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Acute and Chronic Pancreatitis

Question:

Please describe your experience with pancreatitis. Submit Your Comment

Comment from: ChrisZona, 55-64 Male (Patient) Published: June 09

I have had chronic pancreatitis since 1998 (hypertriglyceridemia). In 1999, my pancreas hemorrhaged and I ended up on a ventilator for 14 days. Only thing that helped me was injectable Demerol. Now, it is no longer available. Quality of life very low. I have a DNR (do-not-resuscitate).

Comment from: Coakley, 25-34 Male (Patient) Published: June 09

I have pancreatitis. I had acute pancreatitis in 2014/2015 and I spent 12 days in the hospital with IVs, no food or liquids. Then I had to be on a strict diet, blended food, low-fat, no fried food or greasy food at all. It's 2020 now. I've had several attacks through the years but recently have had my second bad attack. I've lost over 30 lb. I do not drink alcohol at all. Hope there is a cure soon. Good luck to you all.

Comment from: Angie, 55-64 Female (Patient) Published: June 09

I’ve had my pain for 5 days now and not sure if I should go to the hospital. I did the first time I had pancreatitis 3 years back, waiting time was 9 hours, and I left, I couldn’t sit there. I was so uncomfortable, so I saw my doctor the next day and bloodwork showed it was my pancreas. I’ve done research and know that I should fast, and I ate little in the past 2 days but still in pain.

Comment from: ryan, 35-44 Male (Patient) Published: June 02

At 16 my panic disorder began. The doctor gave me antidepressant instead of a benzodiazepine, and drinking was the only relief. By 21 I was drinking a handle of bourbon plus beer daily. I had pancreatitis, spent 3 weeks in ICU on IV fluids, narcotic medicine shots in my buttock, and ice chips and lemon swaps for dry mouth. I couldn't move or speak due to the pain. I lost 23 lb. and had last rights read to me. Today at 40 I still have to eat a low fat bland diet, and have blood work done regularly.

Comment from: Trevor, 45-54 Male (Patient) Published: May 14

Living with pancreatitis, aside from everything, my concern is such rapid weight loss; 25 kg in twelve months. Wonder if anyone else has this issue, it terrifies me. I know pain will soon arrive so don't eat that much. Wondering if this is normal for this journey.

Comment from: Sanah h, 35-44 Female (Caregiver) Published: June 19

My husband has pancreatitis. He is in pain. I felt his stomach I could feel a few blown up lumps, I don’t know what it can be.

Comment from: Susea, 35-44 Female (Patient) Published: June 11

I wonder how long it takes for body to start returning to normal after starting Creon for pancreatitis. My stools have firmed up and I feel I’m absorbing nutrients now, but wondering when I will see or be able to build muscle again.

Comment from: Gwen, 55-64 Female (Patient) Published: April 09

I had a 13 mm cyst on my pancreas removed. I have been feeling pretty good except I've gained weight in my lower belly; not sure if the cyst is coming back or if it's an age thing! I'm 59, female, and 4' 9”. I was 99 earlier on. Now I'm up to 120 lb. I have no pancreatitis symptoms or pain other than bloating. I had surgery in January.

Comment from: Jango, 45-54 Male (Patient) Published: April 02

I was diagnosed with chronic pancreatitis 6 months ago but have only ever had 2 attacks after I had stopped drinking (200 UK units a day) a year ago. The pain was in my upper abdomen and didn't radiate to the back. I don't have gallstones, I maintain a healthy weight and my blood tests return normal after testing, yet I'm assured I still have chronic pancreatitis.

Comment from: Cataco, 55-64 Male (Caregiver) Published: March 12

My husband ended up in the hospital with severe pancreatitis at the age of 22. He was not a heavy drinker, just the usual young person beer drinker. It turned out he had stones that were destroying his pancreas. They ended up removing over half of his pancreas along with his spleen. A couple years later he ended up with diabetes. He has been insulin dependent now for 30 years. I am wondering if there are any new surgeries that could help him make enough insulin again.

Comment from: Mimi, 65-74 Female (Patient) Published: February 21

I don’t drink on a regular basis, I may have a cocktail every 3 to 4 months. Recently I had an acute attack of pancreatitis and went to the emergency room. I was put on IV fluids and antibiotics, but I’m not sure what could’ve caused it. The pain lasted for two days before I even went to the hospital because I wasn’t sure exactly what it was. I was put on an antibiotic and told to have a liquid diet for at least three days.

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Comment from: Cindy, 65-74 Female (Caregiver) Published: February 18

I can’t understand why when she has a severely bad liver, doctors can’t remove my mother’s gallbladder. Now her pancreases is inflamed and she has 2 hernias along with this pancreatitis she has and no doctors want to operate. They said 80 percent she won’t make it but she is suffering in pain every night at home.

Comment from: StormyLori61, 55-64 Female (Patient) Published: February 18

I have been dealing with chronic pancreatitis for the past 10 plus years. It is the most horrific debilitating disease I have had to deal with and I am a 2 times cancer survivor. My pancreatitis I'm told is genetic. My common pancreatic duct and bile duct are damaged and I continue to make pancreatic stones leaving me hospitalized 1 or 2 times a year. Now I'm on a 21 hour slow drip feeding tube and losing all hope. There are no support groups in my area.

Comment from: jayanders3, 25-34 Female (Patient) Published: February 10

I was diagnosed with chronic pancreatitis (Idiopathic). I went to so many gastrointestinal (GI) doctors over the years and no one could find a reason why I was in so much pain. It took an advanced GI doctor who worked in a cancer center to do an EUS (endoscopic ultrasound) to finally diagnose me with it. I go to the emergency room when I feel the pain and I’m turned away. The test they run shows nothing that indicates chronic pancreatitis. I was prescribed Lyrica and it doesn’t help.

Comment from: Andy, 55-64 Female (Patient) Published: January 30

I had acute pancreatitis at the age of 16 - at this age I did not drink alcohol. I was never advised not to drink but over the years (I am now 59) I have learnt I cannot drink a lot of alcohol especially shots, as they make me extremely ill. Wonder how I will know if I have caused further damage over the years with minimum recreation drinking.

Comment from: JC, 45-54 Male (Patient) Published: January 16

My pancreatitis derived from celiac disease. If not properly diagnosed, wheat and other problem foods seem to play a role in this condition. I believe my liver and thyroid issues also stemmed from these food issues. I was kicked out of 3 hospitals as they accused me of alcoholism. Haven’t touched alcohol in over 30 years. So this will be a factor in the medical system. Low residue diet has saved my life every time I’ve had pancreas issues. Also, EnteraGam helped.

Comment from: Helen, 55-64 Female (Caregiver) Published: January 16

I don’t drink alcohol. I don’t use drugs. The only pill I take is for GERD. I have a bad case of pancreatitis. I can’t eat anything without it going right through me. Doctor gave me a trial drug that did not work. I am not dehydrated. I drink only water. Because of GERD I cannot eat raw fruit and raw vegetables. I don’t like meat. The only things I am eating to prevent watery stools are rice and bread for months… I am worried what will happen to me.

