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Adhesions

Question:

Please describe your experience with your adhesions after surgery. Submit Your Comment

Comment from: GIT!, 55-64 Female (Caregiver) Published: February 24

In 2016, my brother had emergency gallbladder surgery. Ever since, he wakes every morning with nausea and pain. He has consulted with numerous specialists, gastrointestinal and surgical, to no avail. He has been referred to pain clinics for medicines - no luck. Tried CBD oil, no luck. In his experience, doctors either don't know what to do or won't acknowledge his adhesions. Tried Clear Passage for myofascial massage... costly and once more, it didn't work. Someone has to come up with a solution! He isn't the only one!

Comment from: Jan D, 55-64 Male (Patient) Published: July 08

I had an appendectomy in the 70s when I was 15. Since then I have had chronic constipation. I had a laparoscopy in my mid 20s and was told I had adhesions from my appendectomy, and also 3 years ago when I was 60 when I had a colonoscopy following the routine screening offered to everyone. It was difficult to get the camera through my adhesions and the nurse had to manipulate the camera. The adhesions are like a series of sieves and I have constant problems with constipation which is uncomfortable and painful.

Comment from: Goldie , 65-74 Female (Patient) Published: June 11

My scar tissue from a feeding tube is so painful. It burns. They tell me I have slow food entry into stomach because of adhesions. I keep asking if it’s blocking my food from entering stomach but they tell me it’s impossible. Looks like when it was put in the stomach to feed you, it could have been pressing on a nerve.

Comment from: Peaches, 75 or over Female (Patient) Published: September 11

Emergency appendectomy (1999) caused adhesions. No doctor could help me and the pulling, stabbing pain has been miserable. In 2004 and 2005 I had laparoscopy for adhesions, no relief. In 2015 I traveled across the country for another surgery for the adhesions; no relief. I had massage through Clear Passage, no relief. Now it is 2018 and I am still in extreme pain. I take tramadol daily and use ice packs on abdomen to decrease pain. I now know that surgery is not the answer since the adhesions return.

Comment from: Dennis r, 65-74 Male (Patient) Published: July 03

I had a back surgery. The surgeon cut into my side from the back to about 6 inches from my belly button. The pain has been intense, from 0 to 10 never goes below an 8. Through the years I have been on every known pain killer, the most were two Duragesic patches that’s 200. Now the area seems to be getting hard with adhesions.

Comment from: Gloria , 45-54 Female (Patient) Published: August 12

I had a minor surgery… umbilical cord hernia with mesh in October 18, 2018. Two months after the surgery, l developed left, center and right lower abdominal pains. I have had tests, scans and procedures to ascertain the cause of the pains and abdominal cramps (abdominal scan, H. pylori, occult blood text, endoscopy, colonoscopy, urinalysis, kidney, lipid profile, FBC, typhoid, malaria, stool MCs). I am still having cramps and now breast pain. Wonder if the abdominal cramps on and off could be due to adhesion from the surgery.

Comment from: Holana, 55-64 Male (Caregiver) Published: May 29

I have adhesion issues with my bowels after 6 C-sections. I'm 64 years old now but have issues with incontinence and my bowels.

Comment from: mary, 45-54 Female (Caregiver) Published: December 19

My son is 17 years old. When he was about 5 he was diagnosed of omental cyst. His stomach was very large but no pains or any other serious symptoms except that he was very skinny. He had a laparotomy and we thought that was it. But he started having severe abdominal pains that last for hours and sometimes up to a day. It's been 12 years and he's still having these pains. His doctor said it is due to adhesions from the surgery. He doesn't have fevers or loose stools but he does vomit and empties his stomach. I would like to know what we can do to help him as it breaks my heart to see him in so much pain for all these years.

Comment from: ellen, 65-74 Female (Patient) Published: October 30

Well, I had my gall bladder removed a year and a half ago. An incision was made in the lower sternum area and two smaller incisions were made below and to the right of the sternum incision. There was one more incision made at the navel for the laparoscope. It was a normal recovery and uneventful surgery. I had an abdominal surgery for appendicitis when I was 28. I had a navel laparoscope then, too. My concern is that I have some (not nearly as severe as a gall bladder attack) pain now, generating from the bottom of my ribcage straight down to about 2 inches from the navel in a more or less straight line. All my elimination functions are normal, but I am worried that I may be developing adhesions in the bowel area. My reason for this is my 'bikini' scar. I'm not 28 anymore and my belly area isn't either! The scar has stuck and stayed right where it was and the skin and, well, fat overlap it and it occurs to me that this may be a sign of an adhesion, too. I don't care about the pelvic adhesion (if it is one) because I've had no trouble other than its unsightliness. I am, however, very concerned if I am now developing adhesion(s) from the gall bladder removal that are compromising my bowels or other organs.

