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May 20, 2013

Viewer Comments: Fibromyalgia - Symptoms

Viewer Comments & Reviews

Fibromyalgia - Symptoms

The eMedicineHealth physician editors ask:

The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Anonymously share your comment to help others.Patient Discussions FAQs

Comment from: julesb, 45-54 Female (Patient) Published: May 03

About 11 years ago I gave birth to my lovely son. Within a day, I had sharp pain in my neck and shoulder, and I haven't had a pain free day since. I developed postpartum depression and IBS within a few weeks, and those symptoms have fluctuated since. My doctors are thinking fibromyalgia.

Related Reading: postpartum depression

Comment from: nannyd, 45-54 Female (Patient) Published: January 15

I had gone for a few years with severe pain. I was starting to think it was all in my head when nothing could be found. Finally, after thinking I was going crazy, a doctor gave my illness a name. Fibromyalgia! I also have had trouble sleeping for years. It seems the more sleep I get, the more I want. I seem to always be tired, and it is so frustrating when people don't understand. I was told by my family doctor, that the pain would plateau out and I would learn to live with it day by day. It has been years now, and I still never know where the pain is going to be from day to day. Depression is also a big part of it. I will keep checking on here to see if there is any new information comes out on this disease.

Comment from: allytheangel, 45-54 Female (Patient) Published: January 07

I was involved in a serious car crash in 2001 and although no broken bones, I did have severe whiplash. After two years of tests and some wrong diagnoses, I was eventually told that I had fibromyalgia. It was such a relief to finally have a diagnosis for all the pain. My rather old fashioned GP told me that it was ''all in your head'' and practically threw me out of the office! A quick change of doctors, I found one that actually understood fibromyalgia. My pain has rarely subsided with conventional painkillers but I did get better relief when I was prescribed morphine.

Related Reading: whiplash | morphine

Comment from: Mark9tson, 25-34 Male (Patient) Published: December 28

I have fibromyalgia and went to a lecture at the Oregon Health Sciences University to learn the latest research. They had studied people with FMS when they were exercising & discovered that unlike normal people, FMS sufferers do not show increases in Human Growth Hormone levels when they exercise. This is why exercise is so difficult & exhausting for us. They discovered that large doses of HGH virtually cured this condition. But the necessary dosage would cost about $800/mo. After the lecture I found this product at my local natural foods store and, although the dosage is far less than any prescription, I thought I would give it a try. It took about 4 weeks to start noticing a difference, but then there was substantial improvement. My pain levels are not affected by this dosage, but my energy levels are up dramatically. I am now able to do yoga daily, which does decrease my pain level, and to do cardio workouts 2-3 times a week. Exercise is one of the best treatments for FMS. I have been using this product for 2 years now, including a 4-month break from it to make sure it was still making a difference. A friend of mine researched the formula in this product after discovering that HGH is not legally available w/o prescription. He found from the company that this product does not actually contain HGH itself, but contains compounds that stimulate the body's own production of HGH. Sounds like snake oil, but it does seem to be working for me.

Related Reading: exercise | yoga

Comment from: Angie, 35-44 Female (Patient) Published: December 17

I was recently diagnosed with fibromyalgia. I have been having symptoms off and on since I was 21 yrs. old. When I was 21 it was really bad for a few months. There would be days I could barely move because the pain was so bad. My symptoms are pain, tenderness, stiffness, headaches, and fatigue. I was recently started on medications, which have helped the pain. I work a full-time job and I am enrolled in college.

Comment from: 45-54 Female (Patient) Published: December 14

It started about 8-10 years ago. I was extremely tired all the time and I felt like someone was extracting all the energy out of me with a giant syringe. I was told at first it was depression. I got tired of hearing that so I switched doctors. The new doc found I had Sjogren's syndrome and sent me to autoimmune specialist. Since then I have had several test and now we know that I have fibromyalgia and Sjogren's Syndrome and Chronic Fatigue Syndrome. I have days it hurts to even breathe, but I keep moving.

Related Reading: Chronic Fatigue Syndrome

Comment from: vegwell, 45-54 Female (Patient) Published: December 08

The pain started in my neck. I tried everything. New pillows, ice, heat. Then it spread across my shoulders and into my upper back. I have had pain other places too, but those are the main areas of concern. Although the pain has lessened over time, and I have returned to work, the insomnia is very problematic right now. I let a doctor talk me into taking an antipsychotic. As it turns out, the drug robbed me of personality and made me gain lots of weight.

Related Reading: insomnia

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Fibromyalgia - Treatments

The eMedicineHealth physician editors ask:

How was your fibromyalgia treated?



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