Huntington Disease Dementia (cont.)
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Support Groups and Counseling
The diagnosis of HD is devastating for the affected person and family members.
Talking about your feelings and concerns may help.
If you are a caregiver for a person with HD, you know what a difficult job this is.
Different caregivers have different thresholds for tolerating these challenges.
This is why support groups were invented. Support groups are groups of people who have lived through the same difficult experiences and want to help themselves and others by sharing coping strategies. Mental health professionals strongly recommend that family caregivers take part in support groups. Support groups serve a number of different purposes for a person living with the extreme stress of being a caregiver for a person with HD.
Support groups meet in person, on the telephone, or on the Internet. To find a support group that works for you, contact the organizations listed below. You can also ask your health care provider or behavior therapist or go on the Internet. If you do not have access to the Internet, go to the public library.
For more information about support groups, contact the following agencies:
Medically Reviewed by a Doctor on 7/8/2016
Idan Sharon, MD
Nestor Galvez-Jimenez, MD
Francisco Talavera, PharmD, PhD
Helmi L Lutsep, MD
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