Endometriosis: Should I Have a Hysterectomy and Oophorectomy
What is a Decision Point?
Endometriosis: Should I Have a Hysterectomy and Oophorectomy?You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Endometriosis: Should I Have a Hysterectomy and Oophorectomy? Get the facts Your options
This decision aid is for women who have tried hormone therapy and have had laparoscopic surgery to remove tissue but still have severe symptoms. Other women decide to use hormone therapy before having surgery. Key points to remember
FAQs What is endometriosis?The endometrium is the tissue that lines the uterus. During each menstrual cycle, a new lining grows, getting ready for a possible pregnancy. If you don't become pregnant during that cycle, the lining sheds. This is your menstrual period. Endometriosis (say "en-doh-mee-tree-OH-sus") is the growth of this tissue outside of the uterus, usually on the ovaries or the fallopian tubes. It also may grow on the outside surface of the uterus, the bowels, or other organs in the belly. These growths are called "implants." They grow, bleed, and break down with each menstrual cycle, just like the lining of the uterus does. This can cause pain and can make it hard to get pregnant. In some cases, scar tissue forms around implants. This also can cause pain and trouble getting pregnant. The female hormone estrogen makes the implants grow. Because the ovaries make most of your body's estrogen, taking out the ovaries can relieve your symptoms. How will endometriosis affect you?While some women never have symptoms, others have severe pain that can make it hard to enjoy daily activities. In some cases, the problem can affect how well your bowels, bladder, or other organs work. Pain from implants may be mild for a few days before your menstrual period. It may get better during your period. But if an implant grows in a sensitive area such as the rectum, it can cause constant pain or pain during sex, exercise, or bowel movements. Symptoms often get better during pregnancy and usually go away after menopause. How well does surgery help symptoms?This surgery works very well to relieve pain from endometriosis. But pain does return for up to 15 out of 100 women who have surgery.1 This means that in 85 out of 100 women who have surgery, the pain doesn't come back. Taking out the uterus and ovaries is usually the last choice in treatment. This is because:
You can take low-dose estrogen after surgery to protect your bones and prevent symptoms of menopause. But this increases the chance that implants could come back.2 What are the risks of surgery?This surgery has different types of risks. Risks from having surgery Most women don't have problems from surgery. But problems can include:
Risks from not having ovaries Without estrogen, you can have severe symptoms of menopause, such as hot flashes, vaginal dryness, moodiness, and depression. Your bones also begin to thin. This increases your risk of osteoporosis in later life. Taking estrogen can prevent these problems. If you don't want to take estrogen, you can take another type of medicine to make your bones stronger. Risks from taking estrogen Estrogen replacement therapy increases your risks of some health problems. Some of them include:
Why might your doctor recommend surgery?Your doctor might suggest surgery if:
Compare your options Compare
Have surgery to remove
your uterus and ovaries Have surgery to remove
your uterus and ovaries
Don't have this surgery
Don't have this surgery
Personal stories Are you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about surgical treatment of endometriosisThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. I have had pain before and during my period for years. I tried nonprescription and prescription medicines to control the pain. Nothing was working. Because my pain was so bad, my doctor suggested that I consider a hysterectomy. I didn't like the thought of surgery but had to do something about the pain. Since I'd already had two children, I had the surgery. It has been 6 months now, and I am glad I had the surgery. Barbara, age 35 Endometriosis made me miserable for a week to 10 days every month. Since my husband and I have three children and did not want any more, I decided it was time to take action to get rid of the pain. I decided that ablation made the most sense, because I wanted to keep my uterus and ovaries. My doctor talked with me about the discomfort and risks of having the wall of the uterus treated with a laser. Frankly, it didn't take more than a week to recover, since the incisions were so small. But you know, after a year or so, the pain started coming back. I'm going to have to rethink my options now. Even though my sister has had long-lasting relief from ablation, it's not for me. Lucia, age 42 My periods were really painful about 5 years ago. I went to my doctor, and he asked a lot of questions about my periods and did an exam and some tests. When all the tests came back normal, he said endometriosis might be the cause of my pain. He suggested a hysterectomy but did say that endometriosis can grow back in other places. I still wanted to have a child, so I said no hysterectomy. Fortunately, I did get pregnant, and ever since having my baby my periods have been so much better! Connie, age 35 My doctor told me endometriosis might be causing my painful periods. I'd never even heard of it before. She told me all about endometriosis and the treatments I could try. She suggested I try taking birth control pills and using ibuprofen before and during my period. It took a couple of months of using this system, but now I hardly have any pain. I am glad I didn't have surgery. Harriet, age 39 What matters most to you? Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to have surgery to remove my uterus and ovaries Reasons not to have the surgery I tried hormones and had laparoscopic surgery, and my symptoms are still bad. Medicine is controlling my symptoms. More important Equally important More important My quality of life is suffering because of my symptoms. My symptoms aren't hurting my quality of life. More important Equally important More important I'm willing to accept the risks and side effects of surgery. I'm not willing to accept the risks and side effects of surgery. More important Equally important More important I don't plan to get pregnant. I want to be able to get pregnant. More important Equally important More important I'm not close to menopause, so I don't want to wait for the symptoms to go away. I'm close to menopause, so I prefer to wait for the symptoms to go away. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important Where are you leaning now? Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. Having the surgery NOT having the surgery Leaning toward Undecided Leaning toward What else do you need to make your decision? Check the facts 1.
