Viewer Comments: Trigeminal Neuralgia (Facial Nerve Pain) - Symptoms

Patient Comments & Reviews

The eMedicineHealth doctors ask about Trigeminal Neuralgia (Facial Nerve Pain):

Trigeminal Neuralgia (Facial Nerve Pain) - Symptoms

What were the symptoms of your trigeminal neuralgia (facial nerve pain)?

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Comment from: Andrea, 55-64 Female (Patient) Published: December 13

I began experiencing the pain of TN when I was in my forties. At first I thought it was the result of a bad root canal but my dentist proved to me it wasn't. I went to my GP and he suggested TN and explained the treatments and I decided that the complications were not acceptable. Another doctor suggested it was the result of shingles although I had no visible outbreak. I would explain the symptoms as a half mask of tingling shocks on my face and behind my ear. Occasionally it continues up in my scalp and sometimes hot stabbing pain down my neck. Most of the time it feels like my face is being drawn backwards into a grotesque smile. Cold compresses on my neck and behind my ear occasionally relieve the constant pain. Any injuries on my face or in my mouth like dental work exacerbate the intensity of the pain so I warn the dentist before any dental work. I have also developed tendonitis in my shoulder which is sometimes agony as it joins the pain up to my head. I take Tylenol, drink calming teas and avoid stress. Rest is vitally important to maintaining my ability to tolerate the pain because any medications you take can harm other organs.

Comment from: Donna, 65-74 Female Published: December 13

My pain started 11 years ago. It felt like labor pains-slow starting, rising to a crescendo then slowly fading to dull. Oddly if I rinsed the area with cold water, the pain subsided for a bit.

Comment from: supergos, 45-54 Female (Patient) Published: November 01

I was diagnosed with TN about 4 years ago. I was lucky that my nurse also suffered with this awful condition. My doctor was able to diagnose me during my first visit! I do not share all the symptoms that are listed here. When I have an attack, it feels like I have the worst toothache ever, both top and bottom - only on the left side. My jawbones also hurt like mad both top and bottom.

Comment from: Loo, 7-12 Female (Caregiver) Published: October 26

My daughter who is 10 years old has the symptoms of TN and we are in the diagnosing phase. It is really scary. So far nothing is helping, she just started on Gabapentin, which is making her dizzy and feel off with no relief as yet.

Comment from: Sadie, 45-54 (Patient) Published: September 06

I had neck pain for a while and I thought it was due to sleeping wrong. Then I had suffered headaches from day to day. It was one evening at work I had stabbing pain in the left side, back of my head. I stayed at work thinking it was just another headache. The next morning they come more often and more painful. These sharp shooting pains in my head. I went to doctor and he started me on carbamazepine 100 mg. twice a day. Pain is gone, but I feel like a walking Zombie. I can't go on like this! I go back to doctor in a week, and hopefully he will have more answers for me.

Comment from: AWilliams, 45-54 Female (Patient) Published: August 23

I was first diagnosed with TN in 1999 at the age of 40. Went to various Neurologists in the US and was placed on different drugs for over 6 months. The drugs did not help at all with the pain and they caused major side effects including rashes, sleepiness to the point of not being able to drive or work. I had Gamma Knife Surgery in Atlanta, GA and was pain free for 10 years. The symptoms came back and I had a second Gamma Knife surgery two years ago. Now the pain is slowly coming back. I am now living in Melbourne, Australia and I am scheduled to see a neurosurgeon tomorrow to see what other options are available. The Gamma Knife surgery was wonderful. It was an easy procedure with just slight numbness in the face as its only side effect. I understand that I cannot have a third gamma knife procedure but I would take it if it were available. The last pain-free 12 years have been wonderful and I would urge any sufferer to investigate this procedure. Good luck to all who suffer from this horrible condition.

Comment from: 45-54 Female (Patient) Published: August 11

I had a head injury on the right side of my head in the hairline area over 5 years ago. I've seen a few doctors for the severe pain I get in the injured area on my head. Doctors say I have permanent nerve damage to the trigeminal nerve. The injured area is numb, but gives me such severe shooting pain. The doctors are not agreeing that the same branch area of the nerve is damaged. My symptoms are all on my right side. They start from the injured area with a sharp shooting pain and goes down my right cheek with a tingling, pins and needle sensation that goes down to the corner of my mouth. I have a slipped disk in my neck from the injury also. I am on medicine to try and stop the pain from happening but it isn't always working. I'm still trying new things to help the pain. One option was Botox.

Comment from: 55-64 Female (Patient) Published: July 11

I have experienced trigeminal neuralgia beginning with unexplainable back molar pain, only on the right side of my face for 15 years. It has grown into swelling at the right base of my neck, tender to the touch during an attack and severe strikes of pain, around my eye, my jaw, my temple and a few times, in my right eye. I can feel like I will "pass out" for a moment. My treatment is NOT to use drugs with side effects. Apply cold immediately to your trigeminal neck area. Lie down. Deep breathing seems to increase oxygen intake and help as well.


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The eMedicineHealth doctors ask about Trigeminal Neuralgia (Facial Nerve Pain):

Trigeminal Neuralgia (Facial Nerve Pain) - Treatment

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