It feels like someone is running their finger up the sole of my foot (I'm quite ticklish) and it makes my legs jump. Generally one side is stronger than the other, though both seem to be active at the same time. I can never tell when it's coming, and sometimes it only lasts a few minutes, but other times it can go the whole night. Sometimes a hot bath helps, or doing some exercises or stretches centered on my feel (calf lifts or walking on my toes). It doesn't always work though, and I've found sleep aids most definitely don't help. Just last night it kept me up all night, and I had to call in to work this morning. I was finally able to get some sleep after a cup of coffee with muscle relaxers and Ambien.

I have experienced RLS for many years, but the condition became worse 18 years ago after I had lower back and neck surgery. The crawling sensations moved into my torso and my arms so I now have a crawling sensation throughout my body when I relax in the evening and when I go to bed. I must get back out of bed almost every night and walk around. I many times can sleep on the couch for a period of time after walking around and after two hours on the couch I can go back to bed without symptoms. I will be tested in a month for a possible gene defect that may be contributing to my other symptoms of peripheral neuropathy and fibromyalgia pain. This gene defect is MTHFR, which is a gene defect that interferes with an uptake of folic acid.

I have "extreme" restless leg syndrome and periodic limb movement disorder. I still get terrible pain and writhe in my bed for up to two hours a session. I have peripheral neuropathy and am a patient at an excellent Pain Management Clinic where I received meds and spinal injections. However, even additional breakthrough meds do not touch this pain. I live in dread of these attacks! They usually occur within an hour of lying down, only at night.

I have had RLS since I was 13. It's so annoying. It seems like things like rubbing my head or any sensitive touch causes it to react more.

I have suffered with this RLS since I was around 10 or 11 I am now 36 and it still happens at least 3 days a week. I sleep on the couch on most night when it occurs so I don't wake my girlfriend. When I was a child, I used to run my feet under the tap at night because they felt like they were on fire. They were so hot and itching/tingling, but from the inside.

I have horrible RLS, up to 6 nights a week. Now I must say that I am a kidney dialysis patient and this is stated to be a cause of RLS. I have read other comments and have to agree on some parts, one thing I can say is that absolutely nobody understands how bad it is. It is strictly in my legs and mainly in my right leg just above my knee, but I do have it in both legs. It is so bad that as I start to finally fall asleep I yell and holler because it just drives me crazy. My poor wife has a very hard time sleeping in bed with me because my legs kick so badly.

My RLS persists in the calf muscles, and symptoms usually wake me at night after I've been asleep for 1-2 hours. I find it impossible to sleep when my RLS is active.

I noticed a discomfort in my right leg. It has progressed to both legs. When I'm lying in bed, I can feel the sensation start to tingle and ache from below my knee to my ankles and when I fall asleep, it wakes me up with the aching and tingling and I toss and turn until I get up and start walking around. As long as I'm on my feet, I don't feel any discomfort, but as soon as I sit down or lay down, it starts back up. Even when I'm sitting, I have to rub both legs because of the aches and pain.

I've had restless legs for as long as I can remember. In fact, I can't remember what it feels like not to have it. My legs are restless in my lower legs and sometimes in my thighs. I do take gabapentin, but it takes a long while to get any relief. I take a hot bath and then massage a heating rub into my legs. Sometimes that lessens the feeling in my legs. I've done the walking thing and I have literally fallen asleep walking. I can't wait until someone finds a cure. I'm sure everyone else with this condition is waiting for one, too.