I'm close to menopause, so I could take medicine and wait for my symptoms to go away rather than have surgery.
2.
If I have my ovaries and uterus taken out, endometriosis will never give me pain again.
3.
I can take estrogen after surgery to make my bones stronger and to keep from having hot flashes and other menopause symptoms.
Decide what's next 1.
Do you understand the options available to you? 2.
Are you clear about which benefits and side effects matter most to you? 3.
Do you have enough support and advice from others to make a choice? Certainty 1.
How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2.
Check what you need to do before you make this decision. 3.
Use the following space to list questions, concerns, and next steps. Your Summary Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision. Your decisionNext steps Which way you're leaning How sure you are Your comments Your knowledge of the factsKey concepts that you understood Key concepts that may need review Getting ready to actPatient choices Credits and ReferencesCredits
References Citations
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Endometriosis: Should I Have a Hysterectomy and Oophorectomy?Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
1. Get the factsYour options
This decision aid is for women who have tried hormone therapy and have had laparoscopic surgery to remove tissue but still have severe symptoms. Other women decide to use hormone therapy before having surgery. Key points to remember
FAQs What is endometriosis?The endometrium is the tissue that lines the uterus. During each menstrual cycle, a new lining grows, getting ready for a possible pregnancy. If you don't become pregnant during that cycle, the lining sheds. This is your menstrual period. Endometriosis (say "en-doh-mee-tree-OH-sus") is the growth of this tissue outside of the uterus, usually on the ovaries or the fallopian tubes. It also may grow on the outside surface of the uterus, the bowels, or other organs in the belly. These growths are called "implants." They grow, bleed, and break down with each menstrual cycle, just like the lining of the uterus does. This can cause pain and can make it hard to get pregnant. In some cases, scar tissue forms around implants. This also can cause pain and trouble getting pregnant. The female hormone estrogen makes the implants grow. Because the ovaries make most of your body's estrogen, taking out the ovaries can relieve your symptoms. How will endometriosis affect you?While some women never have symptoms, others have severe pain that can make it hard to enjoy daily activities. In some cases, the problem can affect how well your bowels, bladder, or other organs work. Pain from implants may be mild for a few days before your menstrual period. It may get better during your period. But if an implant grows in a sensitive area such as the rectum, it can cause constant pain or pain during sex, exercise, or bowel movements. Symptoms often get better during pregnancy and usually go away after menopause. How well does surgery help symptoms?This surgery works very well to relieve pain from endometriosis. But pain does return for up to 15 out of 100 women who have surgery.1 This means that in 85 out of 100 women who have surgery, the pain doesn't come back. Taking out the uterus and ovaries is usually the last choice in treatment. This is because:
You can take low-dose estrogen after surgery to protect your bones and prevent symptoms of menopause. But this increases the chance that implants could come back.2 What are the risks of surgery?This surgery has different types of risks. Risks from having surgery Most women don't have problems from surgery. But problems can include:
Risks from not having ovaries Without estrogen, you can have severe symptoms of menopause, such as hot flashes, vaginal dryness, moodiness, and depression. Your bones also begin to thin. This increases your risk of osteoporosis in later life. Taking estrogen can prevent these problems. If you don't want to take estrogen, you can take another type of medicine to make your bones stronger. Risks from taking estrogen Estrogen replacement therapy increases your risks of some health problems. Some of them include:
Why might your doctor recommend surgery?Your doctor might suggest surgery if:
2. Compare your options
