Stroke: Should I Move My Loved One Into Long-Term Care
What is a Decision Point?
Stroke: Should I Move My Loved One Into Long-Term Care?You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Stroke: Should I Move My Loved One Into Long-Term Care? Get the facts Your options
Key points to remember
FAQs What happens after a stroke?When brain cells are damaged or die, the body parts controlled by those cells don't work like they did before. The loss of function may be mild or severe. It could be short-term or permanent. How well your loved one recovers depends on how much of the brain is damaged, where the damage is, and how fast the blood supply returns to the damaged cells. Many people who have a stroke recover. But a stroke can cause very serious problems. Of the people who survive a stroke, 15 to 30 out of 100 will have a permanent loss of some function, and 20 out of 100 will need long-term care within 3 months of the stroke.1 Your ability to care for a loved one at home will depend on his or her level of disability, your health, and the amount of support that you have from family members or outside help. After a stroke, your loved one may have trouble with:
It could take a long time for your loved one to regain speech and other skills. And some skills may not come back completely. Many people who have a stroke will have some long-term problems with talking, understanding, and decision-making. They also may have behavior problems that affect their relationships with family and friends. They may need help learning how to act in social situations. Your loved one could have other problems that happen right away or within months to years after a stroke. They include:
People who have had a stroke may act differently than they did before. They may be slow, cautious, and disorganized when they do unfamiliar activities. They may seem anxious. The level of care and help your loved one needs may increase if his or her condition gets worse. Basic activities like eating, dressing, bathing, using the bathroom, and simply moving around may be harder or impossible for the person to do alone. Taking care of your loved one at home may get too hard for you, both physically and emotionally. What kinds of long-term care are available?"Nursing home" is a phrase commonly used to refer to any long-term care center, but there are several kinds of long-term care. Each provides different levels of medical care, personal assistance, and programs and support services. The quality and costs of care and services at long-term care facilities vary widely, and options vary from community to community.
What are the choices for part-time care?Some people find that part-time help allows them to keep their loved one at home for a longer time. Part-time care may take place either at home or in an adult day care. As in long-term care centers, home care can provide whatever help a person needs. For example, a home health aide can help the person bathe and wash clothes and linens. A nurse can give medical care. Adult day care and respite services take care of the person so that the regular caregiver can take a break. This may relieve some of the stress of caregiving. Why might your loved one's doctor recommend long-term care?Your loved one's doctor may suggest long-term care if:
Compare your options Compare
Move your loved one into
long-term care Move your loved one into
long-term care
Care for your loved one
at home Care for your loved one
at home
Personal stories Are you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about moving a loved one into long-term care after a strokeThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. I had always told myself that I would never put my husband, Jorge, in a nursing home, and I kept him at home as long as I possibly could after his stroke. But he never seemed to recover from his disabilities. He couldn't go to the bathroom on his own or feed or dress himself. My bad back made it impossible for me to help him. I was afraid I would end up in a hospital myself with no one to turn to for help with Jorge. I just didn't feel I had a choice. I visit him every afternoon, and we watch our favorite shows. Sophia, age 66 My husband and I thought about putting my mom in a nursing home, but we've decided to keep her here with us for now. We visited several different facilities, but we couldn't find one nearby that we felt comfortable with. If my mom were in a nursing home, I would probably spend so much more time worrying about her that it just wouldn't be worth it. Fortunately, we can afford to hire some part-time help so that we have time for work and other activities. I'm not sure we could keep doing this without that help. Joanne, age 51 My dad had a stroke about a year ago. For most of the time since then, he's been living with my wife and me and our kids. Taking care of him is a lot of work, and we don't have any other family nearby who can help out. And with our jobs and the kids and other responsibilities, we just can't give him the level of attention he needs. I think he'll get better care in a nursing home than we can give him here. Bob, age 49 As long as Howell doesn't develop any complications or have another stroke, I plan to keep him at home with me. He's doing fairly well, and our kids live nearby and help out a lot. Every Saturday, one of them comes and gives me an entire day off to myself. But some days it's really hard, and I think to myself, “Will I have the strength to do this in another 5 years?" He's still my husband, though, and I know he would do the same thing for me if the shoe were on the other foot. I just wouldn't feel right letting other people take care of him. Edith, age 65 What matters most to you? Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to choose long-term care Reasons to care for your loved one at home I don't feel that I can care for my loved one's health problems. I feel that I can care for my loved one's health problems. More important Equally important More important I'm worried that I can't give my loved one constant care and supervision. I feel sure that I can give my loved one constant care and supervision. More important Equally important More important I wouldn't feel guilty about having other people care for my loved one. I would feel guilty about other people taking care of my loved one. More important Equally important More important My loved one and my family can afford a care center. My loved one and my family can't afford a care center. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important Where are you leaning now? Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. A care center Home care Leaning toward Undecided Leaning toward What else do you need to make your decision? Check the facts 1.
Do all people who have had a stroke need to move to a care center?
2.
Should you think most about your loved one's needs and not your own when deciding about long-term care?
3.
Can part-time help or respite care help you keep your loved one at home longer?
Decide what's next 1.
Do you understand the options available to you? 2.
Are you clear about which benefits and side effects matter most to you? 3.
Do you have enough support and advice from others to make a choice? Certainty 1.
How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2.
Check what you need to do before you make this decision. 3.
