Viewer Comments: Pilonidal Cyst - Experience

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Pilonidal Cyst - Experience

What symptoms did you experience with your pilonidal cyst?

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Comment from: Marc, 19-24 Male (Patient) Published: February 06

It started as something that looked like a small spot that leaked occasionally. I thought nothing of it for the first six months. I then decided to see a GP. The first GP took a swab and said there is nothing to worry about, as did the 2nd, 3rd and 4th GPs. After seeing a 5th GP he said I would need an operation and told me the name of the problem. I went for my first surgery in March 2008 and, following four weeks off work for recovery, I had no more symptoms until 2010. I was taken in for surgery number two in 2010. This was packed and dressed daily by my local RNs. This wound broke down before it fully healed. I was taken in for surgery number three in April 2010. This was, again packed and dressed every day, and, broke down again. In July 2010 I had surgery number four to try and solve this problem, and yet again, my wound broke down. The practice nurses were packing and dressing the wound every day when I was booked in for another operation to, yup, you guessed it, finally try and solve it. So surgery number five took place with an excision with Z-plasty primary closure. This seemed to be going great until Z-plasty started breaking down. I was taken into hospital had my sixth surgery and I was fitted with a Negative Pressure Wound Therapy System. This brings us to the present. I still have the NPWT System fitted and all seems to be going well, so, fingers crossed, I will be well, soon enough.

Comment from: 19-24 Male Published: December 13

It's painful to walk stand or even lay down. I am in horrible pain. Anytime I moved my legs there was shooting pain on my tailbone.

Comment from: jen16, 19-24 Male (Caregiver) Published: November 29

My son has just had surgery for this. It all started with no visible signs but he was in severe pain, which was constant and resulted in quite a few sleepless nights. He was originally diagonised with an anal fissure but symptons continued and he eventually developed a fever, and the appearance of two very small lumps at the top of his bum.

Comment from: worstpainEVER, 19-24 Male (Patient) Published: November 22

I had a pilonidal cyst for the first time about a year ago at the age of 19. My tailbone felt like I had cracked it. I couldn't walk or sit comfortably at all. I used hot compression and applied a Draw Out Salve medication (black gooey cream) until this disgusting pus started dripping out. I used gauze to cover it and fully drained it all. The next day, I felt like a NEW person.

Comment from: Lake Annis, Female Published: October 24

Two of my children, both females were born with pilonidal cysts!

Comment from: cystsucks, 35-44 Male (Patient) Published: October 12

I got my first pilonidal cyst at 16. I am now almost 40, and it has recurred many times. Sometimes there are five years between flare-ups, but lately I get one about every eight months. I shave, clean, stay away from fast foods and fried foods, and do everything I can think of. It doesn't matter, it still comes back. It is very painful. I would rather be kicked in the testicles with a golf cleat. My doctor doesn't want me to get surgery. And other doctors don't even want to touch it. I can't sit, stand, lie down, turn over, my whole body aches it spreads down to my hips and knees. I shiver, get vertigo, and nausea. It truly sucks. My friends tell me that I should keep looking for a doctor to help me until I find relief.

Comment from: Esti, 25-34 Female (Caregiver) Published: October 04

My cyst was diagnosed at age 18, and I had surgery. A year later it happened again and in 2009 I had two surgeries. Believe it or not it has resurfaced again.

Comment from: 45-54 Female Published: September 26

I (female, 56 years old now) had a pilonidal cyst removed 32 years ago. It was left open, and I don't remember pain associated with the healing process. The only pain I remember was the headaches/nausea that I had as a side-effect of the spinal anesthesia. I have not had a recurrence since.

Comment from: ayagirl, 45-54 Female (Patient) Published: September 13

I had my first pilonidal cyst at age 16. I didn't know what it was just that there was extreme pain on my upper tail bone all the time. I went to see a surgeon who had me in surgery 30min. later. Over the years it would sometimes drain and get a little painful, but 30 years later it's back in full force. Surgery was performed four days ago and instead of being left opened a packed like the first time, this time I have stitches and a drain tube. This is much less painful, but I fear that when I return today for post-op check up that the stitches will have to be removed and packing placed. I believe it is infected, been running low fever and pain is a little worse each day.

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Patient Comments & Reviews

The eMedicineHealth doctors ask about Pilonidal Cyst:

Pilonidal Cyst - Symptoms

What were the symptoms of your pilonidal cyst?

Pilonidal Cyst - Treatments

What treatment was effective for your pilonidal cyst?

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