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May 23, 2013

Viewer Comments: Restless Leg Syndrome - Describe Your Experience

Viewer Comments & Reviews

Restless Leg Syndrome - Describe Your Experience

The eMedicineHealth physician editors ask:

Please describe your experience with restless leg syndrome.

Anonymously share your comment to help others.Patient Discussions FAQs

Comment from: Annie, 55-64 Female (Patient) Published: April 22

I have read everyone else's comments and am so amazed that this is a "condition" and that it is painful! I have had this ever since I can remember. As a little girl, I used it to rock myself to sleep and I still do. It's worse at night, especially in front of tv or when I work at my computer. My right leg will rock at a very fast speed but with no discomfort or pain, as long as I keep on rocking it. Once I get up and do other things it disappears. Just before I fall asleep it happens again. I have never used any medication for it and will not seek any for it. I assume it could be connected to ADHD children and adults. Although I only started taking 5mg Ritalin pd at the age of 58 it has had no effect on my RLS. By the way, the Ritalin is the best thing I ever did! Good luck with your painful RLS!

Related Reading: ADHD

Comment from: Shell, 25-34 Female (Patient) Published: October 25

I have had RLS for a few years now, that deep ache, which turns into a burning sensation, which in turn causes my legs to twitch, and I mean twitch. I can be flapping about all night, this twitching or jerking has now started to happen during the day if at rest. I'm 32 and find it extremely embarrassing if I start to twitch when I'm out, not to mention making trying to sleep at night a nightmare. I have spoken to GP, who just grinned and said restless legs syndrome and basically sent me packing, why do they not understand the impact this can have on someone's life!

Related Reading: restless legs syndrome

Comment from: datmybaby, 45-54 Female Published: June 09

I have had RLS ever since I was a child first my doctor said it was growing pains, then when I got older they said it was anxiety attacks. I thought something was seriously wrong with me because when I tell people about it they don't have any idea what I was talking about. Then finally they came out with a name for it RLS. It is great I know what I have now but that is no comfort when they have no cure for it. Yes I take medicine for it and it was great (requip) then it got worse they increased my dose I am now at 5mg a day of requip and I also take klonopin and trazodone. It all worked great in the beginning now it is so severe I can't handle it. When I get an attack I move my legs a 100miles and hour and shake my arms till it hurts and it doesn't take away my need to move. Nobody understands what I go through. My attacks are now lasting days. I go sometimes without sleep for two or three days. YES ITS THAT BAD!!! I need help with this and fast it's getting out of control the older I get. I work out 5days a week for 2hrs. It doesn't help I have tried warm baths and it doesn't help me. I have tried so many different things and they don't work. I don't know what else to do. Why can't there be a surgical procedure that can take this away forever? If there is a doctor out there reading this please I will try anything just help me.

Related Reading: anxiety | trazodone

Comment from: flamingmagic1871, 19-24 Female (Patient) Published: November 02

I work in home health as a CNA and I am 24 years old. I just recently started having symptoms and it's about enough to drive me crazy. When I sit or lie down I get this feeling mostly from my knees to my toes deep inside of my legs and it feels tingly and stiff. My legs feel charged with energy. It feels like if they were to detach from my body they could run a marathon. Just feeling the extreme movement like that would make it go away, it takes forever to fall asleep. It's very annoying and very uncomfortable.

Comment from: njb, 55-64 Female (Caregiver) Published: October 28

I am a retired hospice nurse, also lapsed lawyer. I have had symptoms since I was a teenager, requiring to stop on a car journey and stretch my legs, interfering with my ability to enjoy going to the movies or to the theater. I found yoga at bedtime, with gentle stretches, very helpful. Now, however, I need more extensive stretches for the "twitching" that comes on as I wind down to sleep, or sit for prolonged periods, such as on movies, in a plane or car journeys. And my leg restlessness has progressed to include arm discomfort and full body clonic jerking which wakes me at night. I have tried calcium/magnesium/zinc liquid supplements at bedtime, with initially good, eventually diminished, effect. The most effective and fast relief I have found is the traditional remedy of a couple of tablespoons of organic cider vinegar in warm water, with maple syrup to ameliorate the taste. It works within a few minutes, and can be repeated if I wake during the night. This remedy was given me by a patient 10 years ago, and although it tastes vile, I swear by it.

Related Reading: hospice | yoga

Published: August 27

I have suffered with painful RLS for a few years. My symptoms are present 24 hours a day and are in my legs (upper and lower), hips, arms, neck and chin. I have been on many meds but Tramadol is the only one that if I take it 3 to 4 times a day actually provides any relief. I also get the symptoms so bad at times that I can't walk. This happens at least once a week.

Related Reading: Tramadol

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Viewer Comments & Reviews

Restless Leg Syndrome - Treatment

The eMedicineHealth physician editors ask:

What treatment has been effective for your restless leg syndrome?

Restless Leg Syndrome - Treatment

The eMedicineHealth physician editors ask:

What was the treatment for your restless leg syndrome?



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