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Craniosynostosis (cont.)

IN THIS ARTICLE

FAQs

Learning about craniosynostosis:

Getting treatment:

Other Places To Get Help

Organizations

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: 1-800-352-9424
Phone: (301) 496-5751
TDD: (301) 468-5981
Web Address: www.ninds.nih.gov

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.


Children's Craniofacial Association (CCA)
13140 Coit Road
Suite 517
Dallas, TX 75240
Phone: 1-800-535-3643
(214) 570-9099
Fax: (214) 570-8811
Email: contactCCA@ccakids.com
Web Address: www.ccakids.org

CCA is a nonprofit agency that helps address the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's services are for people who have facial differences and for their families. The Web site has information on resources, family networking, medical centers, and more.


KidsGrowth.com: Pediatric Health Care Alliance, P.A.
P.O. Box 1068
Oldsmar, FL 34677
Web Address: www.kidsgrowth.com

The KidsGrowth website, created by pediatricians, has children's health resources for parents and teens. It offers a free newsletter and information about child development, behavioral issues, and illnesses. The TeenGrowth interactive website (www.teengrowth.com) offers a secure environment for teens to get valuable information on topics such as alcohol, drugs, emotions, health, family, friends, school, sex, and sports.


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