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Chronic Fatigue Syndrome (CFS, Myalgic Encephalomyelitis)


Please describe your experience with chronic fatigue syndrome. Submit Your Comment

Comment from: Tyne, 19-24 Female (Patient) Published: September 06

I got diagnosed recently with chronic fatigue syndrome. I am 19 years old. I have had this for at least 7 years. You always see the question of ‘how do you live with this? How do you get through the day?’ The answer is, you don’t. You honestly just don’t. I used to not be able to stay awake for 6 straight hours. I lived through this, yes, but I didn’t live. The fact is, it never goes away. You can make yourself feel better with a mix of uppers (medication) and careful monitoring of every activity you do ever.

Comment from: GG, 55-64 Female (Patient) Published: June 02

I was diagnosed with chronic fatigue syndrome over 10 years ago, I believe it is due to stress. This is something I carry with me 24/7, I don't like it, but I can live with it. I am mainly concerned about the future, I will be 60 this year and I really don't have the money or family to depend on if I get to the point where I can't take care of myself anymore. I have heard you can get on disability for it, but I really don't see that happening. My thought process is getting worse and no one seems to really get that this is something I have little to no control over. 'You have to get up and move', I do get up and move and it makes me worse, not better. I eat lots of spinach throughout the week, take supplements and vitamins. I tried a fatigue clinic for several months that made up a special medication they gave me, but I saw not even a glimmer of hope. I hope something will come in view that will help me, and all the others who share this pain as well. I have a lot of stress in my life, pretty much all day long. At work and at home, the only time I have peace and joy is driving to and from work. If it must be, it must be, I just wish I had someone I could talk to who would listen and try to understand, and someone who would care. I have to go.

Comment from: WVH, 55-64 Female (Patient) Published: July 22

I have something and if I was a doctor I would name it chronic fatigue syndrome. I know I have a thyroid problem and anemia. I am healthy otherwise, no diabetes or extreme blood pressure. First time I am really sick in my life. When I get up in the morning I am so tired, my face is swollen, my body aches all over and I need to hurry and eat to gain some energy. If I try to exercise I get so weak I have to go back to bed and rest. I just currently started large doses of Geritol, some iodine, D3, coconut oil, B12, selenium, and some maca. I stopped eating chicken because of the lectin. I go for a 20 minute walk with my dog. I am starting to feel better in a week.

Comment from: Tim Oesch, 0-2 Male (Caregiver) Published: December 31

I have been feeling well now for years, and I encourage anyone with chronic fatigue syndrome and/or myalgic encephalomyelitis to try a very inexpensive and safe treatment that you can get without seeing a doctor and without having a prescription. Try sodium thiosulfate pentahydrate.

Comment from: Kamz, 35-44 Female (Patient) Published: November 11

I have been diagnosed with CFS for about seven years. It bothered me in the beginning, but over time I was able to adapt and tolerate most issues. That was until recently this past year I have had to stop working due to fatigue, headaches and just overall feeling badly. I look as if nothing is wrong and most people don't take my condition serious because they have no knowledge of it so to them they assume I am lazy and antisocial. I would give anything to 'feel' normal to have the old me back and enjoy life.

Comment from: Jade Keeley, 13-18 Female (Patient) Published: July 12

Hi there, I have been experiencing symptoms including, no energy, fatigue, weak/tired aching in my legs, and sometimes headaches. This has been going on for a couple of years and causes me a lot of days off school. It started after I was diagnosed with celiac disease four years ago (I was 10 then). I am also vegetarian.


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