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May 23, 2013
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Klinefelter Syndrome (cont.)

IN THIS ARTICLE

FAQs

Learning about Klinefelter syndrome:

Ongoing concerns:

Other Places To Get Help

Organizations

American Association for Klinefelter Syndrome Information and Support (AAKSIS)
c/o Roberta Rappaport, 2945 West Farwell Avenue
Chicago, IL 60645-2925
Phone: 1-888-466-5747
Email: KSinfo@aaksis.org
Web Address: www.aaksis.org

The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is a national volunteer association with the mission of education, support, research, and understanding of 47 XXY and its variants, collectively known as Klinefelter syndrome.


Hormone Foundation
8401 Connecticut Avenue
Suite 900
Chevy Chase, MD 20815-5817
Phone: 1-800-HORMONE (1-800-467-6663)
Web Address: www.hormone.org

The Hormone Foundation is a nonprofit organization started by the Endocrine Society. The organization promotes the prevention, treatment, and cure of hormone-related conditions through public outreach and education.


Klinefelter Syndrome and Associates (KS&A)
11 Keats Court
Coto de Caza, CA 92679
Phone: 1-888-XXY-WHAT (1-888-999-9428)
Fax: (949) 858-3443
Web Address: http://genetic.org

KS&A is focused on Knowledge, Support, and Action. It's a nonprofit education and support organization for people who have Klinefelter syndrome or other conditions caused by extra X and/or Y chromosomes.


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: (914) 997-4488
Web Address: www.marchofdimes.com

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


National Institute of Child Health and Human Development
P.O. Box 3006
Rockville, MD 20847
Phone: 1-800-370-2943
Fax: 1-866-760-5947 toll-free
TDD: 1-888-320-6942
Email: NICHDInformationResourceCenter@mail.nih.gov
Web Address: www.nichd.nih.gov

The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics. And you can send specific requests to information specialists.


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