| National Institute of Neurological Disorders and Stroke|
|NIH Neurological Institute|
|P.O. Box 5801|
|Bethesda, MD 20824|
|Phone: ||(301) 496-5751|
|TDD: ||(301) 468-5981|
|Web Address: ||www.ninds.nih.gov|
The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.
|Chicago Center for Jewish Genetic Disorders|
|Ben Gurion Way, 30 South Wells Street|
|Chicago, IL 60606|
|Web Address: ||www.jewishgeneticscenter.org|
This organization provides public and professional education about Jewish genetic disorders. It also promotes screening and prevention programs, information, and referrals.
|Genetics Home Reference, U.S. National Library of Medicine|
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.
|KidsHealth for Parents, Children, and Teens|
|10140 Centurion Parkway North|
|Jacksonville, FL 32256|
|Phone: ||(904) 697-4100|
|Fax: ||(904) 697-4220|
|Web Address: ||www.kidshealth.org|
This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.
|March of Dimes|
|1275 Mamaroneck Avenue|
|White Plains, NY 10605|
|Phone: ||(914) 997-4488|
|Web Address: ||www.marchofdimes.com|
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.
|National Tay-Sachs and Allied Diseases Association, Inc. (NTSAD)|
|2001 Beacon Street|
|Boston, MA 02135|
|Fax: ||(617) 277-0134|
|Web Address: ||www.ntsad.org |
NTSAD is a nonprofit, volunteer health agency devoted to the treatment and prevention of Tay-Sachs and other genetic conditions. Its Web site has information about genetic diseases, carrier testing, genetic counseling, and more. NTSAD has a support group for families and individuals affected by genetic diseases.