Viewer Comments: Restless Leg Syndrome - Describe Your ExperienceViewer Comments & ReviewsRestless Leg Syndrome - Describe Your ExperienceThe eMedicineHealth physician editors ask:Please describe your experience with restless leg syndrome.
Comment from: grammycarlew, 45-54 Female (Patient)
Published: April 19
I would just about do anything for a good night's sleep. I have been in cancer treatment for two years now with both chemo and radiation. The RLS was bad before all of this, but now is just excruciating and unbearable. I am up all night, bothering my hubby, getting in and out of bed. I cannot tolerate car rides longer than 30 minutes, and I can't sit through a movie at the theater. We always pick a seat where I can get up and down. I am still trying to work but think I may very well be at the end of my work career due to the severe fatigue. The sleep deprivation is havoc with my memory also. I take gabapentin but it no longer helps. People who do not have this do not realize the severity of the situation. I'm due for another sleep study next week. Related Reading: fatigue
Comment from: SC, 55-64 Female (Patient)
Published: March 08
I have been diagnosed with Fibromyalgia and have used medications for about 10 years now. In the last 6 or 7 years I have been experiencing intermittent tremors in my legs and this is increasing. This happens when I am standing only and I also feel that I cannot quite stand on my feet as though my feet are uncomfortable that is to say they are not balanced. I have to support myself back and forth on my feet or sit down. Recently while on a trip I found that I could not take a decent photograph because of these tremors. I had to sit down or steady myself against a tree or railing. Sometimes, not often, I get restless legs in bed, as though I need to go running to burn off energy in them. Related Reading: tremors
Comment from: 45-54 Female (Patient)
Published: February 22
I used to get RLS symptoms at bedtime when I was a young child. I would turn around in bed, and put my legs up leaning against the wall, thinking that if I got rid of the old blood, that it would work. It did sometimes and didn't sometimes. My parents said I had growing pains. I have been getting it off and on for decades now, but never so bad as last week, when I went OFF Gabapentin. Lord, it was a week of hell while I went back on the Gabapentin. The RLS attacked me with a vengeance, like if I could jump out of my skin, I would. And having this feeling minute after minute, for hours at a time, at night, in the dark, and all alone. I'm MUCH better now, and hopefully will never make the same mistake of going off of Gabapentin, again.
Comment from: bubbasmama, 55-64 Female (Patient)
Published: January 26
I have RLS. I have a lot of medical problems, serious ones. I take a ton of medications. I am on medicine for RLS also. If I ever had to chose, I would take the RLS medicine over all others. I can hardly ride in the car when it starts. The twisting and turning is exhausting. I could probably walk a hundred miles just so I can keep moving my legs. I hate it. By the way, my daughters have it.
Comment from: morgan, 75 or over Female (Patient)
Published: January 26
My problem occurs more in my feet (both of them at once, at the same time) than in my legs. I'm 68 and this has been progressive for about 5 years, so of course I'm attributing it to "growing pains." Growing old, that is... It usually occurs shortly after I have lunch and put my feet up to watch television for a couple of hours before I move on to do other chores, at which time I'm up and down but never just sitting thereafter. It's that time of day (2-4PM) when the sensation in my feet is the worst. And as someone else commented, it feels like electrical charges racing all through my feet. I have found that some relief can be had by popping a B-12 vitamin, so I hope the medical scientists are investigating the properties in B-12 in their studies to resolve this extremely annoying and in some cases debilitating medical problem.
Comment from: bullybear84, 65-74 Female (Caregiver)
Published: January 19
I have had restless legs for 50 years. It runs in my family. I only found some relief 2 years ago through my aunt who also had it. She found a company that makes natural oils and this stuff really works. It's called Nature's Inventory Nighttime Leg Calm. I have been using this for the past 2 years with great relief. I had to retire early in my career as a nurse because of the sleep deprivation I was having. This oil has been a godsend! I don't know how it works but it does and that's all I care about!
Comment from: MaureenR, 45-54 Female (Patient)
Published: December 02
For years I suffered with restless leg syndrome (RLS). It affected my work and life in general until my doctor prescribed Requip (ropinirole). Now I sleep better and I feel more relaxed. I am so much happier now, and that goes for my family, too! Related Reading: ropinirole Must Read Articles Related to Restless Legs Syndrome
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Report Problems to the Food and Drug Administration You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088. Need help identifying pills and medications? Viewer Comments & ReviewsRestless Leg Syndrome - TreatmentThe eMedicineHealth physician editors ask:What treatment has been effective for your restless leg syndrome? Restless Leg Syndrome - TreatmentThe eMedicineHealth physician editors ask:What was the treatment for your restless leg syndrome? Viewer Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on eMedicineHealth. The opinions expressed in the comments section are of the author and the author alone. eMedicineHealth does not endorse any specific product, service or treatment.
Report Problems to the Food and Drug Administration You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088. |
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I've had restless legs for as long as I can remember. In fact, I can't remember what it feels like not to have it. My legs are restless in my lower legs and sometimes in my thighs. I do take gabapentin, but it takes a long while to get any relief. I take a hot bath and then massage a heating rub into my legs. Sometimes that lessens the feeling in my legs. I've done the walking thing and I have literally fallen asleep walking. I can't wait until someone finds a cure. I'm sure everyone else with this condition is waiting for one, too.
Related Reading: gabapentin