Comment from: Mayank C, 19-24 Male (Patient) Published: January 08

Very sad experience. I have developed pancreatitis, fluid in left paracolic gutter interconnected with the lesser sac and I've been inserted with a Thal drain/pig tail for its extraction. But after 1.5 months it's still there and coming out, and it all happened because of gallbladder stones that I got to know with the pancreatitis.

Comment from: Don, 65-74 Male (Patient) Published: December 31

I have had chronic pancreatitis for many years. First I had it in 2007, and I have suffered with it for 12 years. It started after a car wreck, when a teenager ran a red light, and my car hit his car. Of course the seatbelt saved me, but the seatbelt damaged my pancreas.

Comment from: Diana, 55-64 Female (Patient) Published: December 11

I had spinal surgery and ever since then I have been in nothing but pain due to extensive nerve damage. I started having a pain in my back under my lower left rib. At times it is excruciating. No pain in my abdominal area. I had a blood test done which showed my alkaline phosphatase level was (790.5, R 74.8) which was very elevated. It was due to my pancreas. I think my pancreatitis is due to the pain pills after my spinal surgery. I am not a drinker!

Comment from: Roxy, 45-54 Female (Patient) Published: November 26

I live with pancreatitis. I don’t have gallstones and drink very little. I spent 3 weeks in hospital. I am constantly in discomfort. I also have a hiatal hernia. Fed up.

QUESTION

Pancreatitis is inflammation of an organ in the abdomen called the pancreas. See Answer
Comment from: Jen, 55-64 Female (Patient) Published: November 21

I had surgery on my pancreas and they had to remove 40 percent of my pancreas. Now the doctor says my pancreas is not healthy and I have pancreatitis. I wonder how long a person has to live; I had a Whipple procedure done and it has really changed me, I had cancer.

Comment from: Terra, 25-34 Female (Patient) Published: November 18

I recently spent 3 days in the hospital with acute pancreatitis. They did an ultrasound, which showed a spot in my pancreas, so they then did an MRCP and didn’t see any stones or blockages. I don’t drink and I don’t smoke. My gallbladder was removed 9 years ago. They sent me home after a few days and scheduled an EGD and the EGD came back clean. I am taking enzyme medication and sticking to a low fat diet, but I still have some slight pain and no answers. I am in my early 30s, and I work out.

Comment from: Jessica, 35-44 Female (Patient) Published: October 30

I had gall bladder surgery 5 years ago. But now I feel all symptoms of pancreatitis, but no pain. Mild pain, very fast heartbeats, and breathlessness… After 3 days I am back to feeling normal; after abstaining from heavy meals. Intermittently I feel breathless with rapid heartbeat, but when I go to the doctor my blood pressure gives a normal rating! Otherwise I don't feel anything. No pain, sometimes mild pain in the abdomen but not unbearable… no vomiting, no nausea, no fever; nothing! I don’t know what this is.

Comment from: dragnwish, 55-64 Female (Patient) Published: October 24

I've been dealing with stomach issues for most of my life. I had my gallbladder removed in 1984. I was never told what I should eat or stay away from anything, I was 23 years old then. Now for the past 1 1/2 years I've had 3 endoscopies, I had food blocked in my bile duct that had been building there for who knows how long, but this girl was sick, very sick from pancreatitis. I had them removed and still wasn't doing well. I lost over 50 lb. and was sent to see one of the best specialists in the United States.

Comment from: Txtamtam, 45-54 Female (Patient) Published: October 15

Listen guys, do not take this diagnosis lightly. I was in the hospital from September 27th to 29th, 2019, and this time (finally, a different hospital) I was diagnosed with pancreatitis. But now it is suspected I have an ampullary lesion. Stools are becoming pale and I have constant pain in my upper abdomen through to the back. This is not a good sign. Wishes to all.

Comment from: Denise, 55-64 Female (Patient) Published: October 14

Pancreatitis is the worst pain you will ever experience. Unless you have the right kind of medicine, and mind. You will have nausea, vomiting, diarrhea, cold chills, fevers, shakes, no appetite, but you know you can't get dehydrated. So you try to drink water. Don't wait till the last minute like I did. Go at the 1st sign. The doctors can get ahead of it. Not behind it. It is the worst, stop eating, drink fluids and get to a hospital.

Comment from: Tammy J, 55-64 Female (Patient) Published: October 01

I have chronic pancreatitis. I live in Pennsylvania so it's nearly impossible to get pain medicines. I have been hospitalized often. Creon is taken daily. I have 2 stents that remedied blocked ducts. Pain is debilitating. I am very depressed. Of late, I am just filling with gas and abdomen is distended. Afraid.

Comment from: Trip, 35-44 Male (Patient) Published: September 26

The pain under my lower ribs became too intense to bear. I was constipated, so tried an enema that didn’t work. I had my wife drive me to the emergency room and every bump felt like a punch in the stomach. I passed out at some point. I had x-rays, CAT scans, and MRI, I think. They think a gallstone blocked the pancreas and started this pancreatitis attack. My primary care physician thinks it was the chips I was hogging out on the past month (they were high in maltodextrin). Either way I’m out now. No drugs and I don’t drink. All I do now is sleep.

Comment from: Suzie, 25-34 (Caregiver) Published: September 10

My granddaughter is in hospital with her 2nd attack of pancreatitis, with very severe pain (1st time was alcohol cause). She went in Thursday night, couldn’t eat 3 weeks prior, and pain started Thursday morning. The emergency room sent her home at 3 am back in very severe pain. She is a little better this morning, still has pain, and on a lot of pain killers. Just got information that CAT scan showed 30 percent of pancreas is dead. Now she is running fever, and they will be transferring her to the ICU. The doctors haven’t called yet and I hope she can survive this.

Comment from: Collette, 55-64 Female (Patient) Published: September 10

I have had chronic pancreatitis for 16 years. I have type 2 diabetes and also non-alcoholic fatty liver. The last 3 days I have had severe upper right abdominal pain radiating to back, grey stools, and no food taken. I wonder if I should call the ambulance. Also the doctor gave me tramadol but no relief at all, I am worried.

Comment from: Hwilde40, 45-54 Female (Patient) Published: September 09

I've had pancreatitis I think 8 times now, and every time it's much worse. I'm a 47 year old female with irritable bowel syndrome as well. My doctor, who's the best, says we will get to the bottom of this. I'm afraid to sleep sometimes because I'm afraid I won’t wake up. That's because I take pain medicines for failed laminectomy which is what I think is causing the pancreatitis. So, do I stop the medicines and have a bad quality of life or do I continue and keep getting pancreatitis! Ugh, super frustrated and wondering.

