Other Places To Get Help
|Centers for Disease Control and Prevention (CDC): Blood Disorders|
|1600 Clifton Road MS E-87|
|Atlanta, GA 30333 |
|Phone: ||1-800-CDC-INFO (1-800-232-4636)|
|Web Address: ||www.cdc.gov/ncbddd/blooddisorders/index.html|
The Centers for Disease Control and Prevention (CDC) helps promote and improve the health of people with certain blood disorders. The CDC promotes research, provides education to patients and health professionals, and promotes prevention programs.
|Cooley's Anemia Foundation|
|330 Seventh Avenue|
|New York, NY 10001|
|Fax: ||(212) 279-5999|
|Web Address: ||www.cooleysanemia.org |
Cooley's Anemia Foundation is a nonprofit organization dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia (thalassemia major). The foundation's mission is to advance the treatment and cure for thalassemia, enhance the quality of life of people who have it, and educate the medical profession, trait carriers, and the public about this fatal blood disease. The foundation encourages donations of blood, since thalassemia patients are the single largest users of blood supplies in the nation, and also sponsors chapters and support groups.
|Iron Disorders Institute|
|P.O. Box 675|
|Taylors, SC 29687|
|Phone: ||1-888-565-IRON (1-888-565-4766)|
|Fax: ||(864) 292-1878|
|Web Address: ||www.irondisorders.org |
The Iron Disorders Institute is a national voluntary health agency that provides information about iron disorders such as hemochromatosis, acquired iron overload, sickle cell anemia, thalassemia, iron deficiency anemia, and anemia of chronic disease. The organization works with a scientific review board as well as various medical professional groups. A free newsletter, idInsight, is available.
|National Heart, Lung, and Blood Institute (NHLBI)|
|P.O. Box 30105|
|Bethesda, MD 20824-0105|
|Phone: ||(301) 592-8573|
|Fax: ||(240) 629-3246|
|TDD: ||(240) 629-3255|
|Web Address: ||www.nhlbi.nih.gov|
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:
- Diseases affecting the heart and circulation, such as heart attacks, high cholesterol, high blood pressure, peripheral artery disease, and heart problems present at birth (congenital heart diseases).
- Diseases that affect the lungs, such as asthma, chronic obstructive pulmonary disease (COPD), emphysema, sleep apnea, and pneumonia.
- Diseases that affect the blood, such as anemia, hemochromatosis, hemophilia, thalassemia, and von Willebrand disease.
|National Human Genome Research Institute, National Institutes of Health (NIH)|
|NIH Building 31, Room 4B09, 31 Center Drive|
|MSC 2152, 9000 Rockville Pike|
|Bethesda, MD 20892-2152 |
|Phone: ||Phone: (301) 402-0911|
|Fax: ||(301) 402-2218|
|Web Address: ||www.genome.gov |
The National Human Genome Research Institute (NHGRI) supports genetic and genomic research, investigation into the ethical, legal, and social implications surrounding genetics research, and educational outreach activities. (Genome refers to a complete gene sequence in a organism.) NHGRI also supports the training of investigators and provides genome information, including fact sheets and school materials, to the public and to health professionals.
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