Personal storiesAre you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about surgical treatment of endometriosisThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. "I have had pain before and during my period for years. I tried nonprescription and prescription medicines to control the pain. Nothing was working. Because my pain was so bad, my doctor suggested that I consider a hysterectomy. I didn't like the thought of surgery but had to do something about the pain. Since I'd already had two children, I had the surgery. It has been 6 months now, and I am glad I had the surgery." — Barbara, age 35 "Endometriosis made me miserable for a week to 10 days every month. Since my husband and I have three children and did not want any more, I decided it was time to take action to get rid of the pain. I decided that ablation made the most sense, because I wanted to keep my uterus and ovaries. My doctor talked with me about the discomfort and risks of having the wall of the uterus treated with a laser. Frankly, it didn't take more than a week to recover, since the incisions were so small. But you know, after a year or so, the pain started coming back. I'm going to have to rethink my options now. Even though my sister has had long-lasting relief from ablation, it's not for me." — Lucia, age 42 "My periods were really painful about 5 years ago. I went to my doctor, and he asked a lot of questions about my periods and did an exam and some tests. When all the tests came back normal, he said endometriosis might be the cause of my pain. He suggested a hysterectomy but did say that endometriosis can grow back in other places. I still wanted to have a child, so I said no hysterectomy. Fortunately, I did get pregnant, and ever since having my baby my periods have been so much better!" — Connie, age 35 "My doctor told me endometriosis might be causing my painful periods. I'd never even heard of it before. She told me all about endometriosis and the treatments I could try. She suggested I try taking birth control pills and using ibuprofen before and during my period. It took a couple of months of using this system, but now I hardly have any pain. I am glad I didn't have surgery." — Harriet, age 39 3. What matters most to you?Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to have surgery to remove my uterus and ovaries Reasons not to have the surgery I tried hormones and had laparoscopic surgery, and my symptoms are still bad. Medicine is controlling my symptoms. More important Equally important More important My quality of life is suffering because of my symptoms. My symptoms aren't hurting my quality of life. More important Equally important More important I'm willing to accept the risks and side effects of surgery. I'm not willing to accept the risks and side effects of surgery. More important Equally important More important I don't plan to get pregnant. I want to be able to get pregnant. More important Equally important More important I'm not close to menopause, so I don't want to wait for the symptoms to go away. I'm close to menopause, so I prefer to wait for the symptoms to go away. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important 4. Where are you leaning now?Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. Having the surgery NOT having the surgery Leaning toward Undecided Leaning toward 5. What else do you need to make your decision?Check the facts1. I'm close to menopause, so I could take medicine and wait for my symptoms to go away rather than have surgery.
You're right. When your menstrual periods stop and your estrogen levels drop, endometriosis growth and symptoms will probably also stop. You could take pain medicine and hormones until then. 2. If I have my ovaries and uterus taken out, endometriosis will never give me pain again.
You're right. Taking out the uterus and ovaries usually relieves pain. But not for everyone. Pain returns in up to 15% of women who have this surgery. 3. I can take estrogen after surgery to make my bones stronger and to keep from having hot flashes and other menopause symptoms.
That's right. You can choose to take estrogen therapy. It will protect your bones and prevent menopause symptoms. But talk to your doctor to make sure it's right for you. Decide what's next1. Do you understand the options available to you? 2. Are you clear about which benefits and side effects matter most to you? 3. Do you have enough support and advice from others to make a choice? Certainty1. How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2. Check what you need to do before you make this decision.
3. Use the following space to list questions, concerns, and next steps. Credits
References Citations
Note: The "printer friendly" document will not contain all the information available in the online document some Information (e.g. cross-references to other topics, definitions or medical illustrations) is only available in the online version. Last Revised: July 7, 2011 Author: Healthwise Staff Medical Review: Adam Husney, MD - Family Medicine & Kirtly Jones, MD - Obstetrics and Gynecology eMedicineHealth Medical Reference from Healthwise
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions. To learn more visit Healthwise.org © 1995-2012 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. |
Women's Health
Find out what women really need.
From WebMD
Featured Centers
Health Solutions From Our Sponsors
Featured Topics
Medical Dictionary
Pill Identifier on RxList
- quick, easy,
pill identification
Find a Local Pharmacy
- including 24 hour, pharmacies


