Viewer Comments: Pancreatitis - Describe Your Experience

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Pancreatitis - Describe Your Experience

Please describe your experience with pancreatitis.

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Comment from: martha, Female (Patient) Published: March 22

They removed my pancreas and left only the head and I have a tumor. Right now I am in a lot of pain. I have asthma due to second hand smoke and they gave me prednisone. They told me my pancreas failed and removed my spleen, part of my stomach, intestines and I am getting worse.

Comment from: Katbird30, 35-44 Female (Patient) Published: November 10

I am a 41 year old female. In March of this year I found out I was a match for a friend that needed a kidney. After a bunch of tests, I was told that I could not give my kidney because I had a lesion in the head of my pancreas. I then had to have more tests to find out what this lesion was. It turns out that was a cyst. It was small so they suggested that I have at CT scan every six months to keep an eye on it. After the first 6 months, it had doubled in size. They want to biopsy it but due to its location it is hard to reach so they want me to wait another 6 months and at that time, if it has grown more, they want to biopsy it at that time. I have recently started to have pain in my left side and it bothers me most after I eat. I wonder if this is something I should bring to the doctor's attention. It's not horrible pain, just annoying. I have been told that at some point (when the cyst gets to a certain size) that it will have to be removed.

Comment from: Little stuff, 65-74 Female (Patient) Published: August 18

Four years ago I was admitted to the hospital after violent vomiting. I spent 2 months in the hospital and a month in rehabilitation and I had my gall bladder removed. I do not drink alcohol. I am finally back to myself and 3 weeks ago I had a bout with what I thought was food poisoning; another bout a week later after lousy Chinese food and then just felt queasy eating very little. Hospital showed pancreatitis in the CT scan and I am trying to get back to myself with low fat diet, no return to the hospital (yet).

Comment from: tony diaz, 55-64 Male (Patient) Published: March 25

MY pancreatitis started in 2007 they told me I was a drinker. I had quit drinking 20 years before that. Then it became chronic pancreatitis. In 2012 I started vomiting a lot and I lost 56 pounds. I could take nothing through my mouth and my wife took me to the hospital they did a laparoscopy and the pancreas was so big down my stomach, and the duodenum. The doctor cut part of my stomach intestine to make room for my pancreas because it got too big. Now I can barely eat and I have lost a lot of weight and I have a lot of problems with my digestive system.

Comment from: 55-64 Male (Caregiver) Published: October 22

My stepfather has been in the hospital for 10 weeks suffering from a chronic pancreatitis attack. It started out like indigestion and then acute stomach pain. They have done bloodwork, CTs, MRIs more tests than I can remember. He has more IV bags hooked up to him and now is in ICU as his body continues to retain fluid. He's on oxygen, sleeps most of the time and has aged plenty not to mention the weight loss. For every thing they try he goes one step forward and two back. The cysts attached to his pancreas are draining and getting smaller but where it is draining to is unknown. Today his kidneys have started to shut down. I could hear it in my mom's voice how scared she really is. I truly hope there's a miracle out there that can help him. I feel helpless as all I can do is watch. He has been smoke and alcohol-free for more than 15 years, and this is his first attack. He just spent his 60th birthday in the hospital.

Comment from: pgwodeshed, 55-64 Male (Patient) Published: October 06

At first it felt like a horrible case of indigestion with a gas bubble that would not go away. There was no outright pain, but lots of abdominal tenderness that eventually turned into nausea and vomiting. At one point, my blood sugar shot up to 270, and I was so restless that I was thrashing about on my hospital bed, contrary to instructions to keep my leg still because of the thrombolysis I had had the night before. The dye used in the thrombolysis also led to acute renal failure (contrast nephropathy). A combination of insulin, IV antibiotics, and IV fluids brought the acute pancreatitis under control, but I could not tolerate any food except clear liquids for about three days. I haven't had a recurrence since then (three months later).

Comment from: caring person, 45-54 Male (Patient) Published: September 24

I have had chronic pancreatitis since 1986 and have found that stress is one of the causes, for me. I avoid fatty foods and alcohol. During my six years of being sober, I only had two attacks, one of which hospitalized me for 30 days! No fun! I'm still sober now and choose to live the rest of this beautiful life that way. I would also add to be careful with the medications you take.

Published: September 11

I had increasing back pain for a few days and general malaise. I thought it was a kidney infection. I called my primary doctor and asked if he could see me or call me in antibiotics, but he told me to go to the ER. My co-workers thought it was silly to go for a kidney infection, but I had vomited once and the pain was getting a little more intense. I told the nurse I felt silly for being there, that I thought it was a UTI and that I had pain in my back on the left side and vomiting. They did a urine test and gave me some fluids and mild pain meds. Two hours later I was in extreme pain, could not stop vomiting and they came back and told me I had pancreatitis, and they were admitting me. As it turns out, I had sphincter of Oddi dysfunction causing the pancreatitis.

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Patient Comments & Reviews

The eMedicineHealth doctors ask about Pancreatitis:

Pancreatitis - Diet Prevention

Has changing your diet helped your pancreatitis?

Pancreatitis - Acute Symptoms

What were your symptoms of acute pancreatitis?

Pancreatitis - Chronic Symptoms

What were your symptoms of chronic pancreatitis?



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