I was diagnosed about 8 years ago. The Evoxac I take is a life saver, it allows me to at least function, but heaven help me if I miss a dose. I also take large doses of iron for the fatigue. Funny how one missed dose and it takes 3 days to catch up on my energy. I just dealt with the symptoms for these years not realizing some of the symptoms I thought were just age(I'm just 54) are actually Sjogrens symptoms. I hate whiners so most of the time I keep things to myself. It's reassuring reading others comments knowing I'm not the only one suffering. My joints in my hands hurt all the time. I spend most of my days on the computer at work so you just endure. My hip joints have really been bad this summer, thought it might be bursitis, but I'm sure it's the Sjogrens. I could be much worse. I am able to get out of bed every morning and thank God for it. I just take one day at a time, and am determined this WILL NOT get the best of me.

I hate it. I was diagnosed over three years ago. I hurt a lot. My knees mostly. My eyes burn most of the time. I choke on food a lot. I take so many meds I feel like a pharmacy. I take shots also. I take B12 which really does help a lot with memory. I take methotrexate shots in the muscle of my legs once a week. I take hydrocordoquine twice a day. I hate multi vitamins. I take pills for my eyes, folic acid, and numerous other meds. I get sick all the time because my immune system cannot fight off anything. I have lots of stomach problems with bowel blockages, acid reflux, and pain. I take lidoderm patches for pain and sometimes I give myself allergy pills to knock myself out for pain. I feel useless and I hate not being able to take care of myself sometimes. I see no end in sight and what I wanted to do and be is a memory. I am 41 years old and ready to throw in the towel.

I was diagnosed three years ago with Sjogren's syndrome by a rheumatologist. I have never been a person who took medication until now. My doctor put me on Plaquenil to maintain inflammation, Evoxac three times a day for dry mouth, and Restasis eye drops twice a day. The Restasis takes at least 6 weeks until you still start feeling the relief from dry eyes. I also had tear duct plugs put in. I must say, my eyes are no longer red with pain, and my mouth has some relief. For once, I feel like a new person.

I can't believe I have it. I'm so fatigued I have trouble concentrating. I get very dizzy. I am so over heated at 70F that the sweat runs from me. I never used to sweat. I have trouble sleeping because I ache all over and because I'm so hot. The bed feels like it is on fire where I have been laying. My jaw hurts on the left side. It is hard to bring my back teeth together. One leg aches continually. I ache from head to toe. My mouth isn't really dry and my eyes aren't dry. It seems my throat is however. I get so desperate for a drink of water sometimes, I'm almost frantic. I get a prickly feeling in my chest and have to guzzle water or some juice. Please tell me if the doctor is on the right track.

I was diagnosed with Fibro in 1998 and Sjogrens in 2003. Previously misdiagnosed with Lupus (SLE) and took numerous meds for it. I found an excellent doc, but there are always unanswered questions or you can't fully comprehend what you're being told about test results. After 8 years of Plaquenil (only took 1 pill, not the 2 recommended) after noticing changes in my vision and was diagnosed with macular problems, was ordered off the Plaquenil and placed on Imuron (Azathioprine - 50 mg). Noticed immediate negative reaction (stiff shoulders, pains in neck, knee pain, just overall felt crappy) in addition to Prednisone (which makes me feel totally disconnect from myself - described as Depersonalization). Dr. told me to have bloodwork once a month and call pharmacy for questions with interactions. Pharmacist said weekly bloodwork required for the first month, then biweekly for months 2-3. Doc didn't concur(too much of a hassle to do it more often). Going to see him again for alternatives imunosuppressives w/o such drastic side-effects, at recommendation of sister who is a nurse. IBS a problem, bloating is so bad I get full from a couple sips of water. You just learn to deal with it - make it to work everyday, a little tired though and always feel that I'm not going to wake up the next morning because the pain and fatigue are constant. Hard to explain to someone how you feel and can be depressing.

I was diagnosed over 15 years ago. I have dry eyes. Drops don't help much anymore. My mouth stays dry and I'm never without water or liquid. My lower back is in constant pain since I fell and have muscle spasms. My neck has degenerative disk and hurts. I have worked all my life and it is so difficult on me to do my job and take care of my family. I am in pain and have difficulty getting up and down steps. My neck and eyes are a major factor in my pain. Sometimes I can't see to read or drive.

I started taking Restasis in July. But, if I drive more than 3 miles, I have severe eye pain. The pain is only relieved by sleeping. If I do something away from home for a day, it takes 2 days for the redness and pain to go away. I have to sleep 12hours during that time and then have an hour nap. The same thing happens if I have company over and do not sleep.