Comment from: Trecoholic, 25-34 Male (Patient) Published: September 04

I am 29 and I started drinking everyday around age 22. I started with a pint of whiskey or vodka plus couple of cans. By 25 to 26, give or take, I had a fifth (whisky or vodka) and a tall can a day. I just got out of the hospital (2 and a half days’ stay) a couple days ago for acute pancreatitis. After reading some others who got it like I did, needless to say, it's no joke, and it would be insane to go back to drinking the way I did. It's a real health scare and truly a rude awakening that I probably needed.

Comment from: chris, 55-64 Male (Patient) Published: August 28

I had my gallbladder taken out in 2014, and 2 years later my pancreas quit making insulin. Then 1 year later I went in 4 times for pancreatitis. Last year they said that I have acute chronic pancreatitis so they did an ERCP and that failed. I take Creon but that doesn't seem to be working very well. I have attacks about once a week but only lasts a few days. The pain I can deal with seeing that I have had 2 back fusions now am having liver issues, yay me!

Comment from: Itsmesweetpea823, 55-64 (Patient) Published: August 27

I had multiple organ failure in January 2019. With no warnings, I just passed out. Turned out I needed a bowel resection; 2 of them. I was never much of a drinker but found out the head of my pancreas was dead and I had several pockets of fluid infections. I now have painful chronic pancreatitis. My diet is trial and error and I need pain medicines to control my pain. I don't know how I'll be able to deal with the pain without them. I was hospitalized 5 months. I got home June 2019. It's been a long haul.

Comment from: Andrew, 45-54 Male (Patient) Published: August 21

I was in the hospital from July 7 to July 24. My body had collapsed and I was up in the hospital. The doctor told me I have pancreatitis and asked me how much I drink. I don’t drink since 2006. So they checked my blood daily, 4 tubes for 21 days. I also had MRI and CT, no stones. I got morphine and antibiotics infusion for 11 days. My pancreas was inflamed. I lost 14 kg, and I started to eat on the 17th day. I had a tube in my nose down to my stomach so my pancreas can heal. Blood tests came back and only vitamin E was high.

Comment from: Rajarshi de, 45-54 Male (Patient) Published: August 21

I had my first acute pancreatitis attack on 26th July, 2019 and was admitted in hospital. After getting released from the hospital now I am under a gastroenterologist. I need to understand what precautions I have to take so that it’s totally cured and I can be back to my normal life.

Comment from: Blondefairy, 25-34 Female (Patient) Published: August 21

I had textbook symptoms of pancreatitis with extreme pain. I was taken to Accident and Emergency via ambulance 3 days after starting with the pain, as I passed out. Blood tests revealed sky high amylase levels and abnormalities consistent with pancreatitis. I was kept in for 4 nights with the cause unknown until my steroid medication that I had been started on, popped up. I am still taking that medication now and still having bouts of what at the moment appears to be acute pancreatitis, however I'm managing at home with analgesia and clear fluid.

Comment from: Esco218, 35-44 Male (Patient) Published: August 21

Ever since having gallbladder removed a few years ago I get severe upper abdominal pain in the same spot where I would feel gallstones, when hungry or eating certain foods, and it usually wakes me from sleep at around 5 am. The pain from pancreatitis feels like spasms, but it is extreme pain almost as if I can't breathe. It lasts anywhere from 1 to 10 minutes at a time. I had ultrasound taken about 2 years ago and nothing showed up. I haven't been seen about it again due to not having insurance.

Comment from: Pancreatitis suffers, 35-44 Male (Patient) Published: August 21

I was just released from the hospital 5 days ago for my first case of severe pancreatitis. As a background, I started drinking heavily in college and never stopped. I’m 35 and went to sleep the other night to wake up in extreme abdominal pain that was so bad it spread to my lower back and up to my chest cavity. It was unbearable, I got to the emergency room, and was admitted for 4 days. Morphine couldn’t even cut half the pain. I’m recovering now, but I can never have alcohol again. Not worth the pain!

Comment from: Mdaisley, 35-44 Female (Patient) Published: August 13

I had my 1st attack of pancreatitis in 2011, 2 days after a breast reduction surgery. I was hospitalized for 2 weeks. My 2nd attacked occurred in November 2018. I was hospitalized for 1 week and had my gallbladder removed. My 3rd and 4th attack happened in August 2019. I don't drink and have never consumed alcohol frequently or in large amounts in the past. I don't smoke and my triglyceride numbers are normal. My CT scans also normal. My IgG4 test came back negative. I was told I am the zebra in the room.

Comment from: Frank, 65-74 Male (Patient) Published: August 07

In 2018 my gallbladder was removed. There was a stone left in the bile duct and after 3 months of constant daily pain and after warning all the doctors that was what I had, I developed a severe pancreatitis that was the most intense pain a person could have. Plus, the stone in bile duct was infected and was 12 hours from being septic. Make your doctor listen to you.

Comment from: Jud, 55-64 Male (Patient) Published: August 06

I have had chronic pancreatitis (CP) pain since I was 11. It wasn’t diagnosed for over 10 years. Doctors then incorrectly insisted I was a drunk and wouldn't listen to a word I said. A few years later my brother and uncle were both diagnosed with CP and finally the doctors listened. I have had constant severe pain now for 20 years. The bigoted ignorance relating to alcohol that surrounds the illness has made the journey twice as difficult. Officially I'm now diagnosed with familial pancreatitis.

Comment from: Jodie, 35-44 Female (Patient) Published: August 02

I was suddenly woken at 2 am by a searing, burning pain on the right side of my abdomen. I then proceeded to be violently sick over and over again and crying with so much pain that my partner took me to hospital a few hours later. I was originally diagnosed with appendicitis and even gowned up ready for theatre when CT scans showed appendix was not inflamed. It was 5 days and several tests and misdiagnoses later that they informed ne I had severe acute pancreatitis.

Comment from: DLM, 19-24 Female (Patient) Published: July 30

I've had pancreatitis twice, the first time it went away in 2 days, and the second time I was in the hospital for days. I have been sober since then, not one drop of alcohol, but every now and then I will get pancreatic pains. Not bad enough to go back the emergency room, but enough to get me worried, wonder if this happens to anyone else.

Comment from: Ekjordan, 45-54 Female (Patient) Published: July 23

I had gallbladder surgery 8 months ago and 4 days later I had excruciating pain. It was discovered my bile duct was cut during surgery. A stent was put in. I had intermittent pain and 7 months later I was diagnosed with chronic pancreatitis and extremely high liver enzyme count. My gastroenterologist put in another stent and said I had a low pain threshold and said he would see me in 4 months. My enzyme count is going higher. I do not and have not abused alcohol or drugs.

Comment from: Lady D, 55-64 Female (Patient) Published: July 18

I have a sore abdomen, and cramping pain after eating or drinking. I also have pain in my hip, thigh, around the knee, feeling of nausea, and constant diarrhea after meals. I don't know what my problem is but had my gallbladder removed 2 years ago. Wonder if this pain could be from pancreatitis.

