My TN was caused after removal of a pituitary tumor. I was treated with narcotics and also have atypical face pain and cervical involvement. I was moved to a warmer climate with no stress and it was gone, but now after two surgeries and anesthesia in my mouth and a lot of stress again it has started again. I am on my sixth major cycle and this one is over two weeks looking for some relief and some new doctors in Arizona.

I had trigeminal neuralgia about 10 years ago, which when diagnosed was treated successfully with carbamazepine. After a few years the attacks seemed to have stopped so I was able to discontinue the carbamazepine. Since then I have been on Lyrica for lower spine pain, not related to TN and think that was probably controlling the TN attacks. I have now just had a couple of weeks of TN. I checked with the dentist and he couldn't find any dental causes. I am up in the night writing this as I have just had an attack. I found that a hot pack on that side of my face helped just now, so that's worth a try for anyone else.

I developed a sharp "electric" pain down the right hand side of my nose from the corner of the eye down to the base of my nose! I usually feel it more in cold weather. When I touch it I feel as if I get a painful electric shock! My doctor thought it was sinus trouble and sent me for a scan but the consultant said he "thought" it was neuralgia and didn't offer any treatment!

I found out I had trigeminal neuralgia (TN) about 4 years ago. I had surgery it went away, then returned about three months now. I had surgery the same doctor did it I am still going through pain. My face burns so bad. I went back four times to this doctor and he can't tell me why my face burns so much in the same area where he did the surgery. I don't know what else to do I am hurting so bad and this doctor doesn't believe me that I am hurting after surgery. Not the same pain like before this one burns. I have no pain medication.

I have been told that the use of Botox is very effective in managing the symptoms of TN. I'm currently researching any medical papers on this.

Mine started after a car accident.

I was on flight to Vegas when a sudden tingling pain on top left of my head started going down my face. Next I had a burning pain striking the left side of my nose then striking my eye. I thought I was dying or having an aneursym. It lasted for about three minutes and included severe pain and burning. I have never felt such excruciating, striking burning pain in my life. I was prescribed gabapentin which I had been on already for my back but doctor increased from 300mg to 900mg.

I felt a sensation in my face. Then, I started getting pain in my mouth. I thought it was a toothache. Then thought I had a headache. I wasn't sure what was paining me. I visited the dentist on three occasions. However, nothing was found with the teeth. I decided to visit the doctor as I started to get pain in the ear as well. This is when I was diagnosed with trigeminal neuralgia.

I've had TN since 2004. It came out of the blue. I had brain surgery in 2009 and I was doing well until about six months ago when it started up again. I sit all day waiting for the next zapping pain. I can't ear or wash my face or hair, or brush my teeth. I can't go outside because of the cold air and the wind. It's been very hard to live this way. I just want to live a normal life again.

I had my first TN attack about six months ago. I thought it was something having to do with teeth. I had no symptoms for six months, then I had an attack that lasted for two days. I was diagnosed by my dentist. TN pain is a pain like no other. It's like taking a taser to the face.