Craniosynostosis (cont.)
FAQs
Learning about craniosynostosis: | | Getting treatment: | |
Other Places To Get Help
Organizations| National Institute of Neurological Disorders and Stroke | | NIH Neurological Institute | | P.O. Box 5801 | | Bethesda, MD 20824 | | Phone: | 1-800-352-9424 | | Phone: | (301) 496-5751 | | TDD: | (301) 468-5981 | | Web Address: | www.ninds.nih.gov | | The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders. |
| | Children's Craniofacial Association (CCA) | | 13140 Coit Road | | Suite 517 | | Dallas, TX 75240 | | Phone: | 1-800-535-3643
(214) 570-9099 | | Fax: | (214) 570-8811 | | Email: | contactCCA@ccakids.com | | Web Address: | www.ccakids.org | | CCA is a nonprofit agency that helps address the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's services are for people who have facial differences and for their families. The Web site has information on resources, family networking, medical centers, and more. |
| | KidsGrowth.com: Pediatric Health Care Alliance, P.A. | | P.O. Box 1068 | | Oldsmar, FL 34677 | | Web Address: | www.kidsgrowth.com | | The KidsGrowth website, created by pediatricians, has children's health resources for parents and teens. It offers a free newsletter and information about child development, behavioral issues, and illnesses. The TeenGrowth interactive website (www.teengrowth.com) offers a secure environment for teens to get valuable information on topics such as alcohol, drugs, emotions, health, family, friends, school, sex, and sports. |
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