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Dementia Overview (cont.)

Support groups and counseling for caregivers

Caring for a person with dementia can be very difficult. It affects every aspect of your life, including family relationships, work, financial status, social life, and physical and mental health. You may feel unable to cope with the demands of caring for a dependent, difficult relative. Besides the sadness of seeing the effects of your loved one's disease, you may feel frustrated, overwhelmed, resentful, and angry. These feelings may, in turn, leave you feeling guilty, ashamed, and anxious. Depression in caregivers is not uncommon.

Different caregivers have different thresholds for tolerating these challenges. For many caregivers, just "venting" or talking about the frustrations of caregiving can be enormously helpful. Others need more but may feel uneasy about asking for the help they need. One thing is certain, though: If the caregiver is given no relief, he or she can burn out, develop his or her own mental and physical problems, and become unable to care for the person with dementia.

This is why support groups were invented. Support groups are groups of people who have lived through the same set of difficult experiences and want to help themselves and others by sharing coping strategies. Mental health professionals strongly recommend that family caregivers take part in support groups. Support groups serve a number of different purposes for a person living with the extreme stress of being a caregiver for a person with dementia.

  • The group allows the person to express his or her true feelings in an accepting, nonjudgmental atmosphere.
  • The group's shared experiences allow the caregiver to feel less alone and isolated.
  • The group can offer fresh ideas for coping with specific problems.
  • The group can introduce the caregiver to resources that may be able to provide some relief.
  • The group can give the caregiver the strength he or she needs to ask for help.

Support groups meet in person, on the telephone, or on the Internet. To find a support group that works for you, contact the organizations listed below. You can also ask your health care professional or behavioral therapist or go on the Internet. If you do not have access to the Internet, go to a public library. For more information about support groups, contact these agencies:

  • Family Caregiver Alliance, National Center on Caregiving: (800) 445-8106
  • National Alliance for Caregiving
  • Eldercare Locator Service: (800) 677-1116

REFERENCE:

Larson, E. B., MD, MPH. "Evaluation of cognitive impairment and dementia." UpToDate. Updated Oct 28, 2015.
<http://www.uptodate.com/contents/evaluation-of-cognitive-impairment-and-dementia>

Press, D., MD, et al. "Treatment of dementia." UpToDate. Updated Apr 27, 2016.
<http://www.uptodate.com/contents/treatment-of-dementia>

Press, D., MD, et al. "Management of neuropsychiatric symptoms of dementia." UpToDate. Updated Jun 6, 2016.
<http://www.uptodate.com/contents/management-of-neuropsychiatric-symptoms-of-dementia>


Medically Reviewed by a Doctor on 6/20/2016

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