Comment from: Bev, 55-64 Female (Patient) Published: July 18

I had acute pancreatitis in March of this year. I am not a heavy drinker… except at New Year. I am a female, 62. The pain was bad, really bad. I was rushed to the hospital and given morphine, and kept in for 3 days. My weight fell off. I had flatulence and diarrhea, and couldn't eat the amount of food that I would normally eat. I feel much better now even though I still exhibit most of the after problems all the time. My stomach has a life of its own. I don’t know what I can do or eat to put my weight back on.

Comment from: kmich09, 19-24 Female (Patient) Published: July 12

I was 22 years old with a bile duct stuck closed causing pancreatitis. They inserted a stent to hold it open, but the procedure gave me pancreatitis again! Such a painful experience!

Comment from: emw98, 19-24 Female (Patient) Published: July 05

I had my first little round of pancreatitis last summer (age 19) and it lasted for about 12 days; I was in the hospital for four of them. I don’t drink at all and I am a dancer, so pretty healthy. I ended up getting my gallbladder out even though there were no signs of gallstones. None of the doctors believed I had pancreatitis because of my age and size (I’m only about 105 lb. and 5’ 4). I didn’t throw up except for one time because of overheating. All I had was no appetite and constant diarrhea.

Comment from: Mikeymike, 35-44 Male (Patient) Published: July 02

I haven’t been diagnosed but I’m pretty sure I have pancreatitis. There’s a chance I could be wrong but I know my body. I went to the emergency room now 3 to 4 times (like they don’t want to believe it’s pancreatitis - waiting for the gastroenterologist) trying to get a handle on these sudden pains I’ve been experiencing which are back and upper abdominal pains. My doctor assumed it was muscular and prescribed me steroids which later I googled and found is the worst thing. This has been going on for 2 weeks. Hoping for mild acute!

Comment from: OrganicLifeStyle, 55-64 Female (Patient) Published: June 28

Pain is part of my earliest memories (age 5). I was diagnosed with pancreatitis during surgery in 1985 - distal pancreatectomy, splenectomy, cholecystectomy, and reconstruction of sphincter of Oddi. I wasn't believed for years. Complications since include choledochoduodenostomy, in 2010 a stone obstructed the liver and shredded the duct, ascites, malnutrition, portal vein obstruction and mass of collateral vein growth. I nearly died because I refused to go to the emergency room for 20 plus years due to being treated horribly. I don't drink, smoke or do drugs.

Comment from: Steph, 19-24 Female (Patient) Published: June 21

My pancreatitis started in October of 2018 with me passing gallstones. By the following February I was sitting in the emergency room (ER) waiting room, puking up blood from having vomited consistently all day. I was there for hours, and by the time I had gotten into the ER, and the doctor could see me, his words were, and I quote, 'you have severe acute pancreatitis and it's killing you.' My liver was inflamed, as well as my gallbladder. A gallstone had gotten stuck in the duct that bile comes out of.

Comment from: Jud, 55-64 Male (Patient) Published: June 19

I had undiagnosed chronic abdominal pain from 11 years old. I began getting acute attacks at 18 due to using ordinary levels of alcohol. At 22 my general physician finally sent me for blood test and diagnosed my chronic pancreatitis (CP) correctly. I haven't touched alcohol for 30 years. Not that I was a heavy user when I did drink in my late teens and early 20s. I was subsequently diagnosed with CP at 32. Subsequently, my brother and uncle have been diagnosed with CP. I found out that my late grandfather also suffered with the disease.

Comment from: Jennyole, 45-54 Female (Patient) Published: June 19

I had severe nausea and vomiting from pancreatitis over a three year period. ERCP dye aggravated my pancreas. I was in the hospital for eight days on Dilaudid. I had no appetite or energy for 3 months, with significant weight loss. Finally I had surgery with little to no problems since 2015. I don't eat fatty foods or consume too much alcohol. If something makes me sick, I will never eat it again. Just recently I had the same nausea and vomiting symptoms and went to the emergency room. Pancreatitis is the worst thing I have ever had in my life.

Comment from: Hollow man , 45-54 Male (Patient) Published: June 18

My pancreas was damaged during surgery. I had pancreatitis for about two months post operation. I never drink at all. Several trips back to emergency did not give me much pain relief, until my nurse practitioner finally prescribed morphine. The key to pancreatic pain relief is to not let it get ahead of you, as an attack can go from 0 to 10 in seconds! I eventually had to have a third of my pancreas removed along with my gallbladder, appendix, large intestine, a portion of my small intestine, and ileostomy.

Comment from: Misticious, 45-54 Female (Patient) Published: June 18

My pancreatitis attack was 2 years ago. My stomach felt like it was on fire literally. I couldn't stop the awful pain. Crying did nothing. It lasted for 19 straight hours nonstop. I drove myself to the emergency room. They gave me IV, put me to sleep, and sent me home. I woke next day with excruciating pain like before. I cried for another 17 hours straight. They did the same and sent me home. Random doctor said it was pancreatitis but went away. I am still having weight and food issues.

Comment from: Lisa49 , 19-24 Male (Caregiver) Published: June 18

My son is 22 years old. He started having severe abdominal pain, went to the doctor and found out he had a cyst in his pancreas, so the doctor drained it. He was still in severe abdominal pain so they did a HIDA scan on him. His gallbladder did not even show up so they removed his gallbladder. He is still in severe abdominal pain and the doctors thought he may have a leak so they have put 2 lights down him. He is no better yet now than he was before he had any of this done.

Comment from: Cameron, 55-64 Male (Patient) Published: June 11

I've been in the hospital 4 times for weeks at a time. Pancreatitis is not a disease I would wish on my worst enemy. I just get pushed around by the doctors for 2 years. Some days I'm fine, some days I'm so sick and weak I can’t move. The vomiting is the worst part. I lost 35 pounds and can’t get it back on. This is going to kill me if they don’t fix it and it turns into cancer, that's all.

Comment from: Vanna , 25-34 Female (Patient) Published: June 03

On Saturday I had 2 drinks at a family gathering. The next day my back hurt badly and my stomach started hurting as well in the top center; I had a bad pain. I started belching a lot and just blew it off as bad gas and this went on for days. I started to research my symptoms and gastritis came up, I had all the symptoms. I went to the emergency room and was told I had gastritis and acute pancreatitis. I hope I can heal this.

Comment from: Sargedtim, 55-64 Female (Patient) Published: May 08

I am a 56 year old who is not a drinker, recently diagnosed with chronic pancreatitis. I always have dull left upper quadrant pain. I am currently taking Creon prior to meals. The pain sometimes becomes sharp and radiates to my back after I eat. I usually am without an appetite but eating small meals. Occasionally I get a ravenous appetite, eat a larger meal, then experience nausea vomiting soon after, and the following day with diarrhea. This is a frustrating disease.

