Spina Bifida (cont.)
People with spina bifida should be seen frequently by the appropriate professionals so that they can be checked for progressing deformities, disabilities, or complications that may require intervention. A specialized “clinic” can assemble the needed professionals, so parents are not spending all of their time taking the child for medical attention.
- The effectiveness of their physical therapy, including their braces, orthotics, crutches, and wheelchair, should be checked often and changes made if necessary.
- Development of hydrocephalus or worsening of deformities warrants the attention of the appropriate surgeon.
- Medical complications such as obesity or urinary tract infection require appropriate treatment. The goal is to prevent secondary chronic complications such as heart disease, diabetes, and kidney problems.
- The individual’s educational progress should be checked; learning disorders should be addressed with appropriate training.
- Their emotional and social development also needs to be checked and appropriate treatment or counseling offered if needed.
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