Dementia in ALS (Lou Gehrig's Disease) (cont.)
IN THIS ARTICLE
Dementia in ALS Follow-up
The person with frontal lobe dementia in motor neuron disease requires regularly scheduled follow-up visits with the medical professional coordinating his or her care. These visits will give the coordinator a chance to check progress and monitor behavioral changes. The coordinator can make recommendations for changes in treatment if any are necessary.
Prevention of Dementia in ALS
There is no known way to prevent motor neuron disease or the dementia that goes along with it. This is an area of intense research in motor neuron diseases.
Outlook for Dementia in ALS
Right now, no cure is available for frontal lobe dementia or the underlying motor neuron disease. These are terminal illnesses, meaning that they cause death. Most people with motor neuron disease die within 5 years of the first symptoms. The actual cause of death is usually respiratory failure or infections related to respiratory disability.
Motor neuron disease linked to dementia seems to be even more aggressive. People with this form of the disease usually die within 3 years of the first symptoms.
If you have motor neuron disease, you should take the opportunity to express your wishes about medical care, estate planning, and personal issues while you are still able.
Medically Reviewed by a Doctor on 7/19/2016
Joe Verghese, MD, MRCPI
Nestor Galvez-Jimenez, MD
Francisco Talavera, PharmD, PhD
Helmi L Lutsep, MD
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