Phenylketonuria (PKU) (cont.)
Other Places To Get Help
|Children's PKU Network|
|3790 Via De La Valle|
|Del Mar, CA 92014|
|Fax: ||(858) 509-0768|
|Web Address: ||www.pkunetwork.org|
The Children's PKU Network is a nonprofit organization that offers networking services, resources, a hotline, and family support.
|Genetics Home Reference, U.S. National Library of Medicine|
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.
|March of Dimes|
|1275 Mamaroneck Avenue|
|White Plains, NY 10605|
|Phone: ||(914) 997-4488|
|Web Address: ||www.marchofdimes.com|
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.
|National Institute of Child Health and Human Development|
|P.O. Box 3006|
|Rockville, MD 20847|
|Fax: ||1-866-760-5947 toll-free|
|Web Address: ||www.nichd.nih.gov |
The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics. And you can send specific requests to information specialists.
|National PKU News|
|6869 Woodlawn Avenue NE|
|Seattle, WA 98115|
|Web Address: ||www.pkunews.org|
This organization creates a newsletter and develops other materials (such as diet information and recipes) for people with phenylketonuria (PKU) and for their families. The website includes treatment and support group information, an email discussion group, and links to related websites.
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