Other Places To Get Help
|Genetics Home Reference, U.S. National Library of Medicine|
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.
|KidsHealth for Parents, Children, and Teens|
|10140 Centurion Parkway North|
|Jacksonville, FL 32256|
|Phone: ||(904) 697-4100|
|Fax: ||(904) 697-4220|
|Web Address: ||www.kidshealth.org|
This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.
|National Heart, Lung, and Blood Institute (NHLBI)|
|P.O. Box 30105|
|Bethesda, MD 20824-0105|
|Phone: ||(301) 592-8573|
|Fax: ||(240) 629-3246|
|TDD: ||(240) 629-3255|
|Web Address: ||www.nhlbi.nih.gov|
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:
- Diseases affecting the heart and circulation, such as heart attacks, high cholesterol, high blood pressure, peripheral artery disease, and heart problems present at birth (congenital heart diseases).
- Diseases that affect the lungs, such as asthma, chronic obstructive pulmonary disease (COPD), emphysema, sleep apnea, and pneumonia.
- Diseases that affect the blood, such as anemia, hemochromatosis, hemophilia, thalassemia, and von Willebrand disease.
|National Hemophilia Foundation (NHF)|
|116 West 32nd Street, 11th Floor|
|New York, NY 10001|
|Phone: ||(212) 328-3700|
|Fax: ||(212) 328-3777|
|Web Address: ||www.hemophilia.org|
The National Hemophilia Foundation (NHF) is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications through education, advocacy, and research. The NHF has chapters throughout the country and a communications network that brings health professionals and the public the latest news about bleeding disorders. NHF's Web site provides information on the nature, symptoms, and treatments of many disorders.
|World Federation of Hemophilia|
|1425 René Lévesque Boulevard West|
|Montréal, QC H3G 1T7 Canada|
|Phone: ||(514) 875-7944|
|Fax: ||(514) 875-8916|
|Web Address: ||www.wfh.org |
The World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related bleeding disorders around the world. The WFH provides various health care development programs and publications. The Web site provides general information on the disease, as well as research updates. Links to other organizations and further research resources are also listed.
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