Alzheimer's Disease: Should I Take Medicines
What is a Decision Point?
Alzheimer's Disease: Should I Take Medicines?You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Alzheimer's Disease: Should I Take Medicines? Get the facts Your options
Key points to remember
FAQs What is Alzheimer's disease?Alzheimer's disease damages the brain. It causes a steady loss of memory and affects how well you can speak, think, and do your daily activities. Alzheimer's disease always gets worse over time, but how quickly this happens varies. Some people lose their ability to do daily activities early on. Others may do fairly well until much later in the disease. As the disease gets worse, you may:
What medicines are used to treat Alzheimer's disease?Medicines can't cure Alzheimer's disease. But they can slow down the way it affects your brain and make the disease easier to live with.
Other medicines may be used to help with anxiety, agitation, anger, or other symptoms like these. Medicines may not work for everyone. Even if they do work, they may not make a big difference in how you think and remember. Over time, as your disease gets worse, medicines will stop working. The long-term effects of these medicines are not known. What are the side effects of these medicines?Most people are able to take these medicines without problems. Most side effects go away within a few weeks after you start taking the medicines. The most common side effects of cholinesterase inhibitors are:
Other problems are less common. You may feel very tired, have trouble sleeping, or have muscle cramps. Common side effects of memantine are:
It's important to have regular visits with your doctor while you are taking these medicines. As the disease gets worse and symptoms change, your medicines or doses may change too. If you are caring for someone with Alzheimer's disease, watch for problems or side effects from medicines. What can you do to help yourself without taking medicines?If you have been diagnosed with Alzheimer's disease, you may feel angry, frightened, depressed, and worried about the future. Even though the disease gets worse over time, some people are able to keep up their daily activities for many years, even if they do them at a reduced level or in different ways. Try some of these ways to cope, with or without medicines:
Why might your doctor recommend medicines?Your doctor may recommend that you take medicines for Alzheimer's if:
Compare your options Compare
Take medicines for
Alzheimer's disease Take medicines for
Alzheimer's disease
Don't take medicines
Don't take medicines
Personal stories Are you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about taking medicines for Alzheimer's diseaseThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. As long as I'm doing all right, I would like to stay off of medicines. Some days it's really hard, because I get confused and even frightened. But I don't tolerate medicines that upset my stomach very well, and I'd like to stay feeling as well as I can until my disease progresses. My wife knows to put me on medicines if I become violent or if my behaviors become burdensome to her. Jed, age 62 I was just diagnosed as being in the early stages of Alzheimer's disease. I'd like to remain as mentally clear as I possibly can for as long as I can. I'm going to try taking a cholinesterase inhibitor called Aricept, because it may help delay the this condition for a few more months. Even though that's not a long time, every day is precious to me. MaryAnne, age 74 My wife, Sally, left instructions that she would like to be put on medicines if her personality changes and memory loss become a burden for me. Her memory loss and thinking problems have become severe, so her doctor has prescribed a new type of medicine called memantine that might reduce these symptoms. Even though no medicine will prevent the disease from progressing, I want to keep my Sally with me for as long as I can. Joel, age 81 Fred, who is 77, is in the later stages of Alzheimer's disease. He was taking cholinesterase inhibitors and then memantine for several years with good results. But his body is no longer responding to the medicines. He is incontinent, and the medicines give him diarrhea. My sons and I have decided it's time to take Fred off the medicines and let the disease run its course. Harrietta, age 73 What matters most to you? Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to take medicines to treat Alzheimer's disease Reasons not to take medicines I want to keep doing my daily activities as long as I can, even if it means taking medicines. I want to keep doing my daily activities without relying on medicines. More important Equally important More important I think taking medicines will help me stay independent longer. I don't think taking medicines will make a difference in how independent I am. More important Equally important More important The cost of the medicines doesn't bother me. I'm worried about the cost of the medicines. More important Equally important More important I can deal with the side effects of these medicines. I'm worried about the side effects. More important Equally important More important Even though medicines may not work for me, I still want to try them. I don't want to try medicines if they aren't going to work. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important Where are you leaning now? Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. Taking medicines NOT taking medicines Leaning toward Undecided Leaning toward What else do you need to make your decision? Check the facts 1.
Do medicines make a big difference for everyone with Alzheimer's disease who takes them?
2.
Can medicines cure Alzheimer's disease?
3.
Do most people who take medicines have problems with side effects?
Decide what's next 1.
Do you understand the options available to you? 2.
Are you clear about which benefits and side effects matter most to you? 3.
Do you have enough support and advice from others to make a choice? Certainty 1.
How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2.
Check what you need to do before you make this decision. 3.
Use the following space to list questions, concerns, and next steps. Your Summary Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision. Your decisionNext steps Which way you're leaning How sure you are Your comments Your knowledge of the factsKey concepts that you understood Key concepts that may need review Getting ready to actPatient choices CreditsCredits
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them. Alzheimer's Disease: Should I Take Medicines?Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
1. Get the factsYour options
Key points to remember
FAQs What is Alzheimer's disease?Alzheimer's disease damages the brain . It causes a steady loss of memory and affects how well you can speak, think, and do your daily activities. Alzheimer's disease always gets worse over time, but how quickly this happens varies. Some people lose their ability to do daily activities early on. Others may do fairly well until much later in the disease. As the disease gets worse, you may:
What medicines are used to treat Alzheimer's disease?Medicines can't cure Alzheimer's disease. But they can slow down the way it affects your brain and make the disease easier to live with.
