Viewer Comments: Endometriosis - Symptoms

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Endometriosis - Symptoms

What were the symptoms of your endometriosis?

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Comment from: BUBCROnAZ, 35-44 Female (Patient) Published: December 30

I am 38 years old and was diagnosed with endometriosis at 20.At that time the doctor I was seeing said, after my first laparoscopy, that I should highly consider a hysterectomy as soon as possible after finding several growths of endometriosis during my surgery. Well needless to say, I didn't believe that yet due to the fact I wanted children. So since then I had another laparoscopy at age 23 and could not get pregnant, so I went to a doctor who specialized in endometriosis and fertility. My doctor was amazing! I had to fast for 4 days, which was not fun, but she was able to find a hidden tumor and tons of growths all over my female areas and my intestines. I was then put immediately subject to steroid/hormone injections for a few months, and within 9 months after, I was pregnant with my now beautiful, 13-year-old daughter. Since then, I have had one more scope in 2003 and I am now having the same symptoms of painful intercourse and periods, and pain in my ovaries at random times. I am now ready to have that hysterectomy. I am saying all this to say, ladies, always get a 2nd opinion when you are dealing with a permanent solution to a possible temporary problem.

Comment from: Norma Jean, 45-54 Female (Patient) Published: October 21

I experienced a variety of pains. Some days I have sharp pains and other days just a dull aching pain. I was just diagnosed this morning so all the pain and discomfort is all just making sense now.

Comment from: jonigirl, 75 or over Female Published: July 01

From age 13 to 36, I was in horrible pain monthly. Vomiting, fainting, IBS. All I got from the medical community was that I was a drama queen. A miracle happened at 32! I got pregnant! But after a lovely baby boy was born I went right back to the same symptoms. My OB-GYN saw me and diagnosed endometriosis. I was taken in through emergency, not even able to stand. They removed several cysts wrapped around my internal organs. They also removed one ovary and part of the other, still leaving me able to get pregnant. I had 2 adopted children and one natural. Then 8 months later, I was hospitalized again and a total hysterectomy done. I had a total of 11 cysts, some as big as grapefruits. I am so glad that doctors are paying more attention now and doing something for women before they get to the stage that I reached. Speak up, ladies, and make sure that you are heard.

Comment from: Pam, 55-64 Female (Caregiver) Published: June 11

From the age of 18 to 50, I had really bad lower abdominal cramping starting the day before my period began until it ended. I was unusually tired. Until my 30s a few years after my daughter was born, my periods had been regular and lasted about 5 days. Then, they began to last longer and became heavier and the pain was worse. I especially had lower right abdominal pain. My doctor had a CT scan done and said I had an ovarian cyst. I continued to complain off and on to my doctor but he'd just prescribe higher doses of anti-inflammatory medication. When I was in my 40s, he finally sent me to an OB/GYN. He did a laparoscopy and said he could see no endometriosis. As my periods became heavier, I became anemic and the pain caused me to miss work doctor sent me for a vaginal sonogram and a large mass was detected on top of my right ovary. The OB/GYN wanted to do a removal of the mass, but I asked him to do a total hysterectomy so I wouldn't have to deal with the pain and anemia any longer. For quite some time, I felt betrayed by the MDs who I believe mismanaged my case all along.

Comment from: Suzy, 45-54 Female (Patient) Published: April 29

I suffered from endometriosis at age 40 after giving birth to my last child. The pain came in waves not dissimilar to contractions and I took strong drugs to mask the pain. Occasionally when a bout was really bad, I would need to be seen by a doctor for pain killer injections. My periods were so heavy that I leaked through layers of maternity pads and had many embarrassing moments. I was admitted to the hospital and the surgeon cut out the endometriosis but cautioned that it may come back. Two months later I was in more pain than ever and was almost house bound. I was admitted to hospital again for exploratory surgery but I knew that it was likely at least one ovary would be removed. My condition was severe and after surgery I found out that I had needed a total hysterectomy. Although I went through early menopause with some extreme symptoms, nothing has been as bad as the pain of endometriosis. I am now 49 and have since menopause gained 15 kilos for no apparent reason. I'm looking at herbal remedies to try and balance my hormones at present so I can lose weight. I had by some miracle managed to have children but at 40 I knew I was not to have any more so a total hysterectomy was a good thing for me. I am pain-free and live a normal life so I am grateful for surgical intervention, although I know it is not a solution for everyone.

Comment from: cm630, 35-44 Female (Patient) Published: November 05

I am 43 and my pain is severe at the onset of my period and will last through day four or five. I have loose stools and I had a difficult time controlling my bladder. I have three good weeks per month but, suffer dearly for five to seven days. Four Advil every three to four hours helps but it's not good on the stomach. I have been to several doctors who all say the same thing -- that outside of strong drugs with bad side effects or hysterectomy, there is not much more they can do. I continue to wait for a cure :)

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The eMedicineHealth doctors ask about Endometriosis:

Endometriosis - Treatment

What was the treatment for your endometriosis?

Endometriosis - Cause

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