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Comment from: srmaryfreddo, 55-64 Female (Patient) Published: June 28

At age 19 I had a bowel resection due to intussusception. I had hysterectomy then umbilical hernia repair 20 years ago. In 2013 I had breast cancer with bilateral mastectomy. Then I had laparoscopic gallbladder/appendix surgery during which my surgeon cleaned out tons of adhesions. About 8 inches of my transverse colon were pinned to my abdominal wall. Two years later I had abdominal surgery to repair a right upper quadrant hernia and my surgeon found numerous dime to quarter sized holes in my abdominal wall. He then proceeded to put in an 8 X 10 piece of mesh. Upon beginning this surgery, he encountered a very large and thick adhesion as well as tons more throughout the abdomen. One year later I had a Nissen fundoplication surgery (hiatal hernia repair and stomach wrap around esophagus to get rid of acid reflux). Once again my surgeon found tons of adhesions. I am now having right upper quadrant pain intermittently. It's a deep throbbing and I'm concerned it may be adhesions wrapping around my transverse colon. I am having some nausea as well as bloating. I will be seeing my surgeon next week.

Comment from: Katy, 55-64 Female (Patient) Published: June 21

I have had many surgeries over the years. If it can be removed or cut off I have probably had it done. One and a half years ago I developed a narrowing of my duodenum. I had laparoscopic surgery to look for a cause. It was determined I had adhesions that were blocking my small intestines. The doctor then removed 18 inches of small intestine and then performed a gastrojejunostomy. I felt so much better for about 8 months, and then while riding horses I strained my right side. I had donated a kidney 25 years ago and the muscle under the old scar had gotten weak and it gave way and now I have a huge bulge below the scar. It is very painful. I have constant diarrhea and have pain and bloating after I eat. I also have developed dumping syndrome which causes my blood sugar to drop very drastically about 30 minutes to an hour after I eat. The abdominal pain I have is continuing to get worse. I was sent to a physical therapist for a few months. He used a new technique to try to break up the adhesions. It did seem to help while I was going to therapy but now I seem to be getting worse. I have seen a surgeon and he says I do not have a hernia on my right side. He also said that he feels I do have an adhesion problem again but he does not want to do surgery again. It is a vicious cycle to get into. I am now suffering everyday with the adhesions and also the right side bulge. I will be having a radio frequency nerve block of the intercostal nerve and also a steroid injection in the same area to try to get a little pain relief. I also have a spinal cord simulator for my stomach and back pain. Without it I can hardly function. I would like to hear if anyone else with a bulge from a kidney surgery has found a doctor who thinks it could be fixed. All I have heard is there is nothing that can be done. I never had pain from my kidney surgery until the bulge occurred. Other surgeries I have had are hysterectomy, laparoscopic Nissen, nephrectomy, gall bladder removal (my gallbladder surgery was converted to an open incision because of hemorrhage), 3 ERCPs (endoscopic retrograde cholangiopancreatography) with sphincterotomy, bilateral mastectomy, hernia surgery, abdominoplasty, reconstruction of breasts, gastrojejunostomy, and parathyroidectomy. Those are the big surgeries. I have had about that many other smaller procedures. I have good reason to have adhesions.

Comment from: HMoe, 45-54 Female (Patient) Published: April 12

I have several 'dirty' wounds that were surgically repaired. One wound, on my right thigh was filthy from dirt and tree debris following a traumatic injury. The second was from a surgical wound infection. I have also had a tummy tuck (long scar) and gall bladder removal. I have dermatitis herpetiformis, psoriasis and celiac disease. The 'clean' surgical wounds healed with minimal scarring and no pain. The dirty wounds healed well externally, but scar tissue is all knotted up beneath the surface. I am currently undergoing physical therapy which is physically and externally destroying those scars. It seems to be working, because for the first time in 18 years, I can sit in a chair for 2 hours and not be in agony. The first treatment was excruciating, but for subsequent treatments I have applied lidocaine (which I had because it didn't numb the pain source) which has numbed my skin as deeply as the therapist can manipulate. I suspect I will need to have this type of treatment periodically for the rest of my life.

Comment from: Sadie, 65-74 Female (Patient) Published: March 08

I had surgery in 2001 to remove a lymphoma and have been in pain whenever I sit down ever since because of adhesions and nerve damage. Medications help a little, I have had various scans and nerve blocks without any effects. All I want now is the name of a surgeon who will go in there and free up whichever adhesions are causing the pain!

Comment from: Ridgely, 75 or over Female (Patient) Published: February 22

I have had 2 surgeries, one to remove a very large fibroid by hysterectomy. Several years later I had removal of a large ovarian cyst through the same incision path. No, I don't know why it wasn't removed in hysterectomy! Now I have almost constant abdominal pain, gas, and constipation except when having diarrhea! Colonoscopies don't show any adhesions but some diverticula. It is getting worse.

Comment from: Frappemom, 55-64 (Patient) Published: August 22

I had gallbladder removed in 1990, it's now 2016. About a week ago I started itching above my surgery site, then I started having small bouts of pain and if I twist a certain way, it is a big twinge of pain! I wonder if this can be because of adhesions. I have no issues with bowels!

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