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Huntington Disease Dementia (cont.)

Next Steps

Follow-up

After HD has been diagnosed and treatment begun, the individual requires regular checkups with the neurologist and other members of the care team.

  • These checkups allow the neurologist to see how well treatment is working and to make adjustments as necessary.

  • They allow detection of new medical and behavior problems that could benefit from treatment.

  • These visits also give the family caregiver(s) an opportunity to discuss problems with the individual’s care.

The person with HD eventually becomes unable to make decisions about his or her care. It is best for the person to discuss future care arrangements with family members as early as possible, so that his or her wishes can be clarified and documented for the future. Your social worker can advise you about legal arrangements that should be made to ensure that these wishes are observed.



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Huntington Disease Dementia »

Huntington disease (HD) is a genetic, autosomal dominant, neurodegenerative disorder characterized clinically by disorders of movement, progressive dementia, and psychiatric and/or behavioral disturbance.

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