Viewer Comments: Sjogren Syndrome - Describe Your Experience

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Sjogren Syndrome - Describe Your Experience

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Please describe your experience with sjogren syndrome.

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Comment from: 55-64 Female (Patient)

I can't believe I have it. I'm so fatigued I have trouble concentrating. I get very dizzy. I am so over heated at 70F that the sweat runs from me. I never used to sweat. I have trouble sleeping because I ache all over and because I'm so hot. The bed feels like it is on fire where I have been laying. My jaw hurts on the left side. It is hard to bring my back teeth together. One leg aches continually. I ache from head to toe. My mouth isn't really dry and my eyes aren't dry. It seems my throat is however. I get so desperate for a drink of water sometimes, I'm almost frantic. I get a prickly feeling in my chest and have to guzzle water or some juice. Please tell me if the doctor is on the right track. Published: August 27 ::

I was diagnosed three years ago with Sjogren's syndrome by a rheumatologist. I have never been a person who took medication until now. My doctor put me on Plaquenil to maintain inflammation, Evoxac three times a day for dry mouth, and Restasis eye drops twice a day. The Restasis takes at least 6 weeks until you still start feeling the relief from dry eyes. I also had tear duct plugs put in. I must say, my eyes are no longer red with pain, and my mouth has some relief. For once, I feel like a new person. Published: August 27 ::

Comment from: Janet, 55-64 Female (Patient)

I started taking Restasis in July. But, if I drive more than 3 miles, I have severe eye pain. The pain is only relieved by sleeping. If I do something away from home for a day, it takes 2 days for the redness and pain to go away. I have to sleep 12hours during that time and then have an hour nap. The same thing happens if I have company over and do not sleep. Published: October 06 ::


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