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Sjogren Syndrome


Important
It is possible that the main title of the report Sjogren Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Dacryosialoadenopathia atrophicans
  • Gougerot-Houwer-Sjogren
  • Gougerot-Sjogren
  • Keratoconjunctivitis Sicca
  • Keratoconjunctivitis sicca-xerostomia
  • Secreto-inhibitor-xerodermostenosis
  • Sicca Syndrome

Disorder Subdivisions

  • None

General Discussion

Sjogren syndrome is an autoimmune disorder characterized by degeneration of the mucus-secreting glands, particularly the tear ducts of the eyes (lacrimal) and saliva glands of the mouth. Autoimmune disorders are caused when the body's natural defenses (antibodies, lymphocytes, etc.) against invading organisms suddenly begin to attack healthy tissue. Sjogren syndrome is also associated with inflammatory disorders such as arthritis or lupus.

Resources

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
East Detroit, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Sjogren's Syndrome Foundation, Inc.
6707 Democracy Blvd
Suite 325
Bethesda, MD 20817
Tel: (301)530-4420
Fax: (301)530-4415
Tel: (800)475-6473
Email: tms@sjogrens.org
Internet: http://www.sjogrens.org

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

NIH/National Eye Institute
31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

NIH/National Institute of Dental and Craniofacial Research
Building 31, Room 2C39,
31 Center Drive, MSC 2290
Bethesda, MD 20892
USA
Tel: (301)496-4261
Fax: (301)480-4098
Tel: (866)232-4528
Email: nidcrinfo@mail.nih.gov
Internet: http://www.nidcr.nih.gov/

National Sjogren's Syndrome
Box 147
Svedala, Intl 233 23
Sweden
Tel: 046-25 59 25
Email: harry.paulnitz@telia.com
Internet: http://www.sjogrensyndrom.se

Sjögren's Syndrome Association
3155 Rue Hochelaga, Suite 001
Montreal
Quebec, H1W 1G4
Canada
Tel: 514-934-3666
Fax: 514-934-1241
Tel: 877-934-3666
Email: sjogren.montreal@qc.aira.com
Internet: http://www.sjogrens.ca/

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

International Painful Bladder Foundation
Burgemeester Le Fèvre de Montignylaan 73
Rotterdam, 3055 NA
The Netherlands
Tel: +31-10 4613330
Fax: +31-10 4613330
Email: info@painful-bladder.org
Internet: http://www.painful-bladder.org

CNS Vasculitis Foundation
9930 Morningfield
San Antonio, TX 78250-3743
USA
Tel: (210)523-8234
Email: info@cnsvf.org
Internet: http://www.cnsvf.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary Alberta, T2R 1B7
Canada
Tel: 403-228-7956
Fax: 403-228-7853
Tel: 888-242-9182
Email: lupuslsa@shaw.ca
Internet: http://www.lupus.ab.ca

Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5659
Fax: (773)702-5577
Internet: http://peripheralneuropathycenter.uchicago.edu/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Internet: http://www.sclero.org

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: +31 73-6992965
Fax: +41 22 906 91 40
Email: esid@kenes.com
Internet: http://www.esid.org

AutoImmunity Community
Email: moderator@autoimmunitycommunity.org
Internet: http://www.autoimmunitycommunity.org

Cogan's Contact Network
PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (732)409-1031
Internet: http://www.coganssyndrome.info/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 8/7/2007
Copyright 1992, 1993, 1994, 1997, 1998, 2000, 2002, 2007 National Organization for Rare Disorders, Inc.

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