Comment from: Patient chibougamau, 25-34 Male (Patient) Published: April 11

I went to the hospital the first time for 2 weeks or more with pancreatitis. Then after that, a week or more each time. I could say this has happened more than ten times, something you do not want to go through, but the main thing is the weight loss and looking like a junkie. It’s just because your body cannot produce fat and other things but eventually if I do not stop drinking I will die. I’ve been in the ICU unit half the time because it has made me diabetic and basically one day I will die from this drinking.

Comment from: Sushil, 25-34 Female (Patient) Published: March 07

I myself had acute pancreatic attack 10 to 15 times, this was due to heavy drinking. Every time when I had an attack it lasted for 3 to 4 days and after 15 to 20 day of the attack I again I started drinking. Due to that every month I had such attacks. My last attack of pancreatitis was on 1/01/2019 and it lasted for 4 days, but now this time I have decided not to drink, so today is 06/03/2019, I haven't had any attack. I feel healthy. My weight too started increasing. I only like to advise not to drink at least for 1 year.

Comment from: Learningtolive11847, 25-34 Male (Patient) Published: October 16

I was a heavy drinker/alcoholic (average 1 liter vodka daily) from age 21 to 29. I got pancreatitis at 29 and took about 1 1/2 months off alcohol before quickly finding my way back to old habits. I drank for another year, mostly for alcohol withdrawal symptoms trying to taper off but never succeeding. I didn’t get pancreatitis again but I did give in and go to the emergency room for benzodiazepine prescription to get off booze indefinitely. Now a year sober, I am terrified to drink again even in moderation.

Comment from: Kam, 65-74 Female (Caregiver) Published: September 12

I had the gallbladder removed 5 or 6 months ago, with gallstones and sludge backed up into the liver, but were all removed. Everything has been fine until recently, when it was found that there was a gallstone stuck in the tube leading to the pancreas, causing severe pancreatitis. The doctor said this particular situation is serious. How can someone have a gallstone in the tube going to the pancreas, blocking everything from going in and out, when the gallbladder was already removed 5 or 6 months ago!

Comment from: SmileyThing, 45-54 Female (Caregiver) Published: August 14

My mother had taken Januvia for her diabetes for a month and a half when she first got this red-dotted rash all over her legs. A couple of days after that, she started having some nausea and a painful stomachache at the middle top of her abdomen. She ended up being admitted to the hospital after suffering for maybe three days. They gave her fentanyl for the pancreatitis. She ended up not eating for about 24 hours before being able to get some sips of water and eating again days after that.

Comment from: taurman, 55-64 Male (Patient) Published: June 28

I had burning, extreme pain and had to call 911 and went to the ICU. Four hours of pain later they told me I had pancreatitis and started me on morphine. It was so swollen, they had to wait 6 days before doing what they told me was a fix, removing my gall bladder. But then when Kaiser went in, they found pancreas was swollen like a burrito around the gall bladder and had formed some adhesion to the liver, which they loosened, aborted the surgery, and told me to wait 4 to 6 weeks for gall bladder surgery. I then spent another week in the hospital and white blood count went high and had to have antibiotics for 3 days. I lost weight, ate low fat 6 weeks and feel good. I'm still awaiting the gall bladder surgery, but after reading these posts, it doesn't seem it is a sure fix for pancreatitis and considering I don't have insurance and Kaiser has rejected me for MFA application (not poor enough for help and not rich enough to afford ACA or HMO). I wonder if I should take my chances on letting my body sort it out.

Comment from: AshMan6987, 25-34 Female (Patient) Published: June 26

In March 2013, I gave birth for the 3rd time. Six weeks later I could not figure out why no matter how I would sit, lie, or stand I was in agonizing pain. It started in the upper middle abdominal area and radiated between there and the upper left side. I was diagnosed with pancreatitis and told my gallbladder needed to be removed but they could not do anything until the pancreatitis subsided. I had to wait a week before they could do surgery. Meanwhile, I had an infant that was strictly breastfed so while I was getting IV fluids and no food or drink by mouth, I was also having to pump breast milk for my baby which was 2.6 oz. bottles 3 times every day. I was miserable to say the least. After the surgery, I was given Oxycontin for the pain but I couldn't take it because instead of helping with the pain it made the pancreatitis flare up. The past 5 years I have been avoiding dairy (reason 1 lactose intolerance and reason 2 to avoid flares), avoiding red meat as much as possible, avoiding fast food, using stevia instead of sugar or other sugar substitutes, eating less fried foods and more grilled or baked, eating more fruits and vegetables, and going for a 45 to 60 minute walk 4 or 5 times a week. I have seesawed with my weight but now my doctor says my latest blood work up shows elevated blood sugar levels so I will find out soon if my history of gestational diabetes coupled with pancreatitis has ended with me developing type 2 diabetes.

Comment from: julu, 65-74 Female (Patient) Published: March 27

I had my first attack of pancreatitis when I had just turned 30. Horrendous. I went to the emergency room, was treated horrible and given 2 Valium tablets. That next morning I went back and ended up staying in the hospital for 7 days. To be honest, I did drink. Sometimes to excess due to divorce, etc. Anyway, the doctor said never ever have another drink. I did. My general physician said a few wouldn't hurt so, who did I want to believe? I had several attacks after this but they were mild compared to the first and were treated by fasting and pain medications. Now that I am 68, my pancreas has completely self-digested. I am diabetic and in constant pain. The fact that everyone is being put in the same box now as far as pain control isn't helping. I take 2 of the strongest painkillers. Otherwise everything goes right through me. I have EPI (exocrine pancreatic insufficiency) and many other health issues all related to this. I don't expect to live more than another 8 years at most. If your doctor tells you not to drink, believe it. I wish I had.

Comment from: France AP, 55-64 Male (Patient) Published: November 16

I drink very occasionally and eat a normal, healthy diet. I work out 4 to 5 times a week, swim, and am in good shape. I have high blood pressure and take lisinopril and metoprolol. I also take levothyroxine for thyroid issues. But that's it. I had something that felt like a stitch just under my left rib cage. It didn't go away, I thought it was gas. By midnight I was uncomfortable, but thought I would sleep it away. By 5 AM I was in such stomach pain that I decided I needed an ambulance to take me to the emergency room. By 6 AM I was on morphine for the pain and by around 8 AM they gave me a CAT scan, and it was acute pancreatitis (AP)! By 10 PM I was transferred to the ICU. I was on IV fluids and morphine. I don't recall too much other than that the morphine was wearing off too fast and I still couldn't sleep. I was able to get up and walk a little so I took hot showers to relax a little. There was no water for 4 days and no food for 6 days. My whole perspective on food has changed and while I am now on a very low fat diet, everything tastes great! The condition must have resolved within 24 hours of arriving in the emergency room, because the recovery began about then. Within 12 hours of drinking water, I vomited what must have been 1 full gallon of water and bile (blue-green stuff). I was off morphine about 12 hours after that. Chest x-rays, an ultrasound, and MRI all came back clear. My bloodwork was originally extremely high and they told me that I had a Balthazar E severity AP. By the time I was discharged, my bloodwork was well on the way back to normal and 2 weeks after arriving home, my bloodwork was only marginally elevated; typical of someone who had AP. I am recovering now, but have the occasional twinge or stitch but it resolves within an hour or so, but I am so paranoid, I don't know. I will have an endoscopy with ultrasound in a couple of weeks and if that is clear, then I am probably ok. I will still keep on a low fat diet and I am targeting 2 years from now having a taste of a beer, just a taste.

