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Sickle Cell Disease (cont.)

Other Treatment

Blood transfusions may be used for sickle cell disease. Blood transfusions can reduce the risk of some complications of sickle cell disease and improve symptoms of severe anemia. But there is a downside to this practice: repeat transfusions can cause complications. So doctors weigh benefits and risks before suggesting this procedure.

Bone marrow transplants are still experimental and not commonly used to treat sickle cell disease.

Other Treatment Choices

Blood transfusions (regular or emergency)
Bone marrow transplant

What To Think About

Studies continue to test new therapies to decrease cell sickling and improve blood flow.

Other Places To Get Help

Organizations

American Pain Society
4700 W. Lake Avenue
Glenview, IL 60025
Phone: (847) 375-4715
Fax: 1-866-574-2654 toll-free
Email: info@ampainsoc.org
Web Address: www.ampainsoc.org

The American Pain Society is a group of scientists, clinicians, and others. This group seeks to advance pain-related research, educate people about pain, and change public policy and clinical practice to reduce pain-related suffering.


Centers for Disease Control and Prevention (CDC): National Center on Birth Defects and Developmental Disabilities (NCBDDD)
1600 Clifton Road, MS E-87
Atlanta, GA 30333
Phone: 1-800-CDC-INFO (1-800-232-4636)
TDD: 1-888-232-6348
Email: cdcinfo@cdc.gov
Web Address: www.cdc.gov/ncbddd

NCBDDD aims to find the cause of and prevent birth defects and developmental disabilities. This agency works to help people of all ages with disabilities live to the fullest. The website has information on many topics, including genetics, autism, ADHD, fetal alcohol spectrum disorders, diabetes and pregnancy, blood disorders, and hearing loss.


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: (914) 997-4488
Web Address: www.marchofdimes.com

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: (301) 592-8573
Fax: (240) 629-3246
TDD: (240) 629-3255
Email: nhlbiinfo@nhlbi.nih.gov
Web Address: www.nhlbi.nih.gov

The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:


Sickle Cell Disease Association of America (SCDAA)
231 East Baltimore Street
Suite 800
Baltimore, MD 21202
Phone: 1-800-421-8453
(410) 528-1555
Fax: (410) 528-1495
Email: scdaa@sicklecelldisease.org
Web Address: http://www.sicklecelldisease.org

The Sickle Cell Disease Association of America is a national membership organization that provides education, research updates, and support around sickle cell disease problems. Its Web site has the Sickle Cell Disease Forum for people of all ages to discuss concerns about sickle cell disease.


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