Spina Bifida

Question:

Was your child born with spina bifida? What was your family's experience with the disease? Submit Your Comment

Comment from: Andy, 3-6 Female (Caregiver) Published: August 09

We live in Uganda and our daughter was born with spina bifida and in Uganda such cases are only referred to the children's hospital. However, it is now about 3 years and our daughter hasn't walked yet and recently we observed an abnormality only to be told that something went wrong during the first surgery. We are very disturbed and have no idea on what to do.

Comment from: Kateperry , 35-44 Female (Patient) Published: June 06

I am a young woman with spina bifida. I don’t view it as a disease. I was born with an uncompleted spine but in my life I was given 2 lovely kids. My partner is amazing. I can overcome any hurdle life throws in my way.

Patient Comments & Reviews

  • Spina Bifida - Diagnosis

    How was your child's spina bifida diagnosed?

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  • Spina Bifida - Treatment

    What medical treatment did your child undergo for spina bifida? Was it effective?

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Medically reviewed by Aimee V. HachigianGould, MD; American Board of Orthopaedic Surgery

REFERENCE:

"Overview of the management of myelomeningocele (spina bifida)"
UpToDate.com

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