It is so sad not being able to do anything to take his pain away. He has had three years of dialysis and it has changed him so much. It hurts to see him going through this. I put him in God's hands every day. Our youngest brother can give him a kidney, but our sick brother has now developed a liver disease. The doctor put him on a very difficult treatment and now all he wants to do is sleep. The doctor said this is the only way to kill the disease. If everything goes well, my brother can have the transplant. I admire all of you who are going through this. You are all brave and beautiful people. Take care of yourselves.
Comment from: Corrie, 75 or over Female (Patient)
Published: February 11
I was diagnosed with kidney failure when I had 20% kidney function. Regular check-ups over the years until I had only 6% function left. Dialysis was strongly recommended and, after the insertion of an internal catheter which exited from my abdomen, I started with Peritoneal Dialysis with a machine to which I was attached for eight hours every night and which did five exchanges of two litres per exchange. I used this successfully for fifteen months. Then, after several infections which were cleared up with antibiotics, the internal catheter developed organisms which prevented the dialysis fluid from draining out of me. An operation to remove the PD catheter and the insertion of temporary lines in my shoulder. I have now been for approximately twelve hemo-dialysis treatments of four hours each, three times a week. I am now going to have another operation to have an internal PD catheter inserted and until that is working properly will still go for the hemo treatments. Once the PD is properly on track the temporary lines will be removed. I hope and pray that the PD will work and that I will not have to go back onto hemo. If that happens I will have to have a permanent fistula and that will then be for life, either three or maybe, if I react favorably, twice a week. I am chronically tired and breathless and nothing seems to help for that. Related Reading: antibiotics
Comment from: fanta23, 19-24 Male (Patient)
Published: January 04
I just found out last month that I have chronic kidney disease. It's a new experience for me. I am from Sudan and my whole family still in Sudan. I am fighting this disease myself, and I am only 23 years old.
Comment from: tinymisu, 13-18 Female (Patient)
Published: December 29
I am 18 years old and I have been suffering from chronic kidney disease since I was born. I was born with a pair of weak kidneys and one of them is smaller than the other. This disorder causes a series of other health problems for me. I am now in stage 4, and I feel as if I have grown weaker over time. I've been in and out of the hospital several times.
Comment from: hnb, 65-74 Male
Published: December 14
blood tests indicate deteriation of kidneys - sore back and weak leg muscles
Published: December 14
My husband has be diagnosed and we have been researching and found under biblical fasting that the body heals itself he is on day 5 right now of just water and we have been praying .And I've have been doing it too to support him .Will comment later after next ultra sound .
Comment from: max, 65-74 Female (Patient)
Published: December 14
I was diagnosed with chronic kidney disease about two years ago from taking a certain medication. I have 50% loss, but have urinary tract infections constantly, suffer from fatigue, depression, and cramps. I see my kidney doctor every 4 months with updated blood tests. I also take high blood pressure medication which I didn't start until I retired from my stressful job (couldn't understand that), but I'm 65 and feel all used up. Related Reading: depression
Comment from: linzi, 19-24 Female (Patient)
Published: December 11
I was diagnosed with chronic kidney disease three years ago and I have been in terrible pain ever since. I suffer from kidney infections all the time and I have to go to the hospital for IV antibiotic treatments and control the pain. It is very upsetting. I am only 23 years old and I have a three-year-old son!
Comment from: Len, 45-54 Male
Published: December 07
My doctor, the cardiologist and renal specialist have said I have chronic kidney disease and there is nothing they can do for me. They have given me a time limit of only months to live before my kidneys fail altogether. Must Read Articles Related to Chronic Kidney Disease
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Report Problems to the Food and Drug Administration You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088. |
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I'm so scared. One kidney was removed 4yrs. ago and I recently had five stones removed from remaining kidney. I am producing stones at an alarming rate. When I ask if I'm losing my kidney they are vague and say "You aren't there yet." I am now having weird pressure when I breathe. Did fasting help? I am 42, married, have 4 children, work and go to school full-time. Yes I'm tired. And scared.