Vasculitis - Describe Your Experience

The eMedicineHealth doctors ask about Vasculitis.
Please describe your experience with vasculitis.
Share your story with others:
eMedicineHealth appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.

Tell us a bit about your background to make your comments more useful to other eMedicineHealth users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

Enter your comment (required)

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to eMedicineHealth, you grant eMedicineHealth permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. eMedicineHealth will not pay you for your Submission. You represent that you have all rights necessary for eMedicineHealth to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the eMedicineHealth Terms and Conditions and the eMedicineHealth Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

See what others are saying

Published: November 29

I had vasculitus some years ago. I was in hospital for a long time, during this time I was very ill, the symptoms started where I felt very dizzy and weak. A few days later I got a rash on my legs which was the same as the rash you get with meningitis at first it was just on my legs but soon spread to my whole body ,the pain was terrible . I was covered head to foot in this rash, some of the time I was given morphine for the pain, it was also treated with steroids and antibiotics and lots of other medication. I now have kidney disease which I have been told from the renal clinic is due to me having vasculitus. My heart is also enlarged; my legs are also affected by this. I was having blood tests and scans every 3 month as my kidneys were bleeding all the time. I am now seen yearly at a hospital. It is very frightening having this illness and no one ever found out why I got it..

Published: September 10

I am a 53-year-old female that has been diagnosed with vasculitis (PAN). I was referred to a rheumatologist and am on prednisone and methotrexate, probably for two years. My symptoms were lesions on my legs, Reynaud’s syndrome in my fingers and toes, fevers, muscle and joint pain, and fatigue. My doctor says the longer I am on treatment, the better my chances are for a long-term remission. I spent 10 months with one doctor before I tried an internist, who suggested right away that it might be vasculitis. I am grateful for the quick diagnosis..