Viewer Comments: Fibromyalgia - Symptoms

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The eMedicineHealth doctors ask about Fibromyalgia:

Fibromyalgia - Symptoms

The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

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Comment from: Penny, 55-64 Female (Patient) Published: June 02

I was around the age of 50 and menopausal. My sleep started to be disturbed by vivid lucid dreams. My legs began to hurt so much after walking only a few yards, and I suddenly became so fatigued I could hardly think. Of course my doctor put it all down to the menopause, yet I knew women didn't fall apart at 50! The aches and pains began to occur all over my body. Some days I felt sore all over. I was finally diagnosed with F.M. 10 years later. Now, after trials and tribulations with many and various treatments and pain killers (not!), I have found relief with Pregabalin and Tramadol with Aspirin/Caffeine. I have found that Tai Chi is most beneficial for gentle stretching and exercise, along with true relaxation which relieves tension in the muscles and the mind. I feel so much better and more in control today, at the age of 63, that I am enjoying a younger lover after 15 yrs of celibacy. Says it all really!

Related Reading: Pregabalin | Tramadol | Aspirin

Comment from: prayingforamiracle, Female (Patient) Published: May 07

My fibromyalgia started many years ago and I didn't know it. I always complained "my skin hurts". The only way I could describe it was it felt like I was sunburned and the slightest touch would hurt. At the same time, I had terrible problems staying asleep. I woke up every hour. I even wrote down the times I woke up one night to give to my doctor. They put me on Trazodone and it works pretty good most nights. Then about 5 years I had an adverse side affect to Simvastatin where it caused severe muscle pain. I truly believe that's what started my fibromyalgia. First it was in my neck, right shoulder and armpit area. I put heat on it until I was burned and ice on it until I was frostbitten but nothing worked. My doctor did about every test imaginable including EMG, and MRI. Finally I was referred to a rheumatologist and was "officially" diagnosed. I took Nurontin (3600mg daily) and Effexor XR for about a year and all that did was make me gain 60lbs. Now I'm on Lyrica, and still on Effexor. At first the Lyrica seemed like it worked but now it just takes the edge off. I just asked my doctor about Topamax which a relative takes for chronic pain and she's looking into it. In the meantime, I just sit on the porch in the middle of the night when nobody's around and cry because I'm so tired of the pain.

Related Reading: Trazodone | Simvastatin

Comment from: dollhouse88, 45-54 Female (Patient) Published: February 23

It's hard to pinpoint a specific time of onset. I've had upper, middle and lower back pain all of my adult life. The fatigue started 10 years ago and then came what felt like 2 broken feet. Numerous blood tests and doctor visits later, I was diagnosed with Fibromyalgia. I think the stabbing pains are the worst, the fact that my feet still hurt is the most depressing. I have 5 children, 4 grandchildren and a wonderful husband, and a little dog. I want desperately to be left alone as it takes all of my concentration to deal with the pain. Then, of course, I get lonely and depressed and can see no point in getting out of bed other than the pain that pulls me out at 2:30AM daily. Medications have not helped. The side effects are worse than the pain. I'm beginning to honestly hope for Alzheimer's or an accidental death so my family has my insurance at least.

Comment from: tuliptime, 65-74 Female (Patient) Published: October 13

I started developing symptoms of fibro in the mid-70s: chest pain (costochondritis), pain in the back of my neck when I mopped the floor, upper arm pain, irritable bowel syndrome, an achiness in my arms and legs like I was coming down with the flu (but no fever). And the tender points; my husband thought I was rejecting him and the kids because I didn't want to be hugged or even held close, but it hurt too much. The symptoms worsened with the death of my brother in the late 70s from cancer, so I became paranoid thinking I had cancer or heart trouble. In 1991, I was at the doctor's office with another bout of IBS. She touched a tender point (left rib area) and ordered a complete bone scan. When it came up with nothing, she referred me to a rheumatologist. I have been under his care for both fibro and DJD. I was able to continue working, but I was never able to move up the corporate ladder because I was too slow. Also I took many Mondays off (usually asked for ahead of time because I had a "hard" weekend planned) because I had done too much over the weekend. I worked until full retirement age, but it was hard.

Published: August 27

Fibromyalgia attacked my body more than 10 years ago after knee surgery. I was in a wheelchair for about six months, and I used a cane for another six months. I did not even know how to walk anymore. I fought the fibromyalgia with a lot of pain pills and tears. I was on so many medications that it damaged my stomach lining. Learning to break the cycle wasn't easy because it was painful. It caused tiredness and depression. To this day, I am no longer on meds, and I live a new life with a new career. I have no more depression. It tries to creep in, but I fight it off through prayer. I have bowel problems, this pain that pain, etc., etc., etc. I find that when I help others and talk about it, it brings hope to others. Learning to stop the cycle is a battle. But there is hope.

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Patient Comments & Reviews

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Fibromyalgia - Treatments

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