Use the following space to list questions, concerns, and next steps. Your Summary Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision. Your decisionNext steps Which way you're leaning How sure you are Your comments Your knowledge of the factsKey concepts that you understood Key concepts that may need review Getting ready to actPatient choices Credits and ReferencesCredits
References Citations
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Stroke: Should I Move My Loved One Into Long-Term Care?Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
1. Get the factsYour options
Key points to remember
FAQs What happens after a stroke?When brain cells are damaged or die, the body parts controlled by those cells don't work like they did before. The loss of function may be mild or severe. It could be short-term or permanent. How well your loved one recovers depends on how much of the brain is damaged, where the damage is, and how fast the blood supply returns to the damaged cells. Many people who have a stroke recover. But a stroke can cause very serious problems. Of the people who survive a stroke, 15 to 30 out of 100 will have a permanent loss of some function, and 20 out of 100 will need long-term care within 3 months of the stroke.1 Your ability to care for a loved one at home will depend on his or her level of disability, your health, and the amount of support that you have from family members or outside help. After a stroke, your loved one may have trouble with:
It could take a long time for your loved one to regain speech and other skills. And some skills may not come back completely. Many people who have a stroke will have some long-term problems with talking, understanding, and decision-making. They also may have behavior problems that affect their relationships with family and friends. They may need help learning how to act in social situations. Your loved one could have other problems that happen right away or within months to years after a stroke. They include:
People who have had a stroke may act differently than they did before. They may be slow, cautious, and disorganized when they do unfamiliar activities. They may seem anxious. The level of care and help your loved one needs may increase if his or her condition gets worse. Basic activities like eating, dressing, bathing, using the bathroom, and simply moving around may be harder or impossible for the person to do alone. Taking care of your loved one at home may get too hard for you, both physically and emotionally. What kinds of long-term care are available?"Nursing home" is a phrase commonly used to refer to any long-term care center, but there are several kinds of long-term care. Each provides different levels of medical care, personal assistance, and programs and support services. The quality and costs of care and services at long-term care facilities vary widely, and options vary from community to community.
What are the choices for part-time care?Some people find that part-time help allows them to keep their loved one at home for a longer time. Part-time care may take place either at home or in an adult day care. As in long-term care centers, home care can provide whatever help a person needs. For example, a home health aide can help the person bathe and wash clothes and linens. A nurse can give medical care. Adult day care and respite services take care of the person so that the regular caregiver can take a break. This may relieve some of the stress of caregiving. Why might your loved one's doctor recommend long-term care?Your loved one's doctor may suggest long-term care if:
2. Compare your options
Personal storiesAre you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about moving a loved one into long-term care after a strokeThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. "I had always told myself that I would never put my husband, Jorge, in a nursing home, and I kept him at home as long as I possibly could after his stroke. But he never seemed to recover from his disabilities. He couldn't go to the bathroom on his own or feed or dress himself. My bad back made it impossible for me to help him. I was afraid I would end up in a hospital myself with no one to turn to for help with Jorge. I just didn't feel I had a choice. I visit him every afternoon, and we watch our favorite shows." — Sophia, age 66 "My husband and I thought about putting my mom in a nursing home, but we've decided to keep her here with us for now. We visited several different facilities, but we couldn't find one nearby that we felt comfortable with. If my mom were in a nursing home, I would probably spend so much more time worrying about her that it just wouldn't be worth it. Fortunately, we can afford to hire some part-time help so that we have time for work and other activities. I'm not sure we could keep doing this without that help." — Joanne, age 51 "My dad had a stroke about a year ago. For most of the time since then, he's been living with my wife and me and our kids. Taking care of him is a lot of work, and we don't have any other family nearby who can help out. And with our jobs and the kids and other responsibilities, we just can't give him the level of attention he needs. I think he'll get better care in a nursing home than we can give him here." — Bob, age 49 "As long as Howell doesn't develop any complications or have another stroke, I plan to keep him at home with me. He's doing fairly well, and our kids live nearby and help out a lot. Every Saturday, one of them comes and gives me an entire day off to myself. But some days it's really hard, and I think to myself, “Will I have the strength to do this in another 5 years?" He's still my husband, though, and I know he would do the same thing for me if the shoe were on the other foot. I just wouldn't feel right letting other people take care of him." — Edith, age 65 3. What matters most to you?Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to choose long-term care Reasons to care for your loved one at home I don't feel that I can care for my loved one's health problems. I feel that I can care for my loved one's health problems. More important Equally important More important I'm worried that I can't give my loved one constant care and supervision. I feel sure that I can give my loved one constant care and supervision. More important Equally important More important I wouldn't feel guilty about having other people care for my loved one. I would feel guilty about other people taking care of my loved one. More important Equally important More important My loved one and my family can afford a care center. My loved one and my family can't afford a care center. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important 4. Where are you leaning now?Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. A care center Home care Leaning toward Undecided Leaning toward 5. What else do you need to make your decision?Check the facts1. Do all people who have had a stroke need to move to a care center?
You're right. Some families are able to provide care at home. But in other cases, long-term care in a center is a better choice. 2. Should you think most about your loved one's needs and not your own when deciding about long-term care?
That's right. Your loved one's needs are important. But your own health is just as important. 3. Can part-time help or respite care help you keep your loved one at home longer?
That's right. Part-time help may help you keep your loved one at home longer. You may use respite care or part-time care at home or in an adult day care. Decide what's next1. Do you understand the options available to you? 2. Are you clear about which benefits and side effects matter most to you? 3. Do you have enough support and advice from others to make a choice? Certainty1. How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2. Check what you need to do before you make this decision.
3. Use the following space to list questions, concerns, and next steps. Credits
Note: The "printer friendly" document will not contain all the information available in the online document some Information (e.g. cross-references to other topics, definitions or medical illustrations) is only available in the online version. Last Revised: June 28, 2011 Author: Healthwise Staff Medical Review: E. Gregory Thompson, MD - Internal Medicine & Richard D. Zorowitz, MD - Physical Medicine and Rehabilitation eMedicineHealth Medical Reference from Healthwise
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions. To learn more visit Healthwise.org © 1995-2012 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. |
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