|Centers for Disease Control and Prevention (CDC): National Center on Birth Defects and Developmental Disabilities (NCBDDD)|
|1600 Clifton Road, MS E-87|
|Atlanta, GA 30333|
|Phone: ||1-800-CDC-INFO (1-800-232-4636)|
|Web Address: ||www.cdc.gov/ncbddd|
NCBDDD aims to find the cause of and prevent birth defects and developmental disabilities. This agency works to help people of all ages with disabilities live to the fullest. The website has information on many topics, including genetics, autism, ADHD, fetal alcohol spectrum disorders, diabetes and pregnancy, blood disorders, and hearing loss.
|9725 Third Avenue NE, Suite 602|
|Seattle, WA 98115|
|Phone: ||(206) 221-4679|
|Web Address: ||www.genetests.org|
The GeneTests website provides current, accurate information on genetic testing and its use in diagnosis, management, and genetic counseling. GeneTests also promotes the appropriate use of genetic testing in patient care and personal decision making. The website offers educational materials, an illustrated glossary, a directory of clinics and laboratories that offer genetic services, and links to other resources.
|4301 Connecticut Avenue NW|
|Washington, DC 20008-2369|
|Phone: ||1-800-336-GENE (1-800-336-4363)|
|Fax: ||(202) 966-8553|
|Web Address: ||www.geneticalliance.org|
The Genetic Alliance is an international organization made up of millions of people with genetic conditions and more than 600 advocacy, research, and health care organizations that represent their interests. The Alliance builds partnerships to promote healthy lives for all those living with genetic conditions.
The Genetic Alliance promotes healthy lives by working to speed the translation of genetic advances into quality and affordable health care, public awareness, and consumer-centered public policies.
|Genetics Home Reference, U.S. National Library of Medicine|
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.
|National Human Genome Research Institute, National Institutes of Health (NIH)|
|NIH Building 31, Room 4B09, 31 Center Drive|
|MSC 2152, 9000 Rockville Pike|
|Bethesda, MD 20892-2152 |
|Phone: ||Phone: (301) 402-0911|
|Fax: ||(301) 402-2218|
|Web Address: ||www.genome.gov |
The National Human Genome Research Institute (NHGRI) supports genetic and genomic research, investigation into the ethical, legal, and social implications surrounding genetics research, and educational outreach activities. (Genome refers to a complete gene sequence in a organism.) NHGRI also supports the training of investigators and provides genome information, including fact sheets and school materials, to the public and to health professionals.