Comment from: Sweetgrace, 65-74 Female (Patient) Published: September 18

After having knee replacement I was prescribed pain medication. After about a month or so into my rehabilitation I began to have severe nausea! I could not stand up or move, nausea was so bad. My daughter took me to the emergency room. After blood work, inflamed pancreas from the pain medicines was my diagnosis! I was put on liquid diet for 3 days and then I began to get better.

Comment from: flustered, 35-44 Male (Patient) Published: July 05

After years and years of suffering with cramps, no appetite, nausea, diarrhea, etc., my doctor listened again to my symptoms and thought for a second only to return with a bottle of Creon and told me to take it every time I eat. I haven’t had a cramp since so far, and I actually get hungry, not nauseated. I am not sure what this means for me as I recently also lost me thyroid, but Creon is helping and that points to the pancreas. It has been a mystery we've been trying to solve for a long time now. I am hoping it is only pancreatitis and not something more serious.

Comment from: DeDee, 55-64 Female (Patient) Published: June 28

Since 2016 I have been experiencing excruciating pain above my belly button resembling labor pains (childbirth); getting gut punched and released continually 6 to 12 hours for each episode. I would be in the fetal position and unable to lie on my back to get comfortable, can't eat or drink liquids, etc. I am continually in pain measuring 4 to 10 daily. Every six to eight months I go into 'labor' again. I would go to the hospital and they would give me pain killers until the pain stopped, then give me an MRI, tell me nothing was wrong with me, and send me home like I was making the whole experience up. In 2013 they decided to 'humor' me and said they would go in to have a look (wrong place, lower abdomen where I didn't have any pain), which ended up removing over 3 feet of my small bowel and lots of scar tissue. Eight months later, I went into 'labor' again. They took out another foot and a half of my small bowel, lots of scar tissue and my appendix. They never even got close to the area that hurt and the doctors keep telling me 'it's just 'scar tissue' and labeling it 'crampy abdominal pain' even after the 3rd surgery. I have all the symptoms of pancreatitis with all my tests, etc., coming up ok, never smoked or drank alcohol. I was at the hospital the other day and I asked my doctor whether it was possible to have normal enzyme counts for the pancreas and still have pancreatitis. He said yes, because it you have chronic pancreatitis is stops making enzymes. So I am going to another gastroenterologist but I have been trying to help myself, so thanks for your stories.

Comment from: spinny10, 45-54 Female (Patient) Published: June 26

I have just gotten home from the hospital for the first time. I had my gallbladder out 2 years ago. I have suffered with diarrhea for months. My doctor said it was irritable bowel syndrome. Now I get the stomach pain and go to the emergency room. They tell me my levels are crazy high. I have pancreatitis and I can never drink, have fatty foods, or smoke again. I am depressed. I had an IV for 3 days, but had not eaten for 6 days. I eat tomorrow! Wish me luck!

Comment from: Ken, 55-64 Male (Patient) Published: May 09

I have been dealing with pancreatitis since 2010. I have had many surgeries due to adhesions, gall bladder removed and also appendix. The pain along with my adhesions are incredible and I do receive treatment for pain which has been going on the 10 plus years now. Not once have my blood tests came back stating anything is wrong. The only test that is out of whack is my triglycerides and they stay right at the 480 to 490 range. The doctor does not want to treat that because the medicine makes your cholesterol go up and I cannot tolerate those medicines at all. I have tried everything possible even half of the lowest dose possible but cannot take these. Some doctors I have seen do not believe I have pancreatitis, others say I might, and yet a couple of others say I do but there is nothing that can be done. I am not diabetic and one doctor has told me I may never become diabetic and before that happens I might have system failure of some sort. On the rare occasion I do go to the emergency room I get treated like a drug addict so those trips are few and far between. I am on two pain medications, Creon, and a couple arthritis medicines and they make it so at least I can get out of bed and stay mobile somewhat. I have no identifiable symptoms and when I had my ERCP (endoscopic retrograde cholangio-pancreatography) the doctor came in and told me it was the easiest one he has ever done, 'but one thing puzzled me,' he said, 'your pancreas is not making any enzymes,' and he put me on Creon and out the door he went. I live a life of pain and it is a miserable life and doctors do not want to take the extra step and others state continue what you are doing taking your pain pills and get you blood test every three months. It is not anything I would wish on anyone (well there might be a couple doctors) and wish something there could be done for people like me. Now this thing with opioids I am afraid is going to make it even worse for us! I could go on and on like most of us could but that is that short side of my painful miserable life I have had for 10 plus years now. I wish the best for everyone! And by the way I do not drink, have never done drugs and that is yet another thing doctors find puzzling. So my case is very puzzling and doctors refuse to believe I have pancreatitis because I do not have any blood work troubles and that it is just impossible for this to happen without your lipase and others to be out of whack! I wish the pain would stop!

Comment from: Dolly, 55-64 Female (Patient) Published: January 20

I was at work and had what felt like a knife shoved into me at the very top of my stomach. The pain would not subside and was radiating up, down, and through. It just intensified. The only way I can explain it is a really bad sharp labor pain that did not stop. I had a coworker take me to the emergency room. I was in the hospital for 4 days until they could get my pancreatitis under control. Then they took my gall bladder out because it had sludge and crystals. I have been out of hospital for a week and feel much better. I am still eating bland and small meals. It was by far the most painful thing I have ever experienced. They had me on a morphine drip and it was not touching the pain. I am willing to make any life changes to never ever have to go through that again!

Comment from: PAB, 75 or over Male (Patient) Published: April 01

I suddenly lost 20 pounds in 30 days during a continuous episode of diarrhea. Doctors focused on colon issues for 9 months even though CAT scans showed a damaged pancreas. No diagnosis issued and I became sicker. Doctors became disgusted with me. I don't drink alcohol. Finally, I received help via other doctors with the expensive drug Creon! Allows reasonably normal diet. This drug should be mentioned in the discussions on the website.

Comment from: J Rivera, 19-24 Male (Patient) Published: January 12

I have being suffering from pancreatitis since 2010, I remember the pain was constant and increasing. With time the pain was on my back and everywhere. I stayed in the hospital for a week but in a short time I returned to the hospital because pain was uncontrollable, so I got a surgery in my gall bladder because of the stones. Therefore, I have been more than 9 times in the hospital. The only problem when I appear in the hospitals I need more dosage for the pain. Also I experienced several pancreatitis attacks but hospitals are very expensive so the only thing I do is stay at my house drinking lots of water without food until the pancreas rest. And sometimes pain killers are not good enough for the pancreas. The doctors are very surprised how I am still alive without any surgery in the pancreas. The hardest thing is to stop drinking wine or any liquor, sometimes I drink and nothing happens so I feel confident but later I know that I would wake up the tiger that is sleeping (pancreas). Then I am worried about how everything will result after many times.

