Cluster Headaches - Patient Experience

The eMedicineHealth doctors ask about Cluster Headache.
Do you have cluster headaches? Please describe your experience?
Share your story with others:
eMedicineHealth appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.

Tell us a bit about your background to make your comments more useful to other eMedicineHealth users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

Enter your comment (required)

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to eMedicineHealth, you grant eMedicineHealth permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. eMedicineHealth will not pay you for your Submission. You represent that you have all rights necessary for eMedicineHealth to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the eMedicineHealth Terms and Conditions and the eMedicineHealth Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

See what others are saying

Published: February 18

Cluster headaches have attacked me for 12 years now. I fight the monster every day. I have an Implant on board; Medtronic’s stimulator battery on my left side just below my belt line. The wire traverses across my back to the center and up to the base of my skull, then to the back and around both sides of my head stopping about the start of my ears. The date of my surgery was 2/14/14, and outpatient at the hospital I was at; that's how good my doctor and staff performed their jobs. The stimulator has helped, however it is not the end all that we all need, I'm still suffering and having to take medication. I don't take any painkillers at all. I do however use DHE-45. My faith, family, and friends have kept me strong. Try ASMR (autonomous sensory meridian response) to relax..

Published: July 07

I began having cluster headaches 6 1/2 years ago. When they started they lasted 6 months, then stopped for 10 months, and then came back for 29 straight months during which time my life was awful. They then stopped for 4 months then came back for 4 months then stopped again. They have recently started back again and I now have no pain medicines of any kind (over the counter only). I don't know how I am going to get through this with no pain medicines! These headaches are so severe, as you well know. Well, there you have it..