Viewer Comments: Pilonidal Cyst - Experience

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The eMedicineHealth doctors ask about Pilonidal Cyst:

Pilonidal Cyst - Experience

What symptoms did you experience with your pilonidal cyst?

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Comment from: Ms Jina, 45-54 Female (Patient) Published: May 01

I had a pilonidal cyst when I was 17 or 18. My doctor lanced the outside and I was fine until I was 26 or 27 and it came back. I had it lanced again and then I was scheduled for surgery. The surgeon said I had a lemon sized cyst in there. They left the wound open to heal and had to be packed daily with a bleach/water solution. That was the painful part, but eventually it healed up very well.

Comment from: 35-44 Female (Patient) Published: April 10

I had a pilonidal cyst when I was 15. I am now 44 and female. I have yet had a recurrence. Crossing fingers. I had to have mine surgically removed. It healed up to a little hole. Then the hole would not heal. Every week I had to go in and have a doctor cauterize the wound. That was painful. I finally went to a doctor who said that it would not heal that way. I had to go in and have another surgery which they cut around the hole and left the whole are open to heal naturally. It had to be packed and cleaned every day. On top of this I had to go to school every day like that.

Comment from: 45-54 Female (Patient) Published: March 27

I had recurring episodes, then at around age 35 outpatient surgery under general anesthetic to remove it. It was inconvenient, but not horrible. I have never had another episode and don't even think about it anymore. It sounds like others have had much more difficult experiences, but it is probably important for people to know it isn't always that bad. I am very glad I had the surgery and took care of it seemingly forever.

Comment from: Jeff, 35-44 Male (Patient) Published: March 21

In 1995, my first symptom was lower back pain. This pain was the infection, and a few days later it erupted. A month later the same symptoms and the results occurred. Almost 20 years later, I haven't had surgery and continue living with drainage but not as heavy as the first flare-ups.

Comment from: Marc, 19-24 Male (Patient) Published: February 06

It started as something that looked like a small spot that leaked occasionally. I thought nothing of it for the first six months. I then decided to see a GP. The first GP took a swab and said there is nothing to worry about, as did the 2nd, 3rd and 4th GPs. After seeing a 5th GP he said I would need an operation and told me the name of the problem. I went for my first surgery in March 2008 and, following four weeks off work for recovery, I had no more symptoms until 2010. I was taken in for surgery number two in 2010. This was packed and dressed daily by my local RNs. This wound broke down before it fully healed. I was taken in for surgery number three in April 2010. This was, again packed and dressed every day, and, broke down again. In July 2010 I had surgery number four to try and solve this problem, and yet again, my wound broke down. The practice nurses were packing and dressing the wound every day when I was booked in for another operation to, yup, you guessed it, finally try and solve it. So surgery number five took place with an excision with Z-plasty primary closure. This seemed to be going great until Z-plasty started breaking down. I was taken into hospital had my sixth surgery and I was fitted with a Negative Pressure Wound Therapy System. This brings us to the present. I still have the NPWT System fitted and all seems to be going well, so, fingers crossed, I will be well, soon enough.

Comment from: 19-24 Male Published: December 13

It's painful to walk stand or even lay down. I am in horrible pain. Anytime I moved my legs there was shooting pain on my tailbone.

Comment from: jen16, 19-24 Male (Caregiver) Published: November 29

My son has just had surgery for this. It all started with no visible signs but he was in severe pain, which was constant and resulted in quite a few sleepless nights. He was originally diagonised with an anal fissure but symptons continued and he eventually developed a fever, and the appearance of two very small lumps at the top of his bum.

Comment from: worstpainEVER, 19-24 Male (Patient) Published: November 22

I had a pilonidal cyst for the first time about a year ago at the age of 19. My tailbone felt like I had cracked it. I couldn't walk or sit comfortably at all. I used hot compression and applied a Draw Out Salve medication (black gooey cream) until this disgusting pus started dripping out. I used gauze to cover it and fully drained it all. The next day, I felt like a NEW person.

Comment from: Lake Annis, Female Published: October 24

Two of my children, both females were born with pilonidal cysts!

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Patient Comments & Reviews

The eMedicineHealth doctors ask about Pilonidal Cyst:

Pilonidal Cyst - Symptoms

What were the symptoms of your pilonidal cyst?

Pilonidal Cyst - Treatments

What treatment was effective for your pilonidal cyst?



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