Comment from: livenlearn80, 35-44 Male (Patient) Published: August 11

On 1/15 drove to the emergency room with a 'punched in the gut' feeling. I thought it was an ulcer, bad gas, or gastritis. I had a stomach ache for about two weeks. Just an ache, no other symptoms, except that it was getting more intense after eating or drinking. I was admitted for about a day with mild acute pancreatitis. I had no alcohol and light meals for a week. Gradually I started drinking again more like before. Six months went by with minor flare-ups. Almost six months to the day, I was crippled on the floor with severe pain, nausea, I was very pale and weak with a weak pulse and low blood pressure, and sweating like crazy. I was taken by ambulance to the hospital, and diagnosed with acute pancreatitis. I stayed in the hospital for 3 days. I never had alcohol since. As selfish as this sounds, I am annoyed that I can't and shouldn't drink anymore, but at the same time, I fully understand why. I’d much rather stay alive and be happy then roll the dice by drinking and suffering from another attack, which would probably be way worse than the last time. When I was in the hospital the last time, my lipase level was up to 13,500 when I was admitted. When I was released, the nurse said to me, 'If you ever feel like drinking again, picture yourself feeling like you just got punched hard in the gut'. To date, I am healthy, eating normally, and not drinking alcohol. It's a change for me, but a good change.

Comment from: 25-34 Male (Patient) Published: March 17

I always have had pain in the left side of my stomach I have been to doctors about, and they said it was nothing. Then after 2 years of having it on and off, I got it in the stomach and back I went to the hospital; it was pancreatitis. I was released from hospital, then checked up the gallbladder and had it removed, but I still got pain and another 4 bouts of pancreatitis. I have been off alcohol for almost a year, but I am still getting pain and trying to find out what it is. There is a procedure they can do but they don’t want to do it as of yet. This pain has caused me a lot of trouble, meaning, being sad and down a lot plus stress and worry.

Comment from: Valerie, 45-54 Female (Patient) Published: March 09

I had gallstones and one moved into the bile duct. I went into hospital for a day procedure to have an ERCP (endoscopic retrograde cholangio-pancreatography) but they failed to remove the stone so the doctor put in a stent. However at about 4 pm in the afternoon I had really severe pain, so severe they thought my bowel had been ruptured. I was x-rayed and after that I don't remember anything for 2 days. I was obviously admitted to hospital. I was diagnosed with acute and severe pancreatitis. My lungs filled with fluid and I was very ill and would have been in intensive care but there was no bed. I was given oxygen, antibiotic and fluids. Nausea, pain, sweating, high temperatures and swelling continued and with continual hospital treatment I had one step forward and 2 steps back. I was then transferred to a specialist hospital in Belfast where I was tube-fed down the nose for 7 weeks. I was very ill at times and didn't really want to continue living many times. I would be on antibiotics, fluid drip, morphine pain relief - a high dose of this in the end; sweating and nausea all continued. I had scans every week as there was a collection around my pancreas. I was in hospital a total of 11 weeks and then I started to recover enough to get home. I returned to hospital 6 weeks later and had my gall bladder removed and stones from my bile duct and the stent removed. It is now 2 months since the surgery and I still have very little energy and the consultant says it will be at least 6 months from surgery until I start to feel my normal self. It's very frustrating.

Comment from: Tony, 45-54 Male (Patient) Published: October 23

Had classic symptoms of Pancreatitis Oct/06. My GI specialist admitted me for acute. Severe pain continued with gold colored diarrhea (stains the toilet). Told I had chronic pancreatitis (CP) and prescribed Creon 25 and narcotic for pain. Later prescribed Cholestyramine... secondary benefit is bile reduction. My doctor states that not much can be done. I eat smaller meals and map out washrooms if I need to go out. I used to be a heavy drinker 27 years ago but abstained since. Thought it might of been caused by massive amounts of anti biotics (H-Pylori kits) during a 2 year period but GI specialist did not agree. My motto is, "we can accept the good times... why not then the difficult ones."

Comment from: survivor, 45-54 Female Published: October 09

I had my gall bladder removed in Sept. 2006. Within 2 weeks after that, I began to have the same symptoms as before the gall bladder was removed. I spoke to my surgeon who ordered an ultrasound which was normal showing no stones. The symptoms disappeared for about 2 years. Then I began to have the symptoms again. I spoke again to my surgeon who ordered another ultrasound which was normal and also had a gastroscopy done which was also normal. He then suggested I see my family physician to have my heart checked out since my pain was high in the abdomen just below my breasts in the middle area. My symptoms again disappeared for about six months. On April 28, 2009 I arrived at work and began again having symptoms of the pressure and pain. I spoke to the surgeon again who works in the same facility as I do and he sent me for some blood work. Immediately after having the blood work completed I became quite weak and felt nauseous and had some jaundice. When the surgeon saw me, he immediately admitted me to the hospital assuming I had passed a gall stone. The following day, I had a CT scan done which showed severe pancreatitis. I was kept in hospital for one week. I continued to be very sick with diarrhea, vomiting and unable to look at food much less eat it. I had another CT scan which showed a 15cm pseudocyst. I then had stents put in via scope to drain the cyst. After two weeks, I still could not eat and still had vomiting. Another scan was done which now showed an abscess. I had another scope in order to insert larger stents to drain the abscess. I remained in hospital for about two weeks this time and could do nothing but sleep. I was still not eating much other than liquids. I was finally discharged and I tried to return to work which was the wrong thing to do. I was so tired and had no energy at all. I then decided to take extended time from work to try and recover. I had some blood work completed which showed my sugar was 23.1. I was immediately admitted back to hospital and have been on insulin ever since. I had no idea that inflammation of the pancreas could be so debilitating. I returned to work full time on August 31, 2009 and now feel fantastic. I have lost a total of 70 pounds (which really needed to go) and am maintaining the weight loss. I feel better now that before the pancreatitis. I truly felt that I was going to die. My only fear is that it may recur. Not sure I could ever go through that again.

