Dementia in ALS (Lou Gehrig's Disease) (cont.)
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Support Groups and Counseling
Living with motor neuron disease presents many new challenges, both for the affected person and for family and friends.
you are affected by motor neuron disease, talking about feelings and concerns may help.
Family caregivers play a very important role in the care of persons with this condition. If you are a caregiver, you know that caring for a person with dementia can be very difficult.
Different caregivers have different thresholds for tolerating these challenges. For many caregivers, just “venting” or talking about the frustrations of caregiving can be very helpful. Others need more help, but may feel uneasy about asking for it. One thing is certain, though: If the caregiver is given no relief, he or she can burn out, develop his or her own mental and physical problems, and become unable to continue as a caregiver.
This is why support groups were invented. Support groups are groups of people who have lived through the same difficult experiences and want to help themselves and others by sharing coping strategies. Mental health professionals strongly recommend taking part in support groups for families affected by serious disease. Support groups serve a number of different purposes for a person living with the extreme stress of being a caregiver for a person with motor neuron disease and dementia:
Support groups meet in person, on the telephone, or on the Internet. To find a support group that works for you, contact the organizations listed below. You can also ask your health care provider or behavior therapist, or go on the Internet. If you do not have access to the Internet, go to the public library.
For more information about support groups, contact the following agencies:
For More Information on Dementia in ALS
Medically reviewed by Jon Glass, MD; American board of Psychiatry and Neurology
Medically Reviewed by a Doctor on 1/26/2016
Joe Verghese, MD, MRCPI
Nestor Galvez-Jimenez, MD
Francisco Talavera, PharmD, PhD
Helmi L Lutsep, MD
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