Other medicines may be used to help with anxiety, agitation, anger, or other symptoms like these. Medicines may not work for everyone. Even if they do work, they may not make a big difference in how you think and remember. Over time, as your disease gets worse, medicines will stop working. The long-term effects of these medicines are not known. What are the side effects of these medicines?Most people are able to take these medicines without problems. Most side effects go away within a few weeks after you start taking the medicines. The most common side effects of cholinesterase inhibitors are:
Other problems are less common. You may feel very tired, have trouble sleeping, or have muscle cramps. Common side effects of memantine are:
It's important to have regular visits with your doctor while you are taking these medicines. As the disease gets worse and symptoms change, your medicines or doses may change too. If you are caring for someone with Alzheimer's disease, watch for problems or side effects from medicines. What can you do to help yourself without taking medicines?If you have been diagnosed with Alzheimer's disease, you may feel angry, frightened, depressed, and worried about the future. Even though the disease gets worse over time, some people are able to keep up their daily activities for many years, even if they do them at a reduced level or in different ways. Try some of these ways to cope, with or without medicines:
Why might your doctor recommend medicines?Your doctor may recommend that you take medicines for Alzheimer's if:
2. Compare your options
Personal storiesAre you interested in what others decided to do? Many people have faced this decision. These personal stories may help you decide. Personal stories about taking medicines for Alzheimer's diseaseThese stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions. "As long as I'm doing all right, I would like to stay off of medicines. Some days it's really hard, because I get confused and even frightened. But I don't tolerate medicines that upset my stomach very well, and I'd like to stay feeling as well as I can until my disease progresses. My wife knows to put me on medicines if I become violent or if my behaviors become burdensome to her." — Jed, age 62 "I was just diagnosed as being in the early stages of Alzheimer's disease. I'd like to remain as mentally clear as I possibly can for as long as I can. I'm going to try taking a cholinesterase inhibitor called Aricept, because it may help delay the this condition for a few more months. Even though that's not a long time, every day is precious to me." — MaryAnne, age 74 "My wife, Sally, left instructions that she would like to be put on medicines if her personality changes and memory loss become a burden for me. Her memory loss and thinking problems have become severe, so her doctor has prescribed a new type of medicine called memantine that might reduce these symptoms. Even though no medicine will prevent the disease from progressing, I want to keep my Sally with me for as long as I can." — Joel, age 81 "Fred, who is 77, is in the later stages of Alzheimer's disease. He was taking cholinesterase inhibitors and then memantine for several years with good results. But his body is no longer responding to the medicines. He is incontinent, and the medicines give him diarrhea. My sons and I have decided it's time to take Fred off the medicines and let the disease run its course." — Harrietta, age 73 3. What matters most to you?Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. Reasons to take medicines to treat Alzheimer's disease Reasons not to take medicines I want to keep doing my daily activities as long as I can, even if it means taking medicines. I want to keep doing my daily activities without relying on medicines. More important Equally important More important I think taking medicines will help me stay independent longer. I don't think taking medicines will make a difference in how independent I am. More important Equally important More important The cost of the medicines doesn't bother me. I'm worried about the cost of the medicines. More important Equally important More important I can deal with the side effects of these medicines. I'm worried about the side effects. More important Equally important More important Even though medicines may not work for me, I still want to try them. I don't want to try medicines if they aren't going to work. More important Equally important More important My other important reasons: My other important reasons: More important Equally important More important 4. Where are you leaning now?Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. Taking medicines NOT taking medicines Leaning toward Undecided Leaning toward 5. What else do you need to make your decision?Check the facts1. Do medicines make a big difference for everyone with Alzheimer's disease who takes them?
You're right. Medicines may not work for everyone. Even if they do work, they may not make a big difference in how you think and remember. 2. Can medicines cure Alzheimer's disease?
You're right. There is no cure for Alzheimer's disease, but medicines can slow it down for a while and make it easier to live with. They may relieve symptoms such as having trouble thinking and remembering things. 3. Do most people who take medicines have problems with side effects?
You're right. These medicines have side effects, but most people are able to take them without problems. Decide what's next1. Do you understand the options available to you? 2. Are you clear about which benefits and side effects matter most to you? 3. Do you have enough support and advice from others to make a choice? Certainty1. How sure do you feel right now about your decision? Not sure at all Somewhat sure Very sure 2. Check what you need to do before you make this decision.
3. Use the following space to list questions, concerns, and next steps. Credits
Note: The "printer friendly" document will not contain all the information available in the online document some Information (e.g. cross-references to other topics, definitions or medical illustrations) is only available in the online version. Last Revised: November 9, 2010 Author: Healthwise Staff Medical Review: Anne C. Poinier, MD - Internal Medicine & Peter J. Whitehouse, MD - Neurology eMedicineHealth Medical Reference from Healthwise
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions. To learn more visit Healthwise.org © 1995-2012 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. |
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