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Thyroid Storm


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Comment from: Em, 25-34 Female (Patient) Published: August 13

I’ve been feeling pretty awful after my second daughter was born 5 years ago. But much worse than ever this last year since my 3rd daughter was born. It had gotten to the point where I had so many symptoms I was keeping a list of these spells. I have to wait another month to be seen by the endocrinologist. My medical doctor diagnosed me with thyroid storm, with blood work based on me telling her my symptoms. I feel terrible and like I’m dying. I have every single symptom I have read. It’s horrible to live a life where you look normal and young but you are dying inside and no one gets it.

Comment from: Shana1134, 25-34 Female (Patient) Published: April 02

My thyroid storm began with on and off sickness over the course of 3 days. Then it became extreme with constant sickness for 12 hours, extreme sweating, eyes bulging and I was no longer able to string a sentence due to being confused. I went to Accident and Emergency with a heart rate of 169 and was put into a mild coma in intensive care. My doctor said I could have lost my life and I couldn't be more grateful that they helped me in the nick of time! Don’t leave anything to chance.

Comment from: Rebecca, 55-64 Female (Patient) Published: January 08

I had chest pain, shortness of breath, vomiting, high blood pressure and pulse over 180 bpm from the thyroid storm. All this caused my heart to not pump properly which caused a blood clot in my left ventricle. It also caused fluid to build up in my lungs. I was in the ICU 4 days and cardiac floor another 4 days.

Comment from: Motherof3247, 55-64 Female (Patient) Published: October 08

A day after total thyroidectomy I had a thyroid storm. I was shaking badly all over, starting about an hour after taking levothyroxine 125 mcg. I had excess urination, no appetite, and balance issues. It was worse the 2nd day after surgery, so on the 3rd day I did not take thyroxin; on 4th day, only 25 mcg. I felt much better, no shaking, or excess urination. I still have no appetite, I make myself eat some (still having trouble with soft foods, even liquids sometimes get stuck). I calculated the average dose as per BMI. My actual dose may need to be 50 to 75 mcg.

Comment from: Mare, 75 or over Female (Patient) Published: July 31

My thyroid was removed in 1999. I was on Eltroxin for 18 years, but recently changed to 88 mcg of Synthroid. No explanation. Since 2014 I have had 5 thyroid storm attacks which sent me to the hospital with nausea, heart palpitations, heartburn, quivering, extreme heat like a hot flash lasting hours, and also shivering. During the attack in December my blood pressure hit 210/110. On July 4/18, the latest episode, I had tingling lips and lower face, and jabbing pain in my head. Diagnosis usually is ‘a virus’, or 'extreme heartburn'. The doctor never followed up. I feel like I am passing away.

Comment from: sunflowernw, 35-44 Male (Caregiver) Published: May 16

My fiance was diagnosed with Graves’ disease almost a year ago. He didn't get treatment and began to worsen. For about the last six months or so he has struggled with heat intolerance, coughing, trouble breathing, diarrhea, vomiting, weakness, tremors, hunger with sweet cravings followed by a loss of appetite, sleepiness, insomnia, mood swings including mania, depression, and explosive anger, irritability/agitation, restlessness, memory loss, and an inability to focus. Last week he checked himself into the hospital. His heart rate was 200 bpm and his oxygen was very low. They diagnosed him with thyroid storm. He was placed on a respirator, given beta blockers, and given PTU (propylthiouracil). He was in the ICU for two days. While he was there the restlessness and agitation made it difficult for him to stay and he convinced the doctors to let him out early. He's currently still on the beta blockers and PTU. He has an appointment at the end of the month for the radioactive iodine treatment. His doctors told him that it's absolutely time to get treatment. If you have hyperthyroidism don't wait to get treatment; make an appointment today. Thyroid storm is preventable and hyperthyroidism is treatable. My fiance was very sick but thought that he could manage it. It is better to seek treatment than to try to manage it or suffer through it.

Comment from: Tanne, 65-74 Female (Patient) Published: January 24

Last September my TSH was 11.73 and I began taking 125 mg levoxine. This September my TSH is 0.06. I know no way, I could hardly get out of bed or off couch. I was overdosed for 1 year. I am taking 112 mg now, and will go for recheck in February, feel some better but it a slow go. I wonder what damage that has done to my body.

Comment from: Gai, 65-74 Female (Patient) Published: July 07

My doctor phoned tonight to suggest I was suffering from thyroid storm. Symptoms are weakness, rapid weight loss, nausea, diarrhea, rapid heartbeat, light coughing, and general unwellness. I have an appointment tomorrow.


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