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Normal Pressure Hydrocephalus (cont.)

Support Groups and Counseling

Coping with the symptoms of NPH can be difficult for both you and your family members. The condition affects every aspect of your life, including family relationships, work, financial status, social life, and physical and mental health. You may feel overwhelmed, depressed, frustrated, angry, or resentful. These feelings do not help the situation and usually make it worse.

This is why support groups were invented. Support groups are groups of people who have lived through the same difficult experiences and want to help themselves and others by sharing coping strategies.

Support groups meet in person, on the telephone, or on the Internet. To find a support group that works for you, contact the organizations listed below. You can also ask your health care provider or behavior therapist, or go on the Internet. If you do not have access to the Internet, go to the public library.

For more information about support groups, contact the following agencies:

  • Family Caregiver Alliance, National Center on Caregiving - (800) 445-8106
  • Hydrocephalus Association - (415) 732-7040 or (888) 598-3789
  • Hydrocephalus Foundation, Inc. - (781) 942-1161
  • Hydrocephalus Support Group, Inc. - (636) 532-8228
Medically Reviewed by a Doctor on 7/25/2014
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