Comment from: Lucky in Kentucky, 55-64 Male (Patient) Published: October 06

I had gall stones that moved from my gall bladder to my common bile duct. I collapsed at home in May of 2008 and only remember being admitted to our local hospital. I woke up eight days later at Jewish Medical Center in Louisville. It was diagnosed that I had pancreatitis as a result of the gall stone blockage of the bile duct. The stones were removed, and I was home in 12 days. Within 30 days, I had developed pseudocysts on my pancreas. One of them broke and for the next five months, I was in and out of the hospital. I had drainage tubes placed in my side and back to evacuate the fluid from the remaining cysts. I lost more than 110 pounds. I could not even look at food without feeling like I would throw up. I became dehydrated and malnourished and could not walk without assistance. In September of 2008, the doctors inserted a feeding tube and after a month, I began to gain some weight. At the end of October of 2008, I had the feeding tube removed. I began eating a controlled diet, and by mid-November, I was able to return to work on a part-time basis for the first time in six months. By the end of the year, I had regained about 15 pounds of the weight I had lost and was able to work my normal schedule. In March of 2009, I was healthy enough to have my gall bladder removed, which was the root cause of the pancreatits. In the 11 months since my recovery and return to work and normal life, I have gained another 30 pounds. I take a digestive enzyme daily, but aside from that, I have no lingering effects other than the scars from the tube insertion and gall bladder operation. There were days and weeks during my illness I felt certain I would die or at best never be the same. I am careful of my fat intake and by choice, not necessity or doctors’ orders, I no longer drink alcohol. I had great doctors and nurses as well as family and friends that helped me through my illness. Without their skill, friendship and encouragement, I'm not certain I could be relating this story today.

Comment from: I Edna, 75 or over Female (Patient) Published: June 02

I had a procedure done for pancreatitis 11 years ago and now have loose bowel moments for 7 days. I’m on Flagyl.

Comment from: Kathy, 45-54 Female (Patient) Published: January 27

I still have a lot pain with this pancreatitis. It has been 2 years since I was told about it. It feels like it is getting worse. I don’t know what I need to do.

Comment from: Rusty725 , 25-34 Female (Caregiver) Published: December 02

My daughter was treated as an alcoholic, junkie when she went to the emergency room (ER) with pancreatitis. She admitted to drinking on Halloween night, this was 4 days later. She texted me from the ER and said they were not helping her and would not let her use the bathroom. I lost contact with her. I went in the next morning and she was incoherent and strapped to bed. They told me she was going through withdrawal and was acting inappropriately. She had no alcohol/drugs in her system yet they treated her for detox! Unbelievable.

Comment from: Ice13, 35-44 Female (Patient) Published: December 02

I drank liquor, beginning in 2010, every single day. I drank to go to sleep and to wake up. By the end of 2014, I had stopped eating, replacing food with liquor. I had begun to vomit each and every day and couldn't keep anything down because of pancreatitis. One night, right after New Year's, 2015, I awoke parched and completely dehydrated so I ventured into the kitchen, grabbed an ice cold bottle of water, and proceeded to gulp it down. Mid-gulp, I felt a sharp pain inside of me.

Comment from: Anicole89, 25-34 Male (Caregiver) Published: October 15

My 29 year old husband has got pancreatitis from excessive energy drinks and alcohol. Well, now that he is out of hospital and better, I swear he's on something. He acts like he's on meth or something. So I'm just trying to find out if anyone knows, or has witnessed someone after recovering, acting totally too energetic and barely even sleeping.

Comment from: Lyn, 55-64 Female (Patient) Published: July 23

I have read many of the comments about pancreatitis but so far I haven’t read the description of pain starting in the back radiating around the right side and up under the ribs, not quite to the middle of the body. I wonder if the pain always starts in the front and then on the side and end up in the back.

Comment from: Mahesh, 25-34 Male (Patient) Published: July 09

I had an acute pancreatitis attack in 2016 after which I quit alcohol for 1 year, and started it in moderation. Nothing happened to me for 2 years. But suddenly I started binge drinking and I faced another attack. So I think 1 beer in 15 days gap is not going to harm me. Keep living.

Comment from: David & Charity, 35-44 Female (Caregiver) Published: May 14

My wife suffers from acute pancreatitis. We are in desperate need of care and the doctors have told us that there is nothing that can be done for her.

Comment from: David crosby, 25-34 Male (Patient) Published: October 16

I have pancreatitis and drink regularly again, and that’s what has caused it. Last night I had a pain which I recognized straight away. I wonder what I should do apart from stopping drinking.

Comment from: JCS, 55-64 Male (Patient) Published: June 02

With pancreatitis I have extreme pain in upper part of stomach that radiates to my back, neck, shoulder blades. Then burning sensation in the chest to then heart attack type pain. If I move quickly I get a sharp pain in right lung area, like a spasm.

Comment from: 45-54 Female (Patient) Published: May 19

I have had chronic pancreatitis for 21 years now. It has wreaked havoc on my mental and physical wellbeing. I am not the person I was before I got this illness, it has changed me both mentally and physically into a different person. I believe what we need is more understanding and help from the medical profession.

Comment from: sstorck, 45-54 Female (Patient) Published: May 16

First if all, your information clearly slants readers to believe that one must be an alcoholic in order to suffer from pancreatitis. However, there are those of us who do not drink and are lumped into the drug seeking, alcohol abusing group because of this mindset that all pancreatitis is caused from drinking or gallstones. There are other causes of pancreatitis that should have been addressed, not just the ‘popular’ diagnosis. Doctors like this are the reason I can’t get proper care. My pancreatitis is caused by a divisum and sphincter of Oddi dysfunction. I did not cause my illness but to read this article one would believe that I am guilty of being an addict.

Comment from: Alayna, 55-64 Female (Patient) Published: April 26

I thought I was one of the few who didn't have pancreatitis. I have anemia and however ridiculous it sounds, I use the diet patch to help with my weight. I'm scheduled for both an upper and lower endoscopy, this 5/4/16. Today I had bright green stool when I take loads of vitamins one of which is an 11 veggie vitamins that I take every other day.

Comment from: martha, Female (Patient) Published: March 22

They removed my pancreas and left only the head and I have a tumor. Right now I am in a lot of pain. I have asthma due to second hand smoke and they gave me prednisone. They told me my pancreas failed and removed my spleen, part of my stomach, intestines and I am getting worse.

Comment from: Katbird30, 35-44 Female (Patient) Published: November 10

I am a 41 year old female. In March of this year I found out I was a match for a friend that needed a kidney. After a bunch of tests, I was told that I could not give my kidney because I had a lesion in the head of my pancreas. I then had to have more tests to find out what this lesion was. It turns out that was a cyst. It was small so they suggested that I have at CT scan every six months to keep an eye on it. After the first 6 months, it had doubled in size. They want to biopsy it but due to its location it is hard to reach so they want me to wait another 6 months and at that time, if it has grown more, they want to biopsy it at that time. I have recently started to have pain in my left side and it bothers me most after I eat. I wonder if this is something I should bring to the doctor’s attention. It's not horrible pain, just annoying. I have been told that at some point (when the cyst gets to a certain size) that it will have to be removed.

Comment from: Little stuff, 65-74 Female (Patient) Published: August 18

Four years ago I was admitted to the hospital after violent vomiting. I spent 2 months in the hospital and a month in rehabilitation and I had my gall bladder removed. I do not drink alcohol. I am finally back to myself and 3 weeks ago I had a bout with what I thought was food poisoning; another bout a week later after lousy Chinese food and then just felt queasy eating very little. Hospital showed pancreatitis in the CT scan and I am trying to get back to myself with low fat diet, no return to the hospital (yet).

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