Sjögren's Syndrome (cont.)
Other Places To Get Help
| National Institute of Neurological Disorders and Stroke|
|NIH Neurological Institute|
|P.O. Box 5801|
|Bethesda, MD 20824|
|Phone: ||(301) 496-5751|
|TDD: ||(301) 468-5981|
|Web Address: ||www.ninds.nih.gov|
The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.
|American College of Rheumatology|
|2200 Lake Boulevard NE|
|Atlanta, GA 30319|
|Phone: ||(404) 633-3777|
|Fax: ||(404) 633-1870|
|Web Address: ||www.rheumatology.org|
The American College of Rheumatology (ACR) and the Association of Rheumatology Health Professionals (ARHP, a division of ACR) are professional organizations of rheumatologists and associated health professionals who are dedicated to healing, preventing disability from, and curing the many types of arthritis and related disabling and sometimes fatal disorders of the joints, muscles, and bones. Members of the ACR are physicians; members of the ARHP include research scientists, nurses, physical and occupational therapists, psychologists, and social workers. Both the ACR and the ARHP provide professional education for their members.
The ACR website offers patient information fact sheets about rheumatic diseases, about medicines used to treat rheumatic diseases, and about care professionals.
|National Eye Institute, National Institutes of Health|
|31 Center Drive MSC 2510|
|Bethesda, MD 20892-2510|
|Phone: ||(301) 496-5248|
|Web Address: ||www.nei.nih.gov|
As part of the U.S. National Institutes of Health, the National Eye Institute provides information on eye diseases and vision research. Publications are available to the public at no charge. The Web site includes links to various information resources.
|National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), National Institutes of Health |
|1 AMS Circle|
|Bethesda, MD 20892-3675|
|Phone: ||1-877-22-NIAMS (1-877-226-4267) toll-free|
|Phone: ||(301) 495-4484|
|Fax: ||(301) 718-6366|
|TDD: ||(301) 565-2966|
|Web Address: ||www.niams.nih.gov|
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is a governmental institute that serves the public and health professionals by providing information, locating other information sources, and participating in a national federal database of health information. NIAMS supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases and supports the training of scientists to carry out this research.
The NIAMS website provides health information referrals to the NIAMS Clearinghouse, which has information packages about diseases.
|National Institute of Dental and Craniofacial Research (NIDCR)|
|National Institutes of Health|
|Bethesda, MD 20892-2190|
|Phone: ||1-866-232-4528 toll-free|
|Fax: ||(301) 480-4098|
|Web Address: ||www.nidcr.nih.gov|
The National Institute of Dental and Craniofacial Research (NIDCR) is a governmental agency that provides information about oral, dental, and craniofacial health. By conducting and supporting research, the NIDCR aims to promote health, prevent diseases and conditions, and develop new diagnostics and therapeutics.
|Sjögren's Syndrome Foundation|
|6707 Democracy Boulevard|
|Bethesda, MD 20817|
|Fax: ||(301) 530-4415|
|Web Address: ||www.sjogrens.com |
This nonprofit foundation educates both health professionals and people with Sjögren's syndrome about the disease. It also produces and distributes educational materials, including the Moisture Seekers newsletter, handbooks, videos, and medical articles. A network of chapters, support groups, and contacts organizes meetings, participates in health fairs, increases awareness in their community, and promotes local media campaigns. The foundation sponsors educational programs, symposia, and workshops; provides physician and dentist referrals; and advocates for research and treatment centers.
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